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Re: Comparing pain

From: Abigail (anonymous@obgyn.net)
Mon Jul 25 09:34:46 2005


Thank you, You don't know how important it is to hear, that more than 1 had continuous pain from the beginning. She is starting college, & thinking anymore surgery will have to wait til next summer. I shudder to think of 9 months of pain. I am thrilled your last surgery was so successful! HOPE, there it is again! We had to laugh at you mom saying "Buck it up!" & then feeling guilty.. There is a lot of that going around. You take care of yourself & have some fun while you're up! You deserve it. Abigail

At Sun, 24 Jul 2005, holly wrote: >
>i had pain from the beginning as well. mom told me it was normal, so i
>just assumed everyone else had the same thing. it wasn't until i was 30
>or so that a dr explained to me pain is not normal. after 2 surgeries
>(the last one being excision and very successful), 3 months of lupron,
>and almost a year of continuous birth control pills, i have a life
>again. i didn't have much endometriosis, and i had absolutely no
>adhesions. but i had pain almost all the time. my dr explained that
>the location and the activity of the lesions can cause the pain to be
>felt more.
>
>your daughter is lucky to have the diagnosis early. yes, it's very
>scary and painful, but to know what you're fighting against is half the
>battle. when my mom found out endo was the problem for me, she felt
>guilty because she had always told me to buck up. i don't blame her. i
>probably would have done the same if my cramps had been normal. you're
>doing the right thing by researching as much as you can. my mom is
>doing that now. when i go to visit, she's always got a new article for
>me to read. i don't mind. i just wish we had done something years
>before.
>
>(((hugs))) to you and to your daughter. there is hope for life without
>pain. i still have some pain from time to time, but it's not a daily
>thing anymore.
>
>~holly
>
>At Fri, 22 Jul 2005, Abigail wrote:
>>
>>My daughter was diagnosed with endo fairly quickly. We have tried a few
>>things.
>>But.... I was wondering..
>>Her pain came on in Sept 2003. It came on hard & every day. There was
>>no starting with pain during her period, & building up to everyday. It
>>was everyday from the git go.
>>She had a lap...One dot of endo & 4 adhesions...No pain relief.
>>She depo-provera 6 months... no pain relief.
>>She did have something (hernia like) pop out & go back in ...Diagnosed
>>as no hernia. CT.. no hernia
>>
>>Does this sound like anyone else's endo? Pain every day from the
>>beginning?
>>Thank you, for your time.
>>Abigail




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