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Re: Comparing pain
From: anonymous (anonymous@obgyn.net)
Sun Jul 24 09:29:52 2005
The doctor can excise the endo using a laser, so make sure you find out
if she excised it with a laser or cauterized it with a laser before you
get upset. I had my endo cauterized with a laser six years ago and had
it excised with a laser last summer. Since the excision, I am a new
person. I went to Dr. Albee in Atlanta to do my most recent surgery. I
also had to have a few organs removed, but am functioning at a level I
never thought I would ever be able to in my whole life. As for the
pain, I had painful periods my whole life, but the 24/7 pain didn't
start until years into my periods. I had been on bcp to help my painful
and long periods since I was 15, but when the pain went from period time
only to 24/7, I went back to my doctor. It took me a year of calling
every week before he finally believed that I was in pain and gave me an
appointment. He did the lap to shut me up. I had never heard of endo.
He said he was 100% certain that I didn't have it, but I had stage IV.
He apologized for ever after my surgery, but the surgery didn't help
any. After several more years of suffering, and I was on continuous
bcp!, I finally made an appt with Dr. Albee. After being in bed too
sick and in too much pain to enjoy life for all of my teen years and the
first half of my 20's, I am finally able to work 40+ hours a week and go
to school for my master's degree. It is like I am a new person. Still
in some pain, mind you, but not debilitating pain. Seeing a specialist
is at least worth looking in to. And it is definitely worth the cost.
God Bless!
<><
At Sat, 23 Jul 2005, Abigail wrote:
>
>Do you know how important that info is? I have been reading it must be
>excised, I thought we had had it done. Nope, she used a laser, She told
>us plain as day. I really don't ever remember reading that on the web
>anywhere. I assumed it was the same thing.
>As I wrote on the last remark to Jessica, I found Morgantown's Dr.
>Harmon thru pelvicpain.org & tho it felt like I was pulling a name out
>of the hat... He was very sympathetic, & prescribed the new Danazol.
>For info on this drug, google: "Janicki danazol" It is about the only
>article I found. but there were A couple of trials out of Japan.
>Good luck with New Dr., Lap & LUNA, Let me know, how things go, & you're
>in my prayers.
>Abigail
>At Fri, 22 Jul 2005, Terrya wrote:
>>
>>The first lasps only helped for about a month and half after each
>>one...but this was before I saw and endo specialist. Now that i have
>>finally found one and seen my medical records, I can see that my regular
>>OBGYN had no idea how to treat my case. He was cauterizing the endo. He
>>told me he was going to do this the first surgery and then the 2nd
>>surgery he told me that he was going to laser it. But after I read the
>>operative note, I can see that he cauterized it again. He also was
>>supposed to do a LUNA proedure, which he did not do or did not mention
>>in the operative report. The endo speciailist that I have recently
>>found in my area has said that you HAVE to cut or excise the endo out,
>>not just try to burn it away, which is why I probably haven't had much
>>relief from the surgeries. So if she does get surgery make sure they
>>are going to excise the endo. Also this is supposed to decrease the
>>likelihood or severity of adhesions after surgery. Cauterizing causes
>>many adhesions, which I think is not a BIG part of my chronic pain
>>problem. I have also tried Lupron, anti-depresants, and narotics, as
>>well as continuous BCPs for the pain. None of this has helped me. If
>>your daughter is seeing a regular OBGYN for endo...get a 2nd opinion
>>ASAP. Research as much as you can to find an endo specialist. The
>>advisors to the endometriosis association are a good place to start.
>>This is where my new doctor is from. I'm sure there is someone in your
>>area or not too far away. i have to drive about an hour to see my doc
>>and i live in a major metropolitan area, but i think it is worth the
>>trip. Regular docs just don't understand this disease. You have to
>>have somebody who specializes in it. You can also post a message on
>>here and see if somebody has a doc they would refer you to in your area.
>>I found my doc through an online support group and just askin people.
>>Please feel free to email me offline at thafinestfemale@yahoo.com if you
>>have any more questions or think i can help more. Wishing your daugter
>>pain free days...Terrya
>>
>>At Fri, 22 Jul 2005, Abigail wrote:
>>>
>>>Thank you, You are the first person to say pain came on fast & hard &
>>>everyday. Now did your laps help at all?
>>>They have put my daughter on the danazol vaginal suppository. It has
>>>only been a week & a half. We are waiting.
>>>I do believe her. I can see it in the way she walks, in her eyes. It
>>>is killing me.
>>>Abigail
>>>
>>>At Fri, 22 Jul 2005, Terrya wrote:
>>>>
>>>>Actually this was my situation. I was having pain daily for 2 years but
>>>>did not have isnurance to go to the doctor to really find out what it
>>>>was. It was worse on the left side and hurt really badly when I walked.
>>>>I was about 19 when it started. Now I am 23. I was diagnosed last June
>>>>and have had 2 laparoscopic surgeries since then and am about to have
>>>>another one. Please believe your daughter when she tells u she is in
>>>>constant pain because I'm sure her pain is real. It doesn't matter how
>>>>much endo a person has, there is no correlation between the amount of
>>>>endo and the amount of pain. I hope your daughter finds something to
>>>>help her feel better.
>>>>
>>>>At Fri, 22 Jul 2005, Abigail wrote:
>>>>>
>>>>>My daughter was diagnosed with endo fairly quickly. We have tried a few
>>>>>things.
>>>>>But.... I was wondering..
>>>>>Her pain came on in Sept 2003. It came on hard & every day. There was
>>>>>no starting with pain during her period, & building up to everyday. It
>>>>>was everyday from the git go.
>>>>>She had a lap...One dot of endo & 4 adhesions...No pain relief.
>>>>>She depo-provera 6 months... no pain relief.
>>>>>She did have something (hernia like) pop out & go back in ...Diagnosed
>>>>>as no hernia. CT.. no hernia
>>>>>
>>>>>Does this sound like anyone else's endo? Pain every day from the
>>>>>beginning?
>>>>>Thank you, for your time.
>>>>>Abigail
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