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Re: Comparing painFrom: Abigail (anonymous@obgyn.net)Sat Jul 23 20:15:48 2005
Do you know how important that info is? I have been reading it must be excised, I thought we had had it done. Nope, she used a laser, She told us plain as day. I really don't ever remember reading that on the web anywhere. I assumed it was the same thing. As I wrote on the last remark to Jessica, I found Morgantown's Dr. Harmon thru pelvicpain.org & tho it felt like I was pulling a name out of the hat... He was very sympathetic, & prescribed the new Danazol. For info on this drug, google: "Janicki danazol" It is about the only article I found. but there were A couple of trials out of Japan. Good luck with New Dr., Lap & LUNA, Let me know, how things go, & you're in my prayers. Abigail At Fri, 22 Jul 2005, Terrya wrote: > >The first lasps only helped for about a month and half after each >one...but this was before I saw and endo specialist. Now that i have >finally found one and seen my medical records, I can see that my regular >OBGYN had no idea how to treat my case. He was cauterizing the endo. He >told me he was going to do this the first surgery and then the 2nd >surgery he told me that he was going to laser it. But after I read the >operative note, I can see that he cauterized it again. He also was >supposed to do a LUNA proedure, which he did not do or did not mention >in the operative report. The endo speciailist that I have recently >found in my area has said that you HAVE to cut or excise the endo out, >not just try to burn it away, which is why I probably haven't had much >relief from the surgeries. So if she does get surgery make sure they >are going to excise the endo. Also this is supposed to decrease the >likelihood or severity of adhesions after surgery. Cauterizing causes >many adhesions, which I think is not a BIG part of my chronic pain >problem. I have also tried Lupron, anti-depresants, and narotics, as >well as continuous BCPs for the pain. None of this has helped me. If >your daughter is seeing a regular OBGYN for endo...get a 2nd opinion >ASAP. Research as much as you can to find an endo specialist. The >advisors to the endometriosis association are a good place to start. >This is where my new doctor is from. I'm sure there is someone in your >area or not too far away. i have to drive about an hour to see my doc >and i live in a major metropolitan area, but i think it is worth the >trip. Regular docs just don't understand this disease. You have to >have somebody who specializes in it. You can also post a message on >here and see if somebody has a doc they would refer you to in your area. >I found my doc through an online support group and just askin people. >Please feel free to email me offline at thafinestfemale@yahoo.com if you >have any more questions or think i can help more. Wishing your daugter >pain free days...Terrya > >At Fri, 22 Jul 2005, Abigail wrote: >> >>Thank you, You are the first person to say pain came on fast & hard & >>everyday. Now did your laps help at all? >>They have put my daughter on the danazol vaginal suppository. It has >>only been a week & a half. We are waiting. >>I do believe her. I can see it in the way she walks, in her eyes. It >>is killing me. >>Abigail >> >>At Fri, 22 Jul 2005, Terrya wrote: >>> >>>Actually this was my situation. I was having pain daily for 2 years but >>>did not have isnurance to go to the doctor to really find out what it >>>was. It was worse on the left side and hurt really badly when I walked. >>>I was about 19 when it started. Now I am 23. I was diagnosed last June >>>and have had 2 laparoscopic surgeries since then and am about to have >>>another one. Please believe your daughter when she tells u she is in >>>constant pain because I'm sure her pain is real. It doesn't matter how >>>much endo a person has, there is no correlation between the amount of >>>endo and the amount of pain. I hope your daughter finds something to >>>help her feel better. >>> >>>At Fri, 22 Jul 2005, Abigail wrote: >>>> >>>>My daughter was diagnosed with endo fairly quickly. We have tried a few >>>>things. >>>>But.... I was wondering.. >>>>Her pain came on in Sept 2003. It came on hard & every day. There was >>>>no starting with pain during her period, & building up to everyday. It >>>>was everyday from the git go. >>>>She had a lap...One dot of endo & 4 adhesions...No pain relief. >>>>She depo-provera 6 months... no pain relief. >>>>She did have something (hernia like) pop out & go back in ...Diagnosed >>>>as no hernia. CT.. no hernia >>>> >>>>Does this sound like anyone else's endo? Pain every day from the >>>>beginning? >>>>Thank you, for your time. >>>>Abigail
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