ENDO Messages for July, 2005: Re: advice needed about surgery and pelvic floor physical therapy and other symptoms

Re: advice needed about surgery and pelvic floor physical therapy and other symptoms

From: anonymous (anonymous@obgyn.net)
Mon Jul 18 12:34:30 2005

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In reply to: m: "advice needed about surgery and pelvic floor physical therapy and other symptoms"
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Reply: Jessica: "Re: advice needed about surgery and pelvic floor physical therapy and other symptoms"

Hi M,

I think you need to see a different doctor and get a second opinion before you make up your mind about any of the options this doctor has given you.

Adenomyosis is unlikely unless you've been pregnant or had some other sort of trauma to your uterus. Not impossible, but unlikely.

Vomiting and diarrhea with painful periods is not all that unusual. Bloating and gas are very common as are food cravings or increased appetite. You might want to try making a few simple changes in your diet that should combat these symptoms either making them disappear completely or lessening the severity.

No dairy the week before or during your period. Dairy increases mucous production and causes gas formation in the bowel and inflammation in the lower abdomen. Yogurt and acidophilous milk may actually help so if you really love milk or are prone to yeast infections try switching from regular milk to acidophilous milk.

Lean meats and proteins. You should have 4 to 6 ounces per day minimum.

Fruits and Veggies. Keep them fresh. Eat them raw or blanched as often as possible. Stay away from canned (added salt). If you can't get fresh then frozen is second best. Canned is ok the rest of the time but you need to try to avoid adding salt to your diet. (Salt causes water retention)

Breads, cereals, pastas. Switch from white flour, white sugar based products to whole wheat or whole grain. White flour and white sugar turn to methane gas very quickly which causes bloating, gas and bowel inflammation. Whole wheat and whole grain products do not create the methane gas, move slower through your digestive system to make you feel full longer and they help your body keep the proper balance between liquid and solid in your stool to control the diarrhea and cramping. Also, decrease the overall amount of carbs you eat to a maximum of 1/4 of your total daily food intake. In other words, you should have more meat and veggies than you do fruits and carbs. (many fruits are high on the glycemic index (sugar content) which counts them as a carb).

[That's right kids, the food pyramid is actually kinda sideways! No wonder obeseity is one of the leading causes of death in the USA!]

Keep some cans of fruit cocktail or peaches in the house. When the nausea begins eat a small amount of the fruit with the syrup. It contains pectin (the stuff in Pepto-Bismal and Kaopectate) and will help. Make sure that when you're taking your pain medications that you eat something, a slice of toast, some Saltine or Ritz crackers (unflavored!), something mild and simple. If that does not work, ask your pharmacist for a recommendation.

Hysterectomy without removal of the ovaries does not guarantee that endo will not return, in fact, I don't think anything will give you that guarantee. Leaving the ovaries means you will probabaly go through menopause within the same time period as you normally would have. You can, however, experience a 'surgical menopause' in which your ovaries go into a state of 'hibernation' and you may need a short-term course of HRT to kick them back into action. Particularly if one ovary does end up being removed due to disease, etc.

I have no idea what sort of physical therapy is done for pelvic floor muscles. I know that sometimes pessaries and weights are used to help strengthen the supportive muscle and ligament structures so that is probably similar to what is done. You can always call the clinic and just ask them what is done, how often, by whom, etc.

Knowledge is by far your best ally. Ask questions and if you don't understand the answer, ask for an explanation in lay terms.

At Sun, 17 Jul 2005, m wrote: >
>Hi all,
>
>Sorry this is long--it is kind of my whole situation all summed up. I
>am trying to make my final decision about getting a 2nd lap. My first
>lap showed possible endo (the doc. was not 100% sure) and if it was
>there it was not very much (of course I know that even a little can
>cause pain).
>
>I've been having pain with periods since I was a kid, but my pain has
>now increased and lasts about 3 weeks per month. it's bad that whole
>time but much worse during my period.
>
>This week I was diagnosed as having painful muscles in my pelvic floor.
>the exam the doc. gave me was very painful, I was crying from it, etc.
>He wants me to see a specialist in pelvic floor muscle physical therapy.
>Has anyone done this before, and did it help you? He said he beleives
>that 90% of my pain is from my muscles.
>
>For treating the pain I get with my periods, he said to just use the
>pill, prefereably continously. The problem is I've used the pill for
>years and although it does help (meaning my pain is less without it) my
>pain is still unbearable even on the pill. Also, I cannot take higher
>dose pills because of the side effects and on the low dose, I've gotten
>breakthrough bleeding, which ends up giving me the same pain as when I
>have my period. anyway he said he did not want to do a surhgery because
>either way he would still treat me with the same things (therapy and bc
>pill) whether or not I had endo. But won't surgery possibly remove
>endo. and reduce my pain?? He said the endo will come back, but I don't
>think that is soemthing that is 100% agreed upon by doctors right?
>
>What about removing the uturus--if perhaps I have adenomyosis? Is it
>true that if you leave your ovaries, you will not need hormone
>replacement, but you won't
>get your period? So do you go through menopausal symptoms after removing
>just the uturus?
>
>Also, I wonder if surgery will affect my already messed up mucles even
>more? It was scary how painful they were when he touched them during the
>exam.
>
>Also, lately I've been throwing up alot during the painful part of my
>cycle. I don't if it is form the pain or pain pills or both. Have
>others had this expereince has anyone had luck with seeing a
>gastroenterologist for this problem? ( I haven't).
>
>Also, I have a lot of PMS symptoms like bad bloating, sore breatss,
>fatigue, hunger pangs, etc. Has anyone found any relief for these?
>
>Okay so to sum up I'm trying to just get advice about:
>*should I get another lap.?
>*what are the advantages/disadvantages of getting just the uturus out?
>*has anyone tried the pelvic floor physical therapy? how was it?
>*has anyone had problems with vomiting? were you able to resolve it?
>how?
>*has anyone found ways to releive PMS sympomts?
>
>thank you everyone for any advice you can give me or expereionces you
>can share!
>m

Next message: Erica: "Advice for nausea"
Previous message: Kristina: "Re: please help"
In reply to: m: "advice needed about surgery and pelvic floor physical therapy and other symptoms"
Next in thread: Jessica: "Re: advice needed about surgery and pelvic floor physical therapy and other symptoms"
Reply: Jessica: "Re: advice needed about surgery and pelvic floor physical therapy and other symptoms"

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