Re: I am so frustrated!!! Something is wrong!!!!!!
From: anonymous (anonymous@obgyn.net)
Wed Jul 13 18:07:03 2005
Sounds like at least part of your problem COULD be adenomyosis from your
description though it sounds like perhaps more than just that. In any
case, if you go to the search part of this forum up at the top of the
page and put in Adenomyosis and look at some of the posts from 2005
you'll get quite a bit of description from other women that sound a lot
like what you're describing.
Adenomyosis is very common which is actually the reason why doctors say,
"Yes, this does happen quite frequently" and don't seem too concerned.
In and of itself it is not life-threatening except for the fact that the
pain is excruciating, worsens with time and can certainly lead to
homicidal and suicidal thoughts and feelings... I wanted to choke my
gyn with a whole box of OB size pads all tied together! Now that would
be a headline to read!
The fact that you had a previous uterine infection and you are having
the other symptoms, cysts, stabbing pain in shoulder and chest I think
you should have a complete physical including chest x-rays. If you can,
try to get an appointment with an internist rather than a general
practitioner or family practice doctor. Nothing against GPs and FPs but
they just aren't as highly trained in recognizing the 'not-so-obvious'
as internists are.
Do yourself a big favor too, write down pretty much everything you said
here, and then go into more detail about how your life, career and
relationships have been affected by all this, and to the best of your
recollection create at least a 3 month log and continue it. Have
updated copies available to give each doctor as you see them so they
have some real documentation to refer to.
Good luck!
At Wed, 13 Jul 2005, Nancy wrote:
>
>I am sorry but I do not think it is normal for a woman to bleed for 14
>months straight!!!! Then after 2 years of my period going back to
>semi~normal, bleed AGAIN for 12 months straight!!! MY OB said this was
>ok, some women experience this. Ummmm, NOT OKAY!!!!! Since this
>happened to me after my sons' birth in 1993( I was hospitalized after
>his birth with a massive uterus infection), I have had irrigular
>bleeding, heavily, abnormal paps, awful (AND I DO MEAN PAINFUL) pain in
>my abdominal area (feels like stabbing pain). My stomache feels bloated
>always and my lower back hurts. I get stabbing pains from my shoulder
>down into my chest. I feel like I need to have a bowel movement
>constantly!!! NOW, just over the last 2 years, I have developed a cyst
>under (near) my armpit, and a cyst in my labia. I was told the cyst in
>my labia was a benign cyst and nothing to worry about. When I have my
>periods, the blood is DARK BROWN. I have been to docs because my urine
>is strong(smells bad) and a couple of times it was a bladder infection
>but other times they said no infection. For 3 years now, my docs are
>watching my cervix because of abnormal paps. They did 2 biopses and a
>colposcopy. I am being told I have precancerous cells and need a pap
>every 3 months. I have demanded further tests on my uterus and even
>demanded to be checked for Endometriosis. I keep getting put off. Over
>and over!!! The pain is killing me! I want a hysterectomy. I am now 32
>years old and have had all the children I want. Now I just want this
>pain to stop. It is making me fatigued. I even quit my job as a nurses
>aide because it hurts too much to lift up on patients. Sometimes the
>pain is so unbearable that it doubles me over, even one time for 3 days
>straight paralyzed my body to the bed. My husband had to CARRY me to
>the bathroom!!! Something is seriously wrong with me and I do not know
>what it is. The symptoms are all month long but way more severe around
>my periods. What am I supposed to do? Just deal with it until they
>finally watch the cells develop into full cancer??? What is going???? Do
>I have classic symptoms of cancer? and if so, what kind?? And if it is
>Endometriosis, why can't they find that out so I can get something to
>ease my pain??????
>
>--
>Nancy
>
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