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Re: I'm so tired of this I can't cry anymoreFrom: anonymous@obgyn.netTue Jul 12 02:30:12 2005
At Mon, 11 Jul 2005, Jamie wrote: > >First to all of you thanks for reading and replying... it does help to >know others can relate and might be able to help... I have been on a >few different pain medications- Vicodine: which I've found out the hard >way I'm allergic to.. Darvon and Darvaset.... they help a little and >I've been on Percaset.... which makes me feel good but usually because >I'm completely dead to the world. I took them regularly and usually a >while before bed so I wouldn't have to worry about pain at night... so >they haven't helped with the problem. The pain is usally a combination >of both internal and external... the external pain is usually worse and >we can't generally get past that point, but if we can the internal pain >works it self out- like I need to adjust to him being there, it takes a >while, extra lube sometimes makes it tolerable and sometimes it helps >the pain go away. My first doctor said at first that it might be a >yeast infection and to try some cream around that area... well I could >tell thats not what it is - a yeast infection is kinda obvious I think- >but I tried it anyway and it didn't work. My second doctor said that >after I started the Lupron injections and it started to help that I >would start to get better... and it didn't. I can't really afford to >go to the doctors a lot right now so I haven't been... I've tried to >just deal with it but well, I can't. I live in Hastings Mi if anybody >is in the area or could maybe help me find a better doctor in the area >that would be great. >Again thank you all so much... You've all helped just telling me you >can relate... its nice to know that I'm not alone. Hugs and kisses to >you all!! > >At Sun, 10 Jul 2005, Anna wrote: >> >>Hi Jamie, >> >>Well, I don't know if I can help, but I can tell you that I totally >>relate. When my husband and I first got together, I would have some >>pain with intercourse, but not bad, and only in the day or two before my >>cycle. I could basically ignore it. Since then, it has gotten much >>worse. I have found it hard to even want to have intercourse because I >>know it will be painful... and this creates a mental block that may be >>a separate problem in and of itself. When my husband tells me he wants >>me to really enjoy sex and feel great, I tell him I would be perfectly >>happy if it just didn't hurt. >> >>Is the pain you are having inside your abdomen, or is it irritated >>tissue upon entry? Or both? I'm asking because depending on what kind of >>pain it is, different things might help. >> >>My doctors haven't helped much, but I have a new doctor now who has been >>much more helpful and knowledgable overall. I had one GYN who just >>didn't get it. She was explaining how we could very likely get >>pregnant, and I was trying to tell her, look, if it hurts too bad to >>have sex, we're not going to get pregnant. She didn't seem to get it. >>Anyway-- >> >>What kind of pain med's have you tried? Have you tried taking them 20 >>minutes before intercourse (or however long they take to kick in -- if >>they kick in at all that is)? That is one suggestion. If the pain is in >>the vulvar area (outside the body) then lidocaine gel (by prescription) >>applied 10 min before intercourse can help a lot. Just don't overdo it >>or you won't feel much of anything (which is okay sometimes too!). >> >>I'm so sorry you're going through this too. It sounds like your husband >>is really understanding, and that is huge. >> >>Hang in there, >> >>-Anna >> >>At Sat, 9 Jul 2005, Jamie wrote: >>> >>>What I really would like is maybe some help. I was told I had endo when >>>I was 18 (I'm 23 now) and I've been on different birth control pills, >>>I've had surgery and I've tired more natural methods of dealing with the >>>pain. I'm on Depo Provera now... and I finally don't have pain EVERY >>>day. But I still have a problem... I just got married a year ago and I >>>can't have sex with my husband. I just hurts me too much... When we >>>were first together there was no problem. When the endo started to get >>>worse I started getting more problems, more severe pain (I actually >>>called into work because I couldn't get out of bed), more days of being >>>in pain, nausea, I was either constipated or had diarrhea, my back >>>hurt.. you get the idea. About a year or more of being with my now >>>husband I started having pain during intercourse... nothing to bad it >>>was just uncomfortable.... But I am at the point now that I could never >>>have sex again and be just fine with it. But I love my husband and he >>>nows its a problem for me he doesn't pressure me... but I just wish >>>there was something that I could do so I could be with him and have it >>>not hurt... it even hurts the whole next day after... I can't even try >>>and take care of things myself with out hurting... I just don't know >>>what to do... If anyone can tell me anything... I would really like to >>>try it... My doctor hasn't helped... I hope somebody can. > >-- >~ Jamie Lynn >
-- Hi jamie! I read your message and i really feel for you. i had my first major endo pain at 12 years old(i had no idea the pain wasnt just regular cramping!!) and they only got worse. i had the laser treatment along with bcp, and i felt great for about 3 months, but they returned with a vengence. i finally found a gyn who has some answars. he has me on zoladex, and although i am having some side effects i could do without (hot flashes, sleeplessness), im not having any pain. i guess zoladex is alot like lupron, so if you tried lupron and didnt like it,you may not want to try zoladex. i thought i would never have relief, and its sooooo nice not to get up and go to bed every morning with a pain that threatens your sanity. i found that if i was able to take my pain pill, then a hot bath the pain would be at least tolerable. then, at night especially, i put one of those adhesive self-heating back pain pads on my pained area, it would help to get me to sleep. i really hope you find a doc. that you like and regularly take treatments. there is NOTHING better than waking up without pain. hope to hear from you soon! felicia
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