Re: This new and frightening possibility-reply to Heather
From: Erica (anonymous@obgyn.net)
Mon Jul 11 11:19:19 2005
Hi Heather,
Thanks for asking about my surgery. It went as well as it could I
guess. My doctor found some pockets of endo that were causing
significant pain and he did a LUNA procedure. So far, so good except
for the after surgery pain. It is a different pain though. He did A
LOT of looking around so we made sure to check everything.
I think it is good that you are going to spend time with your family. It
is VERY important to have someone take care of you. I know how hard it
is to not be able to explain to people how you are feeling or what you
are going through. Hang in there and there will be someone who will
listen.
Feel free to vent anytime, you can email me if you'd like as well.
Good luck!
Erica
At Fri, 8 Jul 2005, Heather wrote:
>
>Erica,
>Thank you for answering. I hope you're surgery went well and you are
>resting comfortably.
>My husband and I gave up having children six years ago after two years
>of daily temperature taking, charting, scheduling intimate trysts, etc.
>When the doctor started putting me on fertility drugs, I was such a
>basket case with my whole life revolving around trying to get pregnant
>that I called a halt to the whole thing. We were missing life! Since
>then, we've adopted two boys from California. Looking back now with my
>current symptoms, I'm just adding the infertility to the list. I've
>decided to go to Memphis where I can have the support of my mother, and
>see a highly recommended doctor there for diagnosis. I hate the idea of
>leaving my husband and boys behind, but David (my husband) thinks it's
>time I take care of myself. People think I'm crazy when I say I hope
>this is the answer, but I am tired of being kicked around like a
>football from doctor to doctor with them all saying, "No problem here!"
>There is a problem and I want an answer. Coworkers and supervisors look
>at you kinda funny when you can't put a name to why you are missing
>work.
>
>Sorry to vent like that, but I keep breaking down in tears every time I
>try to explain the pain to yet another person who doesn't seem to
>understand.
>
>I do hope you are being helped. Let me know how it went.
>Heather
>
>At Thu, 7 Jul 2005, Erica wrote:
>>
>>HiHeather,
>>
>>i am sorry to hear that you a having such a difficult time. I too have
>>developed left-sided pain and I know how miserable it can be. Have you
>>been "officially" diagnosed with endo? If so, there is a definte
>>possibility that that is causing your pain. Also my doctor informed me
>>that it could be my colon, kidney or intestines or that the pain could
>>actually be coming from somewhere else in my body and just is being
>>reffered to the left side. I go in for surgery this afternoon and I
>>will let you know what they find. Maybe it can be of a little help to
>>you.
>>
>>Hang in there,
>>Erica
>>
>>At Wed, 6 Jul 2005, Heather wrote:
>>>
>>>I suddenly developed severe abdominal/pelvic pain about three months
>>>ago. The pain is low on my left side and sometimes radiates down my
>>>left hip. Other times it feels like someone is pushig my lower spine
>>>out through my back with a pair of combat boots. I've had x-rays,
>>>ultra-sounds, ct scans, and an upper and lower endoscopy. The result?
>>>"We're at a loss as to what's wrong. Have you tried a hot water
>>>bottle?" Finally the pain has gotten so bad that my husband called my
>>>mother in Tennessee (we live in Alaska). He thinks I should get away
>>>from the kids, the stress, let Mom take care of me, and find a doctor
>>>who can help. Mom started checking out the Endometriosis sites based on
>>>the recommendation of a friend. I think I can check off about 80% of
>>>the symptoms. So where do I go from here? Does anyone know of an endo
>>>specialist in either the Anchorage or Memphis areas? From just the small
>>>amount of research I've done today, it sounds like treatment isn't as
>>>simple as a hysterectomy, and requires on-going treatment, so would the
>>>best bet be to find a doctor close to home? I don't want to start
>>>something in Memphis that can't be followed up on in Anchorage.
>>>I also read something that quite possibly links endometriosis to
>>>migraines. Does anyone know anything about that?
>>>
>>>--
>>>Heather E.
>>>
>--
>Heather E.
>
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