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Re: Bowel Resection after endo..From: anonymous@obgyn.netFri Jul 1 02:40:45 2005
Thank you for sharing your story. I am going to have a regular exam and a rectal exam in about a week, depending on what the Dr. feels I will then probably be going in for a colonoscopy and then possible resection of the bowel. I have tried to research this a lot, and sometimes I wonder if my Dr knows what he is talking about, the only symptoms of bowel endo I have are the painful/frequent and sometimes loose stool on the 1st day of my cycle, I have no constipation or pressure/pain in my rectum but I know not everyone is different. I have read that you only need a resection done if the inner most layer of your bowel has endo and that is what would show up on a colonoscopy. I'm very scared I may have to do a resection but at the same time, researching it seems like I may not have to. All I know is that during my last exam my dr. felt something he thought could be endo on my bowel and whatever he was pressing on gave me sharp pains so I guess I'm just going to take it one step at a time, I haven't been diagnosed with endo but will be scheduling lap in the upcoming weeks. I'm glad to hear your surgeries went well and that you didn't have to have a resection done-I hope that drug your dr has you on continues to work!! Again, thanks for telling your story, I am trying to find out other ppl's experience with bowel endo and what they have went through. Take care!! At Thu, 30 Jun 2005, britt wrote: > >Hi girls, >I too, had bowel trouble due to Endometriosis. In October, I had a >ruptured chocolate cyst which burst near my appendix and I had emergency >surgery to remove the cyst and also my appendix, and to clean up as much >of the Endo as they could. A month later in November, I had another >ruptured cyst and surgery to clean it up, and to separate my ovaries >which had fused together. At this time, my surgeon noticed that I had >adhesions wrapped around my lower bowel that was strangling it. For >months beforehand, I had suffered from severe nausea, constipation, and >inability to eat. I lost a lot of weight and everyone, my family and >friends, and myself, were scared about how thin I was getting. I too, >felt like I was dying. Before they discovered the endo adhesions on my >bowels, I had different doctors tell me that I had IBS, stress, and acid >reflux, so I thank god that my surgeon discovered the true cause of what >was wrong with me. I was scheduled for a Laparotomy surgery in March, >in which they opened up my abdomen like a c-section to repair the bowel >damage. However, before I could go through with the surgery, my doctor >had me see a GI specialist for a Sigmoidoscopy just to make sure I had >nothing else wrong. That test came out fine. Also, two months before >my scheduled surgery in March my doctor put me on Femara, an aromatase >inhibitor that helps block the production of Estrogen. Femara is a >breast cancer drug that is newly being tried on Endo sufferers because >studies have shown that it can help prevent regrowth of endo and can >even help to shrink some existing endo lesions. When my doctor opened >me up in March to repair my bowels, he said he was pleased to see that >the Femara seemed to work because I had no regrowth that he could see. >Each time before I was on the medication, my endo had come back very >quickly. Anyway, thankfully he was able to peel the lesions off my >bowel and didn't have to do a resection. I spent 4 days in the hospital >in terrible pain and then 6 weeks of recovery at home. I am still doing >ok but occasionally still have nausea and constipation. I am not really >sure how things will end up further down the road, there's always the >possibility it will happen again and would require more surgery. I hate >that possibility more than anything else, and am really scared and >depressed sometimes. Anyway just wanted to let you know that I know >what you all are going through. Take care, bless you all. >-- Britt > >At Wed, 29 Jun 2005, amy wrote: >> >>My heart goes out to you both. Could you please tell me what your >>symptoms were that led to the diagnosis of the endo and your intestines? >>I have been dealing with horrible pain for years and years and was >>finally diaganosed with endo last year. However, during two laps i was >>told that a portion of my small intestine was enlarged and swollen due >>to my crohn's disease and that it had adhered to my ligaments. My >>problem is then why does it only flair up at the time my period is >>supposed to start and then last from one to two or more weeks? I also go >>through period of rectal blood loss and had to have blood transfusions >>last year because of it. I am in so much pain and I can't find anyone >>that will help me, they always refer me to someone else. I am at a >>loss. Just thought I would find out more about your condition. >>Thanks so much. >> >>At Wed, 29 Jun 2005, anonymous@obgyn.net wrote: >>> >>>At Tue, 28 Jun 2005, Shannon wrote: >>>> >>>>I know this is kinda gross, but has anyone here had a bowel resection >>>>due to endo. and then a month later had severe rectal bleeding? Any >>>>support would be great! This recovery process has been so hard. I have >>>>been really sick lately b/c of the bowel rescection surgery last month. >>>>It's miserable and I am scared b/c I am bleeding so much. I have never >>>>had this before. God bless you all!! >>>> >>>>-- >>>>Shannon >>> >>>Sorry to hear about your suffering. I had a small bowel resection in >>>june of 2003, just a month after surgery was done to remove endometrisis >>>adhesions. They missed one and it strangled my intestine, I was in the >>>hospital for three weeks, they removed 9cm of small intestine. My >>>recovery was long, and I still have a horrible scar up the middle of my >>>stomach, but not until about four months ago did my pain come back. I >>>start LUPRON next week, am a little scared of the side effects, but I >>>can't go through surgery again. The bleeding you're experiencing sounds >>>horrible, what has your doctor told you? I am sorry again, hope you feel >>>better!!!! >>>>
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