ENDO Messages for June, 2005: Re: Bowel Resection after endo..

Re: Bowel Resection after endo..

From: britt (anonymous@obgyn.net)
Thu Jun 30 20:24:14 2005

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In reply to: amy: "Re: Bowel Resection after endo.."

Hi girls, I too, had bowel trouble due to Endometriosis. In October, I had a ruptured chocolate cyst which burst near my appendix and I had emergency surgery to remove the cyst and also my appendix, and to clean up as much of the Endo as they could. A month later in November, I had another ruptured cyst and surgery to clean it up, and to separate my ovaries which had fused together. At this time, my surgeon noticed that I had adhesions wrapped around my lower bowel that was strangling it. For months beforehand, I had suffered from severe nausea, constipation, and inability to eat. I lost a lot of weight and everyone, my family and friends, and myself, were scared about how thin I was getting. I too, felt like I was dying. Before they discovered the endo adhesions on my bowels, I had different doctors tell me that I had IBS, stress, and acid reflux, so I thank god that my surgeon discovered the true cause of what was wrong with me. I was scheduled for a Laparotomy surgery in March, in which they opened up my abdomen like a c-section to repair the bowel damage. However, before I could go through with the surgery, my doctor had me see a GI specialist for a Sigmoidoscopy just to make sure I had nothing else wrong. That test came out fine. Also, two months before my scheduled surgery in March my doctor put me on Femara, an aromatase inhibitor that helps block the production of Estrogen. Femara is a breast cancer drug that is newly being tried on Endo sufferers because studies have shown that it can help prevent regrowth of endo and can even help to shrink some existing endo lesions. When my doctor opened me up in March to repair my bowels, he said he was pleased to see that the Femara seemed to work because I had no regrowth that he could see. Each time before I was on the medication, my endo had come back very quickly. Anyway, thankfully he was able to peel the lesions off my bowel and didn't have to do a resection. I spent 4 days in the hospital in terrible pain and then 6 weeks of recovery at home. I am still doing ok but occasionally still have nausea and constipation. I am not really sure how things will end up further down the road, there's always the possibility it will happen again and would require more surgery. I hate that possibility more than anything else, and am really scared and depressed sometimes. Anyway just wanted to let you know that I know what you all are going through. Take care, bless you all. -- Britt

At Wed, 29 Jun 2005, amy wrote: >
>My heart goes out to you both. Could you please tell me what your
>symptoms were that led to the diagnosis of the endo and your intestines?
>I have been dealing with horrible pain for years and years and was
>finally diaganosed with endo last year. However, during two laps i was
>told that a portion of my small intestine was enlarged and swollen due
>to my crohn's disease and that it had adhered to my ligaments. My
>problem is then why does it only flair up at the time my period is
>supposed to start and then last from one to two or more weeks? I also go
>through period of rectal blood loss and had to have blood transfusions
>last year because of it. I am in so much pain and I can't find anyone
>that will help me, they always refer me to someone else. I am at a
>loss. Just thought I would find out more about your condition.
>Thanks so much.
>
>At Wed, 29 Jun 2005, anonymous@obgyn.net wrote:
>>
>>At Tue, 28 Jun 2005, Shannon wrote:
>>>
>>>I know this is kinda gross, but has anyone here had a bowel resection
>>>due to endo. and then a month later had severe rectal bleeding? Any
>>>support would be great! This recovery process has been so hard. I have
>>>been really sick lately b/c of the bowel rescection surgery last month.
>>>It's miserable and I am scared b/c I am bleeding so much. I have never
>>>had this before. God bless you all!!
>>>
>>>--
>>>Shannon
>>
>>Sorry to hear about your suffering. I had a small bowel resection in
>>june of 2003, just a month after surgery was done to remove endometrisis
>>adhesions. They missed one and it strangled my intestine, I was in the
>>hospital for three weeks, they removed 9cm of small intestine. My
>>recovery was long, and I still have a horrible scar up the middle of my
>>stomach, but not until about four months ago did my pain come back. I
>>start LUPRON next week, am a little scared of the side effects, but I
>>can't go through surgery again. The bleeding you're experiencing sounds
>>horrible, what has your doctor told you? I am sorry again, hope you feel
>>better!!!!
>>>

Next message: Lis: "more bad news cant take much more :("
Previous message: Erica: "Re: A positive story - there's reason to hope"
In reply to: amy: "Re: Bowel Resection after endo.."

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