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Re: Lupron Problems, I think?
From: Alison (anonymous@obgyn.net)
Thu Jun 30 07:41:33 2005
Thanks so much to both of you for writing back, i feel so much better
about the whole situation. Physically i am feeling a LOT better today,
and my wierdo rash is almost gone. My gyn doc is still not convinced
that the lupron caused it, but he did say that he could be wrong about
that, he has just never seen this before. The fact that the rash is
almost gone and i am feeling so much better are making me think that
this may be a virus that i picked up and now am quickly getting over. I
would have thought that if i had a reaction to the drug it would have
already happened, but who knows. Marissa, thanks for sharing your
lupron story and how you felt-I definitely feel some changes going on
that are similart to what you experienced. And Heather, the fact that
you had vision problems too makes me feel better. How long have you
been off of the lupron? I saw my eye doctor yesterday and he said that
my eyes look ok, and the dilation is probably from lupron. he was
familiar with the drug and endo, and said that it isn't uncommon for
hormone or hormone blocking drugs to affect vision in some way. I am
supposed to call him if it gets worse or does not improve in 2 weeks.
But just like the other doc, he said that i am at a point in the
treatment where my body is going through a ton of changes all at once.
So now i guess i just wait and see how it goes from here before i decide
if i will get the next shot. Hopefully i will be ok from here on out
and can get it. My gyn told me after i went to the eye doctor and got
the ok that he was worried i was having a stroke! if he had told me that
in the morning i think i would have lost it, i was so freaked out
already by all of this stuff. It is so frustrating when you feel out of
control of what is going on with your body, and i get worried about the
fact that this lupron is just floating around in me and that if there
was a problem with it, it is not like they can get it out! I know they
can counteract the effects and stuff, but it still makes me
uncomfortable. Anyway, thank you both so much for responding to my
post, it means a lot and i really feel so much better knowing that i am
not all alone with this. Take care.
At Wed, 29 Jun 2005, Heather wrote:
>
>Hi Allison,
>
>Regarding your eye. I did lupron and my eye sight changed, it's hard to
>explain i had better then 20/20 vision before, now i can see to a
>certain point, it goes all fuzzy and blurry, but then i can see past
>that and see again and it's not blurry. i know that sounds totally
>screwed up, it's hard to explain but that is whats happened... so just
>know your not alone, and there still trying to figure out my eyes... but
>allison i still believe taking lupron was the right thing to do.
>
>lee
>
>At Wed, 29 Jun 2005, Marissa wrote:
>>
>>Hi Allison,
>>I have taken lupron twice now. The first time was 2 years ago. Just
>>like you, i felt pretty good after the shot and then started feeling
>>fatigued and not able to eat and actually had some mild bleeding for 3
>>weeks. My doctor advised me that it was just the Lurpon and my body had
>>to get used to it...and I did. I have heard many bad stories about it
>>and complications. I was good for the most part and so far it has been
>>the ONLY thing that I have done to relieve the pain. As for your eye,
>>see a doctor just to be precautious. The rash can also be linked to the
>>Lupron. It just might not be the right drug for you. There are quite a
>>few other options out there, but make sure you read up on them very
>>carefully. Some can be worse than the endo itself =). I hope this
>>hlped in some way! Take care
>>
>>--
>>Marissa
>>
>>At Wed, 29 Jun 2005, Alison wrote:
>>>
>>>Hi everyone,
>>>I am hoping someone out there can tell me if you have had similar
>>>problems as i think i am having from lupron. I got my first shot two
>>>weeks ago, and for the first 2 weeks i felt good. Some headaches,
>>>nothing i couldn't deal with. As of monday night i started feeling
>>>naseaus, very tired and very run down. Later that night i developed a
>>>rash on a good portion of my body and noticed that my left pupil is
>>>larger than my right. I saw my primary care doctor and she said that
>>>she thinks it is all from the lupron. Talked to my gyno today and he is
>>>not so sure it is lupron. He says that he has been admisitering lupron
>>>for 20 years and has never seen a reaction like this before. I believe
>>>him, he is a great doctor, but i am just wondering if anyone has had a
>>>reaction like this? I also feel kind of spacy and out of it, can't
>>>concentrate on anything. I am going to see the eye doctor today and i
>>>have a feeling they will make me get an mri of my brain next. My gyno
>>>is mostly concerned with ruling other things out in case something else
>>>is going on, but also figuring out if there is a link to lupron before i
>>>get the next injection. If we can't find anything, i will probably not
>>>get the second one anyway because i don't want to take the chance that
>>>this is related the the drug. Just when i thought the medical mysteries
>>>were over after i got my endo diagnosis, here i 6 weeks later and again
>>>they can't figure this out. Any responses would be greatly appreciated.
>>>thanks.
>>
>>--
>>Marissa
>>
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