ENDO Messages for June, 2005: Re: CA-125 test and symptoms

Re: CA-125 test and symptoms

From: Beth (anonymous@obgyn.net)
Mon Jun 27 10:06:11 2005

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In reply to: Vicki: "Re: CA-125 test and symptoms"
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I just truly believe in the CA125. I know of many women who, if they could have had it done earlier, they would have caught the cancer earlier. It is like men having the PSA done.

I hope you can get a diagnosis- I am trying doctor #5 this afternoon. I am reaching the breaking point on pain. I cannot eat any longer. I can barely sleep. The pain either keeps me from sleeping or wakes me up and then I cannot sleep any longer. I am nauseous all the time. I recently started with the bloating and I just cannot tolerate this anymore.

I can't say I know exactly what you are going through, because I don't think anyone knows what we each go through exactly, but I can relate to the pain and the bloating and the frustration. Just hang in there and keep fighting the doctors. That is all we can do until we get the help that we know we need and deserve. Keep fighting them on the ascites- ruptured ovarian cysts do not cause ascites that severe. The fluid is reabsorbed by the body- it does not linger and cause bloating. Ascites is not normal.

At Sat, 25 Jun 2005, Vicki wrote: >
>This is very scary. I know CA-125 marker test is not that reliable but
>at least it's SOMETHING.
>
>I have yet to be diagnosed with anything even though I have been
>suffering for 8 years now. Acording to the statistics it takes approx.
>8 years to get diagnosed so I have my fingers crossed. I am also at the
>point of not being able to wear any of my clothes. The bloat, cramping
>and nausea is there every day now. I've had colonoscopies that turned
>up nothing, a sonargram that turned up what they "assume" were burst
>ovarian cysts (along with ascites). All that was 4 years ago. No
>doctors were interested in follow-up even though my testosterone is
>through the roof. (And still is - the doctors just shrug.) I'm now
>trying to penetrate the barrier again and see if I can get a lap.
>Wish me luck!
>
>At Fri, 24 Jun 2005, Beth wrote:
>>
>>Has anyone had the CA125 test done? I only ask because my mom looked 9
>>months pregnant by the time they diagnosed her with ovarian cancer and
>>fluid in the cul-de-sac or a distended stomach can come from ascites
>>(fluid in the abdomen) which is a key sign of advanced ovarian cancer. I
>>am not saying this to freak anyone out, but it is important to get any
>>bloated or fluid checked on. The CA125 is the only test that can check
>>for ovarian cancer in the early stages. It can also help check for
>>endo, but if you have an elevated count, then you need to be checked for
>>ovarian cancer.

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Previous message: deep: "question regarding IVF procedure"
In reply to: Vicki: "Re: CA-125 test and symptoms"
Next in thread: Valerie: "Re: bloated stomach and pain--VERY FRUSTRATED!!"

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