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Re: New girl on the block-looking for some help.From: anonymous (anonymous@obgyn.net)Fri Jun 24 14:07:05 2005
Your statement: >My stomach is so hard and distended that I look pregnant and people keep >giving me that look like, "Is she pregnant or is she just fat?". I'm >only 5'3 and about 120lbs. Is suggestive of Fibroids and/or adenomyosis.
Your statement:
>I became a mother Further suggests adenomyosis.
Your statement:
>my uterus was the size of a 2-3 month pregnancy Even further suggests adenomyosis. Fibroids can be easily diagnosed via ultrasound and in most cases removed without too much trouble. Fibroids can interfere with your fertility and healthy pregnancy so should be treated soon. Adenomyosis can only be diagnosed with 100% accuracy through hysterectomy which is also a 100% cure. It can be made a strong suspicion through MRI if severe enough to show up. Adenomyosis does not usually affect or interfere with fertility but will worsen with each pregnancy. It is caused by trauma to the uterus such as pregnancy and childbirth. It causes severe cramping and heavy periods that advance over time to continuous bleeding and continous cramping that affect the quality of life so severely as to cause debilitation. At some point you will need to have a hysterectomy done so that you can be an active mother and take care of your children and actually enjoy life and an active sex life with your husband. Only you can decide when you've had enough and you'll need to prepare for this. Regardless of what the diagnosis or suspected cause is, you will need to do the following: Log your symptoms daily! Include detailed information about spotting, bleeding, pain, etc. Plot the location of your pain, how long it lasts, what works for it what doesn't, what level of relief do you get, what brings it on. How much spotting or bleeding? How many pads/tampons you use. Keep a Quality of Life diary. Write detailed reports about how your day was, what you needed or wanted to get done that day, what you did accomplish, what you couldn't and why, how has the pain affected you today? How has this affected your family today? How different is this from last week? last month? last year? Be prepared to give a copy of the log and the diary to your doctor at each visit. Your insurance company will do everything within their power to prevent you from having expensive procedures and tests done and your documentation will probably be the only piece of information that will sway their decision in your favor. So, if fibroids are ruled out or found and treated and you have the endo removed and there are no other causes found and your symptoms all remain the same then you can be pretty sure it is adenomyosis and at that point you will need to make some decisions - do you 'tough it out' until menopause? do you 'tough it out' until you have had how ever many children you and your husband want? - have you 'toughed it out' long enough'? If you're wondering what adenomyosis is then use the search feature on this forum and you'll find lots of postings about it, what it is, etc. You can of course "google" it too. Be VERY wary of doctors and clinics who claim they can cure adenomyosis through 'natural' methods because it cannot be done. It is a physiological response to trauma and no amount of herbal pills, elixers or creams will stop or reverse the process. Likewise, some treatments such as accupuncture, chiropractic or massage therapy can help give you temporary relief from the symptoms but will not cure it.
At Fri, 24 Jun 2005, Shelly wrote:
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