ENDO Messages for June, 2005: Re: highly frustated.... my vent

Re: highly frustated.... my vent

From: AmyRD (anonymous@obgyn.net)
Wed Jun 22 22:19:19 2005

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Eileen: "Re: Help."
Previous message: Laura: "Enormous Clots - Please read and reply"
In reply to: Jennifer: "highly frustated.... my vent"
Next in thread: holly: "Re: highly frustated.... my vent"
Reply: holly: "Re: highly frustated.... my vent"

At Wed, 22 Jun 2005, Jennifer wrote: First of all, I want to say I am sorry that you are having a rough time. I have been there so I understand. Next, I really hate to hear drs say "get pregant and you will feel better". This is NOT the case. I have a 3 month old, who yes was conceived doing in vitro after trying for 5 yrs. Well when I was pregnant with him I STILL had endo pain. It was a little better but not gone as drs like to tell us. I could feel adhesions ripe as my uterus grew and I have endo on my bowels which gave me horrible bouts of diarrhea off and on the whole time...including the day I delivered.

Next, I hate that drs are such morons on endo and pain. They always make it seem like we are pills pushers. Yeah, i enjoy feeling all dooped up and unable to function due to the fog. (NOT!) I have an OB/gyne that misdiagnosed me for years. I am only started seeing them again when I got pregnant. They are perfectly competent for pregnancy but not endo. And right before my c-section I warned the OB doing the procedure how horrible my endo is....he said it will not be a problem cause it grows under the uterus and will be out of the way. Well guess what....I was right. During the procedure he commented on how he was having a hard time "finishing up " after my son was born. He also commented on how he saw a spot on my uterus where is looked like something had riped off. WEll gee, do you think mayber endo adhesions??? I made sure I pointed out that he should have listened to me. Everything turned out ok but I hate it when drs don't listen. He was not the dr who did my last 2 laps so I tried to educate him but he would not hear it.

So unfortunately, drs will call themselves endo specialists but unless you know someone who has seen them and they were somewhat competent, I do not trust it!

Hang in there....hopefully you can find a REAL dr soon. Amy >
>Saw a "specialist" this afternoon -- left work early, medical records in
>hand, waited an hour plus ......"specialist" he was not. Amazing, yes I
>have endo --note the pathology report. (muliple reports w/adhesions to
>boot) No I am not a drug addict --- much easier and cheaper to go to the
>street I would presume --simply trying to manage a miserable condition
>that escalates & extends. Stretched pain pills from november to june do
>not believe this is the issue. His Recommendations: 1) get preg (not
>likely would require invitro per our discussion), 2) total hyst, 3)
>surgery, 4) lupron, 5) depro provera, 6) CBC (I choose 6 for the interim
>despite migraine & negative reaction to most attempted... he could not
>believe I have passed out and had veritigo from several of the BCPs
>tried. Now why if BCP worked well would I resist? Is there any rational
>component? I was fine w/BCP until I hit late 20's... Do they think we
>have nothing better to do?
>THe pinching pain, the burning, the tearing, the fiery spasms, and
>incapcitating where you wish you would die but know you won't... my
>bloody noses at period must be due to ibuprophen -- only happens with
>the period. Missed work with the last cycle and wanted to die from the
>pain since no pain meds --considered ER but couldnt move to drive. But
>he doesn't believe in even Flexeril... Just remarkably frustrated with
>options...I want a female doctor who has had endo --- are there any? Or
>did we all have our careers & lives interupted due to endo...tempted to
>inquire if his degree is from the cereal box.. clearly won't go back.
>
>and of course, managing some degree of composure on a daily basis at
>work - as others notice the increasing pain -- no I do not have
>insurance, pre-existing condition. Just finished paying off the last
>set of med bills from the last lap --now would I not have preferred a
>vacation, an investment...
>
>want to scream. why can't they get it?
>
>--
>Jennifer
>

Next message: Eileen: "Re: Help."
Previous message: Laura: "Enormous Clots - Please read and reply"
In reply to: Jennifer: "highly frustated.... my vent"
Next in thread: holly: "Re: highly frustated.... my vent"
Reply: holly: "Re: highly frustated.... my vent"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: