ENDO Messages for June, 2005: Re: cul de sac endometriosis

Re: cul de sac endometriosis

From: Heidi (anonymous@obgyn.net)
Tue Jun 21 23:43:07 2005

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: anonymous@obgyn.net: "stop bleeding 3 mth..doc THINKS its endo!!!!!!~help please!!!!!!~~~"
Previous message: Yona: "Re: can't take it anymore"
In reply to: Carrie: "cul de sac endometriosis"
Next in thread: Softball: "Re: cul de sac endometriosis"

At Tue, 21 Jun 2005, Carrie wrote: >
>I have had chronic pain for about 7 months. I initially went to the
>doctor to be treated for a vaginal infection, thinking that was causing
>the pain. After 4 months of antibiotics and no improvement he scheduled
>a laparoscopy. During the lap, he discovered an inflamed appendix and
>called a surgeon to perform an emergency appendectomy. In his
>enthusiasm over that (and his belief--which I think is erroneous--that
>we were looking for infection) he did not remove small amounts of endo
>and fibriods because they "didn't amount to much". He was certain the
>appendectomy would have me feeling normal.
>
>Within a week, I was back to being in pain. I'm sure the pain never
>left but I was healing from the appendix incisions and temporarily
>forgot about the other pain!
>
>The pain is down low and there is a heaviness when I walk or sit. At
>certain times, I walk like a little old lady because it hurts to move.
>Sex is painful.
>
>The OB ordered two ultrasounds and one CT scan and they all found
>pockets of fluid in the pouch that is located between the vagina and
>rectum--the cul de sac. He insisted this fluid was from infection and
>not indicative of endo. I have since found articles on cul de sac endo
>and I have every single symptom.
>
>He recently wanted to start Lupron, but I declined after reading up on
>personal testimonials from people. I will live with this pain for a
>while longer while I decide what to do.
>
>One thing that is at the top of my list is to find a doctor who
>primarily deals with endo patients. I live in St. Louis, Missouri. Can
>anyone help me with that?
>
>If there is any other advice, I am all ears. This is a new experience
>for me and I am a bit lost. Also, I had a baby in Oct and the symptoms
>flared up in December and have never left.
>
>Thank you all,
>Carrie

Carrie,

Hi, I'm Heidi. Most of my endo was found in the cul-de-sac as well. I had the same symptoms: the heaviness and pressure low in the pelvis, frequent periods, frequent shooting pains in the pelvis, but most of all, painful intercourse. I didn't start having these symptoms until I had my son in 2000. I was on the Depo shot for 9 months, and it took another 11 months till I got my period back. When it came back it was with a vengeance. I'd always had horribly painful periods, but this was different. I first went to my family practice doc, and he basically said I was imagining the frequent periods and pain. Finally I was referred to a fertility specialist; I cannot have anymore children but fertility specialists are many times experts in endo because it is a major cause of infertility. Maybe you could find a doc who would refer you to a fertility specialist; I know my insurance wouldn't pay without a referral. Good luck to you and I hope you get some relief...don't give up until you do. It took me thirteen years to get answers. Good luck and write anytime!

--
Heidi

Next message: anonymous@obgyn.net: "stop bleeding 3 mth..doc THINKS its endo!!!!!!~help please!!!!!!~~~"
Previous message: Yona: "Re: can't take it anymore"
In reply to: Carrie: "cul de sac endometriosis"
Next in thread: Softball: "Re: cul de sac endometriosis"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: