ENDO Messages for June, 2005: Re: cul de sac endometriosis

Re: cul de sac endometriosis

From: Sara' (anonymous@obgyn.net)
Tue Jun 21 14:54:55 2005

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Jana: "Good gynecologist"
Previous message: Tina: "Interstitial Cystitis"
In reply to: Carrie: "cul de sac endometriosis"
Next in thread: Heidi: "Re: cul de sac endometriosis"

At Tue, 21 Jun 2005, Carrie wrote: >
>I have had chronic pain for about 7 months. I initially went to the
>doctor to be treated for a vaginal infection, thinking that was causing
>the pain. After 4 months of antibiotics and no improvement he scheduled
>a laparoscopy. During the lap, he discovered an inflamed appendix and
>called a surgeon to perform an emergency appendectomy. In his
>enthusiasm over that (and his belief--which I think is erroneous--that
>we were looking for infection) he did not remove small amounts of endo
>and fibriods because they "didn't amount to much". He was certain the
>appendectomy would have me feeling normal.
>
>Within a week, I was back to being in pain. I'm sure the pain never
>left but I was healing from the appendix incisions and temporarily
>forgot about the other pain!
>
>The pain is down low and there is a heaviness when I walk or sit. At
>certain times, I walk like a little old lady because it hurts to move.
>Sex is painful.
>
>The OB ordered two ultrasounds and one CT scan and they all found
>pockets of fluid in the pouch that is located between the vagina and
>rectum--the cul de sac. He insisted this fluid was from infection and
>not indicative of endo. I have since found articles on cul de sac endo
>and I have every single symptom.
>
>He recently wanted to start Lupron, but I declined after reading up on
>personal testimonials from people. I will live with this pain for a
>while longer while I decide what to do.
>
>One thing that is at the top of my list is to find a doctor who
>primarily deals with endo patients. I live in St. Louis, Missouri. Can
>anyone help me with that?
>
>If there is any other advice, I am all ears. This is a new experience
>for me and I am a bit lost. Also, I had a baby in Oct and the symptoms
>flared up in December and have never left.
>
>Thank you all,
>Carrie

Hi Carrie, I am so sorry to hear what you are going through. Your situation sounds very similar to what I have experienced in the past.(The fluid in the cul de sac, the inflamed appendix, the endo & adhesions left behind because it was felt to be due to the appendix.)My endo. also worsened after the birth of my daughter. I have been dealing with endo. for a long time now and am having a total abdominal hysterectomy with removal of both ovaries on 7/7/05.(But I am not necessarily suggesting this is the right route for you to go.)Have you tried continuous birth control pills, or Depo Provera? I'm not trying to promote using Lupron & know a lot of people have had problems with it & it's not right for everyone, but I did it twice for a year straight without any problems, & it helped me greatly with my pain. Enough about that though. I am in Philadelphia so I can't help with finding a specific Doc. in your area, but try looking into some of the large teaching hospitals,or see if there are any Reproductive Endocrinologists close to you. You need to get an opinion from someone other than your current Doc., and you need to have the endo. & fibroids found at the time of your surgery addressed. Any amount of endo. is significant & can cause pain.If your Doctor can't/won't see that then it's time to find another. I hope this helps some. Sara'

--
Sara'Fleming

Next message: Jana: "Good gynecologist"
Previous message: Tina: "Interstitial Cystitis"
In reply to: Carrie: "cul de sac endometriosis"
Next in thread: Heidi: "Re: cul de sac endometriosis"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: