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Re: Venting and looking for advice
From: anonymous (anonymous@obgyn.net)
Tue Jun 14 12:44:33 2005
Nikki, HI I went to my gyn. this morning. He told me to get into the
surgeon today, I see him at 2:45--they wanted me to wait until Thursday
and I said no way I have missed three days now of work and I can't take
the pain any more. I also wish no one could relate to this pain!!!! I
am hoping he will take out the lymph node which my gyn is sure is
infiltrated with endo. He also wants him to look around that area to
see is there is endo, and if it's there it can be taken care of. Now he
also wanted me to start Lupron today or soon, since I have been not
wanting to do the hysterectomy, what they don't get is that I don't want
either for the same reason--I don't want to loose the overy function.
Osteoporosis runs in my family and we are not big people to begin with
which is a higher risk. I take Vit D and calcium (prescribed) I have
been getting hot flashes and night sweats for years since I was 37 now
45, so that is not the issue, I guess I want what everyone wants "the
magic wand that can erase endo forever" I told him I wanted this lymph
node out then I can better etermione if there is any other pain from
endo and the I'll make my decision after that. I took my husband w/me
so that I would not back down from what I wanted and wimp out. I really
love my new Dr. and he will do anything I need. He also said that it
is pretty uncommon for the endo to get there but he has seen it every
now and then. Maybe this will be it for me and it will be the last of
the endo and I can get my life back. My experience with a female DR.
was not much better, I don't blame it on her gender but just
ignorance--She felt I just had too much stress and wanted to give me an
anti-depressant, I was too old to have endo. I have to agree a DR. that
has had endo herself would be great to go to, as long as we didn't go on
her bad pain days LOL. Keep all of us in the loop about how the baby is
doing, maybe you could ask your Dr. if there is a specialist you could
consult that could aleviate your worst fears. My daughter had to be on
some pretty strong meds for something else all through her pregnancy and
our grandson is just fine, actually better than just fine he's
perfect!!! (16 months old) Just Grandma talk LOL. When I am down I just
think about him and it brings a smile or giggle to me, so my
prescription to you is to think happy thoughts of this baby growing
inside of you and how blessed you are to have this happen and just
imagine loving up that baby and all the positive things that come with
it. DOn't beat yourself up with bad thoughts because it's not good for
you or the baby. Remember she/he is a miracle based on what the Dr.s
told you!!!! B.....
At Tue, 14 Jun 2005, Nikki wrote:
>
>B, I wish you could not relate to my weekend, I wish that nobody could
>ever relate. This is such a horrible thing for woman to have to go
>through. You know I think all of our best bets would be to find a
>female doctor who has endo and can understand what we are going through.
>But my experience has also been that the females docs have treated me
>with less respect than any male doc. The first one i ever saw i told
>her my symptoms, which the chief complaint was the difficulty i was
>having being intimate with my husband - it was all of a sudden after we
>had been married for 6 months. She told me we needed to go to marraige
>counseling and needed to learn to be nice and love me in bed. She made
>me really feel like this was all in my head and i was making up the
>pain!
>
>But anyway I am also worried about the baby. I am 15 weeks and from the
>beginning of my pregannacy before i even knew i had conceived I have
>been on narcotics for one thing or another. That just made me sound
>like a drug addict but i have had a rough last couple of months since
>the lap in Mar. But my doc keeps telling me that as long as the baby
>doesn't receive to much exposure to but what is to much? I have been on
>them all of mar, half of april and may and now a week so far in jun. I
>just don't want my baby to come out dependent on narcotics.
>
>So tell me have you been back to your regular doc to tell them about
>this weekend? Are they going to take out the lymph node, and when? I
>wish you luck with that and hope you have many more pain free days than
>pain filled days.
>- Nikki
>
>At Mon, 13 Jun 2005, anonymous wrote:
>>
>>Nikki, I can relate, I spent 7 1/2 hrs in the ER on Saturday for pain,
>>only to have the Er Dr. assume I was just there for pain meds. NO, I
>>want answers!!! However, he did look at all of the tests I have had done
>>recently and came up with what I have been saying to them all along that
>>I have a very enlarged lymph node in my groin and it has to come out
>>quickly, it most likely has endo on it and this is creating the pain. My
>>white blood count was normal so I guess they are not concerned with
>>lymphoma or anything else. I wish we could transfer our pain level to
>>the DRs. when we see them so they could really understand what we are
>>going through.
>>
>>I am worried that they have you on such strong drugs while you are in
>>the early stages of pregnancy. I guess the Dr.s know what they are
>>doing. I hope you start to feel better, maybe once you get out of the
>>first trimester you will feel better. Good luck! B.
>>
>>At Sun, 12 Jun 2005, Nikki wrote:
>>>
>>>Well ladies it has a horrible weekend for me. I went to the doc on
>>>friday because i had been inconstant pain and was worried about the baby
>>>being okay or not. Well the baby is fine mommy (me) is not. I had a
>>>cyst on my ovary and apparently it burst causing me all the pain. My
>>>doctor was luckily there and admitted me to the hospital they put me on
>>>morphine, which didn't help. Then they put me on demerol which made me
>>>throw up more than i wanted to. I got released this morning by another
>>>OB/GYN but he let me go he did another ultra sound to make sure
>>>evrything was getting better. Then that doctor had the nerve to tell me
>>>that nothing at all was wrong and he believed the other was completely
>>>wrong! He said my pain was just pregnancy pain and it would go away in a
>>>couple of days. I wanted to scream at him and tell him it has been like
>>>this for 2 years now and it would not just go away because he said so,
>>>if that was the case then i should have seen him when all of this first
>>>started. I hate seeing different doctors than my own because they don't
>>>believe, but when you are in the military you are unfortunately stuck
>>>with what you get. Anyway i just wanted to vent out my weekend. So far
>>>I am not feeling much better, but I am on oxycodone/percocet so i am
>>>high all the time and not really able to take care of my 2 year old. My
>>>husband has helped out alot but there is only so much he can do for me
>>>in the next couple of days because he has to work. That is how it
>>>always seems to be, his work thinks they need him more than I need him.
>>>Does anybody have any advice how to help me through this without going
>>>insane and wanting to kill an incapable doctor? Thanks again hope you
>>>all are doing better.
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