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Re: Anyone w/ endo or scar tissue on sciatic nerve?From: Anna (anonymous@obgyn.net)Thu Jun 9 19:47:26 2005
At Thu, 9 Jun 2005, Vanessa wrote: > >Hi Jessica, > >I have a similar issue as you and also have issues with my bowel and >bladder. My last lap was spent trying the clean up the enormous amount >of adhesions inside of me. I have seen specialist after specialist >about these various issues I've been having and when I ask them if they >think it could be endo or adhesions pulling on these sections of my >body, I get the same response you do... It's possible but VERY rare. We >all know it's not rare from reading this forum. I've seen many posts >where people are told the same as you and me but then they are lucky >enough to see someone who REALLY specializes in Endo and they find out >they were right all along. What can we expect though? Most Gynes aren't >even up to date on their endo knowledge so how can we expect specialists >in other fields to take it seriously if Gynes don't? > >I know this doesn't directly answer your question but I thought it would >be comforting for you to know that you are not the only one who >experiences dr's dismissing the seriousness of endo and who are grossly >misinformed. Aside from doing another lap to see where your (and my) >adhesions are , I'm not sure if there's any way to find out for sure. I >haven't had much luck with gynes and have yet to find one who I trust in >their knowledge of endo. Most gynes I see offer me drugs, surgery and a >hysto and dismiss all my other symptoms. > >I wish I had the answer!!!!!!!!!!!!!!!! > >-- >Vanessa > >At Thu, 9 Jun 2005, Jesica wrote: >> >>I've had lower back pain since my first lap in 2001. I've spent the >>last 4 years trying chiropractic care, physical therapy, massages, pain >>medications, and injections, none of which helped. I have thought from >>the beginning that it had something to do with the endo. They say >>something is pinching my sciatic nerve, but no one has been able to >>figure out what. I've had xrays and mri's and they have come up with >>nothing that is causing me to be in pain every day. I am currently >>taking 5 200mg Ibuprofen 4x daily to deal with the pain. I haven't >>slept through the night in over a year. All of the doctors I've seen >>have told me there's no way endo or scar tissue could be pinching the >>nerve. I had one doctor tell me I had a better chance of getting hit by >>a bus than having endo or scar tissue pinching the nerve. I don't want >>to continue to take all of these pills, I just want one day of comfort. >>Has anyone out there had this problem? >> >>-- >>Jesica >> I saw my gyn today and he speciallizes quite a bit in endo. It hasn't been very long since my lapr. (~3mos) so I thought I was having so much back and leg pain b/c of that. He said it is probably my bowels. He said that he rarely sees a women with endo without some degree of problems with bowels. He said that the bowel problems rarely resolve even after the endo is cleaned up because the bowels are much different from a nervous system standpoint. They have more of a memory. He said that when the pain is starting more in the back or butt it's probably more related to the bowels- especially on the left but sometimes on the right side too. I'm still thinking about it--- I trust him--- he said about 95% of women-- even those with a hysterectomy. I've never thought I have bowel problems but I guess I have been getting more sick with meals and just going to the bathroom a lot more. He said that it can make the muscles spasm so much that the pelvis hurts too and the sciatica can get pinched. Hmmmm..... Anna
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