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Re: disappointed in doctors
From: anonymous (anonymous@obgyn.net)
Fri Jun 3 13:02:25 2005
I agree that the original post is very offensive!
<><
At Fri, 3 Jun 2005, anonymous@obgyn.net wrote:
>
>Actually, I did read the whole message. And then I re-read it. And
>then I re-read it again. My reaction was not "knee-jerk," believe me,
>you don't want to know what my initial reaction was. My point still
>stands, you get no where blaming "fundamentalist christians" because the
>doctors haven't figured out endo. But, more than that, your message
>served no purpose except to blame those that you disagree with
>politically and religiously for endo not getting enough attention.
>Evidently from your post, you don't have a real understanding of what
>Christianity truly is, and that makes me sad. But, I am not here to
>discuss that. I only wanted this thread deleted due to its offensive
>and useless nature.
>
>At Fri, 3 Jun 2005, anonymous wrote:
>>
>>Okay, now that you've had your knee-jerk reaction to what you think I
>>said, try re-reading it again. And listen and read the real news - not
>>network news and certainly not CNN because they are all very slanted to
>>whoever is the 'winning team' at the moment.
>>
>>Fundamentalist christians do get in the way of most medical research
>>because they feel every advance is an affront against their
>>interpretation of the bible and Jesus. It is not right to allow one
>>group of people's religious beliefs to interfere with medical research
>>that would benefit all of us. It is not right to allow one group of
>>people's religious beliefs to influence the government, we are supposed
>>to be guaranteed a 'Separation of Church and State' remember? There
>>hasn't been any separation at all since the beginning - George
>>Washington was a Mason. Yet, prayer in school was disallowed by the
>>same people... where is the logic in that?
>>
>>I'm not bashing fundamentalist christians as a whole, I'm bashing their
>>interference in things they have no business interfering in! Sadly, if
>>anything is going to change in the way endometriosis and other 'female
>>diseases, disorders and conditions' are being treated, researched and
>>insured against then it must involve political movements and when the
>>politics are governed by religion... well, good luck!
>>
>>At Fri, 3 Jun 2005, anonymous@obgyn.net wrote:
>>>
>>>This is probably the most offensive message I have ever read. I am
>>>sorry you are in pain, but blaming the "fundamentalist christinas"
>>>because you aren't getting help is a pretty lousy way of dealing with
>>>it. I don't think political or religious bashing is what this site is
>>>for.
>>>
>>>At Thu, 2 Jun 2005, anonymous wrote:
>>>>
>>>>Don't be surprised if a march is greeted with an attitude of "Well, how
>>>>bad off can they be if they can all be milling and marching around
>>>>here?"
>>>>
>>>>I honestly am not sure how such a demonstration would have much affect
>>>>upon a bunch of stuffy politicians who mostly share the belief "it's
>>>>supposed to hurt, you're a woman and that's God's punishment for Eve's
>>>>mischievous behavior" because by and large, the US Goverment is being
>>>>run by fundamentalist christians who do indeed share the point-of-view
>>>>that women are 'lesser citizens' and are meant to bear the burden of
>>>>human frailty and fallibility. The motto being 'Woman bends to man, Man
>>>>bends to God'.
>>>>
>>>>I honestly don't know if there is a way to accomplish anything in the
>>>>way of legislation to promote health care and insurance coverage for any
>>>>disease or condition that A)affects only women and B)has no aesthetic
>>>>effects that would make it a 'blight on the landscape of all that is
>>>>defined as a beautiful woman'. Unfortunately, we live in a time where
>>>>all females are sexualized beginning at very early ages (G-Strings are
>>>>being made AND SOLD!!! in sizes to fit 8 year old girls!!!!!) and more
>>>>and more the message is "Big tits, smooth ass and flat stomach desireability and success". Breast cancer gets the attention and
>>>>funding for research that it does because who wants a world of
>>>>breastless women? Ovarian, Uterine, Cervical and Lung cancer kill more
>>>>women than breast cancer does but you can't see the effects of those
>>>>cancers so they must not be as important. (Sarcasm intended).
>>>>Endometriosis just isn't going to get a lot of attention or sympathy in
>>>>Washington DC unless Dubya himself somehow develops it.
>>>>
>>>>Good luck to anyone who participates in any activity to help bring
>>>>public awareness to any cause.
>>>>
>>>>At Thu, 2 Jun 2005, Jessica wrote:
>>>>>
>>>>>Honestly Bev I don't think that a march woiuld be a bad idea. We need
>>>>>to get more info out there and let people and dr.s know that endo comes
>>>>>in all ages and the pain varies no matter how little or how severe your
>>>>>case is. I have already started writing a book about Endo. I feel I
>>>>>need to get my story out there and the story of others. I think there
>>>>>should be more research done and more attentnion paid to this life
>>>>>altering disease. I'm giong to be looking for other peoples stories.
>>>>>The foundation of this book will be primarily how Endo in young women is
>>>>>not taking seriously, and how the pain in young people is not takin
>>>>>seriously. But a big portion will be on how you should follow your
>>>>>incstincts and not let a Dr. tell you there is nothing wrong. To keep
>>>>>fighting to find out what is really wrong even when you feel you have no
>>>>>more energy to do so. When I get more into the book I will be posting
>>>>>on here looking for other peoples cases. What they have and how they
>>>>>and their dr.s have delt with it. I hope I will get a lot of responses
>>>>>from all ages. Endo is a complex disase and every women is different. I
>>>>>think People need to know that.
>>>>> Jessica
>>>>>
>>>>>At Wed, 1 Jun 2005, Bev wrote:
>>>>>>
>>>>>>Jessica, I am so sorry that you are having such a rough time. I really
>>>>>>believe you and so do the others on this sight. Other women have tried
>>>>>>the natural progesterone cream and have found relief in it
>>>>>>I went almost 5 years with Drs. telling me there was nothing wrong and
>>>>>>I am 45. I also live with pain daily and it gets worse with my cycle.
>>>>>>Endo was found this March and it was "everywhere"!!!!
>>>>>>I can't imagine anyone faking all of this and putting herself through
>>>>>>all of this just to get drugs and I can't believe the medical profession
>>>>>>just doesn't get it. Do we need to do an ENDO march on Washington DC to
>>>>>>get the atention of the medical system and the research departments of
>>>>>>the major universities? We are in pain and we are tired of it and want
>>>>>>to be taken seriously! Good luck and pain free days.
>>>>>>
>>>>>>At Tue, 31 May 2005, Jessica wrote:
>>>>>>>
>>>>>>>I'am 19 and was diagnosed last year after having severe cramping even
>>>>>>>when I wasnt on my period. It got so bad that I would visit the E.R.
>>>>>>>once or twice a month. I have always had a problem with my right lower
>>>>>>>quadren and thought it might be my appendix. I called my physicain this
>>>>>>>afternoon, and even know I have all the symptoms of appendicitis she
>>>>>>>told me to go see my gyno. He knows about my history with the right
>>>>>>>side and how it is in constant pain. I went to a dr. last year for
>>>>>>>this reason and since my white blood count was so off she rushed me in
>>>>>>>to get a ct. Afetr calling and making an appt with my current obgyn
>>>>>>>today he called me back and told me there was nothing he could do for
>>>>>>>me.(he wouldnt even draw blood to see where my white cell count was) He
>>>>>>>said I was only looking for pain relief and that my pelvic pain was
>>>>>>>being exaggerated. He said that due to the fact he was not the dr. that
>>>>>>>preformed my Laproscopy back in july of 2004 he was not sure and did not
>>>>>>>think I have Endo. He has seen my records and pictures and still doesnt
>>>>>>>beleive me. The only reason I switched gynos is becaue my insurance
>>>>>>>changed. My first visit with him in NOV 2004 he told me that he was
>>>>>>>prescribiing a 25 yr old woman percocet every two weeks for her pain,
>>>>>>>and proceeded to tell me that when she got pregnant it stopped. He told
>>>>>>>me my best hope was to become pregnant. I'am 19 what dr. tells you
>>>>>>>that your not in pain, and if you really are you should have a baby to
>>>>>>>get rid of it. He also said the three surgeries, two lupron shots, and
>>>>>>>2 steriod epidurals was all a ploy to get pain medication. I'am so sick
>>>>>>>of people judging my by my age. I didnt ask for this, I didnt ask to be
>>>>>>>in pain. Who goes through all those procedures to get pain medication.
>>>>>>>I'am sincerely worried about my health and the only thing he is worried
>>>>>>>about is his reputaion, and his licencse. I can not find a goood dr.
>>>>>>>They all see a young looking girl who they think is faking her pain. I
>>>>>>>might not be 45 but I feel like it. I've had to grow up quick, and I
>>>>>>>deal with pain everyday. Okay I'll stop now I jsut had to get that out
>>>>>>>of my system. I feel like a dr. is suppose to care about his or her
>>>>>>>patients and I havent found one yet. All i really want is my life back.
>>>>>>>To be normal. To be able to get up in the morning withouth crying. I
>>>>>>>really think that people who have a disease and are in pain need to take
>>>>>>>it upon themselves to get help. I don't beleive there are many dr.s out
>>>>>>>there that you can rely on to beleive you and help treat you. Im so
>>>>>>>disgusted by my DR. and most Dr.s
>>>>>>>
>>>>>>>At Tue, 31 May 2005, Eileen wrote:
>>>>>>>>
>>>>>>>>Its Eileen again. Thank you all for your support and sharing your
>>>>>>>>stories with me. The thing is it seems like I need to find another
>>>>>>>>doctor ...a better one who can do another lap. It turns out they had
>>>>>>>>checked for endo when they took out my appendix but maybe didnt look
>>>>>>>>every where. I have had so many tests done with in this past months its
>>>>>>>>been crazy. They only thing they told me was I keep getting ovarian
>>>>>>>>cysts. Im still on the birth control and they wont do anything until a
>>>>>>>>couple months hoping to see the difference with it. Before my surgery I
>>>>>>>>had an MRI done. I thought the doctors would have looked over it before
>>>>>>>>the surgery and my doctors all should have gotten a copy of the results.
>>>>>>>>Well it seems like they got all my ultra sound results of the ovarian
>>>>>>>>cysts, but no one got the results of my MRI! It was done in March and my
>>>>>>>>doctor just now called the hospital up for the results. It turns out I
>>>>>>>>have cysts on my filopian tubes that no one looked at. It explains why
>>>>>>>>my hips has been given me alot of trouble but what is causing all
>>>>>>>>this....why do I keep getting all these cysts? It seems like no one can
>>>>>>>>figure it out! Im getting sick of pain!
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