Re: disappointed in doctors
From: anonymous (anonymous@obgyn.net)
Fri Jun 3 12:15:07 2005
Okay, now that you've had your knee-jerk reaction to what you think I
said, try re-reading it again. And listen and read the real news - not
network news and certainly not CNN because they are all very slanted to
whoever is the 'winning team' at the moment.
Fundamentalist christians do get in the way of most medical research
because they feel every advance is an affront against their
interpretation of the bible and Jesus. It is not right to allow one
group of people's religious beliefs to interfere with medical research
that would benefit all of us. It is not right to allow one group of
people's religious beliefs to influence the government, we are supposed
to be guaranteed a 'Separation of Church and State' remember? There
hasn't been any separation at all since the beginning - George
Washington was a Mason. Yet, prayer in school was disallowed by the
same people... where is the logic in that?
I'm not bashing fundamentalist christians as a whole, I'm bashing their
interference in things they have no business interfering in! Sadly, if
anything is going to change in the way endometriosis and other 'female
diseases, disorders and conditions' are being treated, researched and
insured against then it must involve political movements and when the
politics are governed by religion... well, good luck!
At Fri, 3 Jun 2005, anonymous@obgyn.net wrote:
>
>This is probably the most offensive message I have ever read. I am
>sorry you are in pain, but blaming the "fundamentalist christinas"
>because you aren't getting help is a pretty lousy way of dealing with
>it. I don't think political or religious bashing is what this site is
>for.
>
>At Thu, 2 Jun 2005, anonymous wrote:
>>
>>Don't be surprised if a march is greeted with an attitude of "Well, how
>>bad off can they be if they can all be milling and marching around
>>here?"
>>
>>I honestly am not sure how such a demonstration would have much affect
>>upon a bunch of stuffy politicians who mostly share the belief "it's
>>supposed to hurt, you're a woman and that's God's punishment for Eve's
>>mischievous behavior" because by and large, the US Goverment is being
>>run by fundamentalist christians who do indeed share the point-of-view
>>that women are 'lesser citizens' and are meant to bear the burden of
>>human frailty and fallibility. The motto being 'Woman bends to man, Man
>>bends to God'.
>>
>>I honestly don't know if there is a way to accomplish anything in the
>>way of legislation to promote health care and insurance coverage for any
>>disease or condition that A)affects only women and B)has no aesthetic
>>effects that would make it a 'blight on the landscape of all that is
>>defined as a beautiful woman'. Unfortunately, we live in a time where
>>all females are sexualized beginning at very early ages (G-Strings are
>>being made AND SOLD!!! in sizes to fit 8 year old girls!!!!!) and more
>>and more the message is "Big tits, smooth ass and flat stomach desireability and success". Breast cancer gets the attention and
>>funding for research that it does because who wants a world of
>>breastless women? Ovarian, Uterine, Cervical and Lung cancer kill more
>>women than breast cancer does but you can't see the effects of those
>>cancers so they must not be as important. (Sarcasm intended).
>>Endometriosis just isn't going to get a lot of attention or sympathy in
>>Washington DC unless Dubya himself somehow develops it.
>>
>>Good luck to anyone who participates in any activity to help bring
>>public awareness to any cause.
>>
>>At Thu, 2 Jun 2005, Jessica wrote:
>>>
>>>Honestly Bev I don't think that a march woiuld be a bad idea. We need
>>>to get more info out there and let people and dr.s know that endo comes
>>>in all ages and the pain varies no matter how little or how severe your
>>>case is. I have already started writing a book about Endo. I feel I
>>>need to get my story out there and the story of others. I think there
>>>should be more research done and more attentnion paid to this life
>>>altering disease. I'm giong to be looking for other peoples stories.
>>>The foundation of this book will be primarily how Endo in young women is
>>>not taking seriously, and how the pain in young people is not takin
>>>seriously. But a big portion will be on how you should follow your
>>>incstincts and not let a Dr. tell you there is nothing wrong. To keep
>>>fighting to find out what is really wrong even when you feel you have no
>>>more energy to do so. When I get more into the book I will be posting
>>>on here looking for other peoples cases. What they have and how they
>>>and their dr.s have delt with it. I hope I will get a lot of responses
>>>from all ages. Endo is a complex disase and every women is different. I
>>>think People need to know that.
>>> Jessica
>>>
>>>At Wed, 1 Jun 2005, Bev wrote:
>>>>
>>>>Jessica, I am so sorry that you are having such a rough time. I really
>>>>believe you and so do the others on this sight. Other women have tried
>>>>the natural progesterone cream and have found relief in it
>>>>I went almost 5 years with Drs. telling me there was nothing wrong and
>>>>I am 45. I also live with pain daily and it gets worse with my cycle.
>>>>Endo was found this March and it was "everywhere"!!!!
>>>>I can't imagine anyone faking all of this and putting herself through
>>>>all of this just to get drugs and I can't believe the medical profession
>>>>just doesn't get it. Do we need to do an ENDO march on Washington DC to
>>>>get the atention of the medical system and the research departments of
>>>>the major universities? We are in pain and we are tired of it and want
>>>>to be taken seriously! Good luck and pain free days.
>>>>
>>>>At Tue, 31 May 2005, Jessica wrote:
>>>>>
>>>>>I'am 19 and was diagnosed last year after having severe cramping even
>>>>>when I wasnt on my period. It got so bad that I would visit the E.R.
>>>>>once or twice a month. I have always had a problem with my right lower
>>>>>quadren and thought it might be my appendix. I called my physicain this
>>>>>afternoon, and even know I have all the symptoms of appendicitis she
>>>>>told me to go see my gyno. He knows about my history with the right
>>>>>side and how it is in constant pain. I went to a dr. last year for
>>>>>this reason and since my white blood count was so off she rushed me in
>>>>>to get a ct. Afetr calling and making an appt with my current obgyn
>>>>>today he called me back and told me there was nothing he could do for
>>>>>me.(he wouldnt even draw blood to see where my white cell count was) He
>>>>>said I was only looking for pain relief and that my pelvic pain was
>>>>>being exaggerated. He said that due to the fact he was not the dr. that
>>>>>preformed my Laproscopy back in july of 2004 he was not sure and did not
>>>>>think I have Endo. He has seen my records and pictures and still doesnt
>>>>>beleive me. The only reason I switched gynos is becaue my insurance
>>>>>changed. My first visit with him in NOV 2004 he told me that he was
>>>>>prescribiing a 25 yr old woman percocet every two weeks for her pain,
>>>>>and proceeded to tell me that when she got pregnant it stopped. He told
>>>>>me my best hope was to become pregnant. I'am 19 what dr. tells you
>>>>>that your not in pain, and if you really are you should have a baby to
>>>>>get rid of it. He also said the three surgeries, two lupron shots, and
>>>>>2 steriod epidurals was all a ploy to get pain medication. I'am so sick
>>>>>of people judging my by my age. I didnt ask for this, I didnt ask to be
>>>>>in pain. Who goes through all those procedures to get pain medication.
>>>>>I'am sincerely worried about my health and the only thing he is worried
>>>>>about is his reputaion, and his licencse. I can not find a goood dr.
>>>>>They all see a young looking girl who they think is faking her pain. I
>>>>>might not be 45 but I feel like it. I've had to grow up quick, and I
>>>>>deal with pain everyday. Okay I'll stop now I jsut had to get that out
>>>>>of my system. I feel like a dr. is suppose to care about his or her
>>>>>patients and I havent found one yet. All i really want is my life back.
>>>>>To be normal. To be able to get up in the morning withouth crying. I
>>>>>really think that people who have a disease and are in pain need to take
>>>>>it upon themselves to get help. I don't beleive there are many dr.s out
>>>>>there that you can rely on to beleive you and help treat you. Im so
>>>>>disgusted by my DR. and most Dr.s
>>>>>
>>>>>At Tue, 31 May 2005, Eileen wrote:
>>>>>>
>>>>>>Its Eileen again. Thank you all for your support and sharing your
>>>>>>stories with me. The thing is it seems like I need to find another
>>>>>>doctor ...a better one who can do another lap. It turns out they had
>>>>>>checked for endo when they took out my appendix but maybe didnt look
>>>>>>every where. I have had so many tests done with in this past months its
>>>>>>been crazy. They only thing they told me was I keep getting ovarian
>>>>>>cysts. Im still on the birth control and they wont do anything until a
>>>>>>couple months hoping to see the difference with it. Before my surgery I
>>>>>>had an MRI done. I thought the doctors would have looked over it before
>>>>>>the surgery and my doctors all should have gotten a copy of the results.
>>>>>>Well it seems like they got all my ultra sound results of the ovarian
>>>>>>cysts, but no one got the results of my MRI! It was done in March and my
>>>>>>doctor just now called the hospital up for the results. It turns out I
>>>>>>have cysts on my filopian tubes that no one looked at. It explains why
>>>>>>my hips has been given me alot of trouble but what is causing all
>>>>>>this....why do I keep getting all these cysts? It seems like no one can
>>>>>>figure it out! Im getting sick of pain!
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