ENDO Messages for June, 2005: Re: disappointed in doctors

Re: disappointed in doctors

From: anonymous (anonymous@obgyn.net)
Wed Jun 1 00:30:44 2005

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Reply: Jessica: "Re: disappointed in doctors"

The first thing you need to do is sit down and type out a very detailed chronolgical report of your history with this doctor then print out a few copies of it and submit it as a complaint with the insurance company, the hospital where he has privileges and your local or state medical board.

You should also keep a copy for yourself for future reference. Then get a new doctor. Go to http://www.aagl.com and use the Find a Physician feature to cross-reference experienced surgeons with the list of doctors in your insurance plan. You should probably seek a referral to a Reproductive Endocrinologist as they seem to be the most familiar and well-versed in diagnosing and treating endometriosis.

Doctors such as the one you have should not be allowed to treat stuffed animals let alone people.

Meanwhile, you may need to make some adjustments to your daily diet to help control some of the added pain that becomes created by the way certain foods are digested. You need to eliminate white flour/white sugar products from your diet. Eat whole grain breads and pastas, brown rice instead of white. Increase your fibre intake and water. Dairy products often cause bloating and gas which increases the pressure on your bowels which will further inflame your abdomen and increase your pain. Limit your salt intake and try to make sure that most of what you eat comes from the outside edges of the grocery store where the fresh meats and produce are. Frozen foods are second best and canned or boxed foods should be few or none in your diet. This will by no means cure you but it will help relieve the extra pain that comes from an inflammed and irritated abdomen and some of the mid-cycle cramping.

In addition, make sure you get plenty of rest and regular exercise, even if it's just taking a walk each day. Work within your physical limitations, if you're in pain then just walk around the house for a few minutes each hour or so, the point is to keep your blood oxygenated and to release the natural hormones that help your body cope with pain.

If you are overweight then try really hard to lose some, the excess pressure and strain on your back and abdominal muscles will increase your pain. Stress (from pain and illness as well as school and work pressures) cause an increase in cortisol which triggers your body into a storage state which causes weight gain - daily activity will help relieve that stress and burn off the cortisol to help keep you from gaining weight.

You can usually (if you are not allergic to them) alternate ibuprofen and tylenol one dose of one then two hours later one dose of the other, and repeat to help control pain. Save the prescription medications for your worst days since they are pretty tough on your stomach, liver, kidneys, etc. Make sure you check with the pharmacist to make sure you can use tylenol and/or ibuprofen with the prescription meds. Narcotic drugs should be the last choice as they have more side effects than non-narcotic so it is good that the doctor is being conservative but the comments you quote from him are completely out of line, unprofessional and unacceptable and you do have the right to say so. You deserve to be treated respect no matter what your age is.

Finally, you need to keep a daily log of your pain, discharge, meds you take and whatever else you do. This will help establish the cycle for your new doctor and may speed along approval of any future surgeries or treatments your doctor suggests. Include how much pain (scale of 1 to 10 and 10 is the worst) where the pain is located, what relieves it, what doesn't, etc.

I hope this helps you.

At Tue, 31 May 2005, Jessica wrote: >
>I'am 19 and was diagnosed last year after having severe cramping even
>when I wasnt on my period. It got so bad that I would visit the E.R.
>once or twice a month. I have always had a problem with my right lower
>quadren and thought it might be my appendix. I called my physicain this
>afternoon, and even know I have all the symptoms of appendicitis she
>told me to go see my gyno. He knows about my history with the right
>side and how it is in constant pain. I went to a dr. last year for
>this reason and since my white blood count was so off she rushed me in
>to get a ct. Afetr calling and making an appt with my current obgyn
>today he called me back and told me there was nothing he could do for
>me.(he wouldnt even draw blood to see where my white cell count was) He
>said I was only looking for pain relief and that my pelvic pain was
>being exaggerated. He said that due to the fact he was not the dr. that
>preformed my Laproscopy back in july of 2004 he was not sure and did not
>think I have Endo. He has seen my records and pictures and still doesnt
>beleive me. The only reason I switched gynos is becaue my insurance
>changed. My first visit with him in NOV 2004 he told me that he was
>prescribiing a 25 yr old woman percocet every two weeks for her pain,
>and proceeded to tell me that when she got pregnant it stopped. He told
>me my best hope was to become pregnant. I'am 19 what dr. tells you
>that your not in pain, and if you really are you should have a baby to
>get rid of it. He also said the three surgeries, two lupron shots, and
>2 steriod epidurals was all a ploy to get pain medication. I'am so sick
>of people judging my by my age. I didnt ask for this, I didnt ask to be
>in pain. Who goes through all those procedures to get pain medication.
>I'am sincerely worried about my health and the only thing he is worried
>about is his reputaion, and his licencse. I can not find a goood dr.
>They all see a young looking girl who they think is faking her pain. I
>might not be 45 but I feel like it. I've had to grow up quick, and I
>deal with pain everyday. Okay I'll stop now I jsut had to get that out
>of my system. I feel like a dr. is suppose to care about his or her
>patients and I havent found one yet. All i really want is my life back.
>To be normal. To be able to get up in the morning withouth crying. I
>really think that people who have a disease and are in pain need to take
>it upon themselves to get help. I don't beleive there are many dr.s out
>there that you can rely on to beleive you and help treat you. Im so
>disgusted by my DR. and most Dr.s
>
>At Tue, 31 May 2005, Eileen wrote:
>>
>>Its Eileen again. Thank you all for your support and sharing your
>>stories with me. The thing is it seems like I need to find another
>>doctor ...a better one who can do another lap. It turns out they had
>>checked for endo when they took out my appendix but maybe didnt look
>>every where. I have had so many tests done with in this past months its
>>been crazy. They only thing they told me was I keep getting ovarian
>>cysts. Im still on the birth control and they wont do anything until a
>>couple months hoping to see the difference with it. Before my surgery I
>>had an MRI done. I thought the doctors would have looked over it before
>>the surgery and my doctors all should have gotten a copy of the results.
>>Well it seems like they got all my ultra sound results of the ovarian
>>cysts, but no one got the results of my MRI! It was done in March and my
>>doctor just now called the hospital up for the results. It turns out I
>>have cysts on my filopian tubes that no one looked at. It explains why
>>my hips has been given me alot of trouble but what is causing all
>>this....why do I keep getting all these cysts? It seems like no one can
>>figure it out! Im getting sick of pain!

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