ENDO Messages for May, 2005: Re: pregnancy and endo

Re: pregnancy and endo

From: anonymous@obgyn.net
Tue May 31 11:45:32 2005

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In reply to: mel: "pregnancy and endo"
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Reply: Hope: "Re: pregnancy and endo"

At Mon, 30 May 2005, mel wrote: >
>hi i have been having unprotected sex for 3 years now with my b/f anf we
>always just thought we were lucky to have not gotten pregnant because we
>are still fairl young, but then i was diagnosed with endo last year and
>have already had 2 surgeries for ovarian cyst, my doctors says its not
>likely that i will ever be able to conceive. Im very scared because i
>have always dreamed of having children of my own and want to be able to
>more then anything. Can anyone tell me if it really will be impossibel
>for me to have children or is there anything else i can do, my doctor
>suggested that a hysterctomy was my best option, as far as realiving the
>pain. Just wondering if anyone had any experiences were they were told
>they could never have children but did. Something to give me some hope.

Hi there. I was finally diagnosed with stage 4 endo via a laproscopic surgery after years of pelvic pain and heavy/irregular periods. I have had 3 surgeries since and I am currently on Lupron with add back therapy to keep my pain under control. I have also started going to a physical therapist who specializes in pelvic pain as well as a urogynocologist. The OB/GYN who initially diagnosed me said the same thing to me...that I would not be able to have children. That was the last time I went to him. I researched on the internet until I found the specialist I have been going to for the last 5 years. No doctor can tell whether or not you will have a problem until you are seriously trying to conceive. There are currently so many options available when it comes to infertility treatments that it is disgraceful that a MD would make such a blanket statement of negativity to you. I will advise you to use birth control, unless you are ready to have a child. I say this from experience...I got pregnant immediately following a 3 month course of treatment with Lupron...it was not a planned pregnancy. And this was after the dr. who initially diagnosed me w/endo said I would not be able to conceive. The specialist I am currently going to told me that sometimes women have a higher success rate at conception if they have a laproscopic surgery to remove as much endo as possible immediately before trying to get pregnant. There are many avenues to go down in terms of pain management...a hysterectomy will not necessarily solve the problem, especially if your endo is in other areas (e.g. bladder, bowel, ligaments, etc.) My best advice to you would be to talk to people through the endometriosis association who live in your area to find out about doctors who specialize in endometriosis. A lot of OB/GYNs are not aware of the most current treatments/options for women with endometriosis and it is in your best interest to find someone who is. Best of luck to you.

--
Heather

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In reply to: mel: "pregnancy and endo"
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