ENDO Messages for May, 2005: Re: Endo, My Daughter and I...a promising new treatment

Re: Endo, My Daughter and I...a promising new treatment

From: Lea (anonymous@obgyn.net)
Tue May 31 01:53:54 2005

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There have been some concerns raised about this posting and I have checked into the information being provided in the postings by Sheila Eddy.

Firstly, this drug, Letrozole is being used 'off-label' in a very small, non-randomized study of only 10 patients. This means that the information gained from this 'study' will not be recognized by the pharmaceutical industry, FDA or other medical professionals as having any real meaning, however, if the results and follow-ups of Dr. Bulun's research is impressive enough to show some promise then some actual clinical trials MAY be forthcoming.

Keep in mind that off-label use of medications is becoming more and more common and is often the reason why some drugs are being pulled out of circulation. Just because the side-effect of a drug has a desireable affect on another condition doesn't mean it's safe to use for that purpose. Letrozole is a breast cancer drug, it's a very strong drug and to use it for the routine treatment of endometriosis is a rather dangerous course of action and can expose the physician and the pharmaceutical company to legal proceedings should the drug prove to have other effects not currently obvious.

Always, always, always, read everything you can find and educate yourself enough to have a fully comprehensive consultation with your own doctors to come to the best course of action for your own personal circumstance. The Internet can be a wealth of information but you really need to be a little bit cynical about what you read.

Bottom line, keep an eye on the clinical trials website http://www.clinicaltrials.gov/ for more information about new treatment trials in your area.

At Mon, 30 May 2005, anonymous@obgyn.net wrote: >
>has anyone else heard anything on this Letrozole...is it safe and does
>it really work?
>
>At Mon, 30 May 2005, anonymous wrote:
>>
>>Sounds almost too good to be true!
>>What does this mean for all of us that are trying to get preg? Since it
>>interferes with estrogen, does it stop your mentsral cycle and
>>ovulation?
>>
>>At Mon, 30 May 2005, Sheila wrote:
>>>
>>>Hi
>>>
>>>I am posting so that I may share our story of endo and give others an
>>>opportunity to review our web site http://www.KARE2004.com. This site is for
>>>information on letrozole and how it has helped my daughter to become
>>>endo free and now live a normal teen life. We also have a new support
>>>group that you may join from the service page, if you would like. We
>>>have posted Dr. Bulun's study along with Kari's medical surgery photos
>>>of before and after. I am available for any questions through our
>>>contact page. I am not selling a thing. I only want to help with info
>>>on a fairly new treatment that may be successful for you as well.
>>>Letrozole is FDA approved for breast cancer and is curing breast cancer,
>>>it has been on the market for about 5 years. Please write with any
>>>concerns, I hope this has been helpful, take care, God bless, Sheila

--
Lea Harth, Managing Editor/Project Manager
http://www.obgyn.net
http://www.endometriosiszone.org
http://www.firstvisitivf.org
http://www.firstvisit.org
http://www.gonadotropin.org
http://www.ivstunneller.com
http://www.agingmale2004.com
http://www.gonadotropin.org
http://www.oblink.com

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