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Re: Please HELP---desperate!!!

From: anonymous (anonymous@obgyn.net)
Mon May 30 18:44:57 2005


At Sun, 29 May 2005, anonymous wrote: >
>At Sun, 29 May 2005, gbp wrote:
>>
>>Judie,
>>I am diagnosed w/ adno, not endo.
>>I am having bowl problems too. I think ( HOpe) it is stress related. i
>>will see a GI DR. on Thurs.
>>and probley have a colonsphy (sp?) I am trying not to panic. It sounds
>>like your freaking a bit like I have been doing also. Most the time
>>it's IBS. I guess endo can cause bowl problems also.. So try to stay
>>calm, believe me I'm taking my own advice. (I have had the same thought
>>s about my children growing up w/o me!)
>>IBS is when the brain and the nerves aren't jiving correctly. I have
>>Diahreah, constipation, gas, bloating--it's very uncomfortable at times.
>>Feel free to e-mail me.
>>Best to you--
>>Gwyn
>>
>>At Sun, 29 May 2005, D.N. wrote:
>>>
>>>Hi Judie,
>>>
>>>I am sorry you are having such a difficult time. Many of those who have
>>>had endo have also been misdiagnosed at one time or another. I was
>>>misdiagnosed with irritable bowel syndrome; however endo can cause bowel
>>>problem too.
>>>
>>>My concern is that you have lost 10 pounds in two weeks. Aren't your
>>>doctors concerned about this? Are your symptoms at all cyclical? Do you
>>>keep a calender with your symptoms written down? If you don't, starting
>>>one would be a really good idea. That way you can show patterns.
>>>
>>>Granted right now, you have a more urgent issue because you can't go on
>>>like you are. Have you had a transvaginal ultrasound? Those are better
>>>at showing cysts on the ovaries. It won't show endo. Have you had a
>>>laparscopy? (Sounds like this is really what you need to see if you have
>>>endo)I hope you can get in to see a new doc that can help you.
>>>
>>>In the meantime, since you are having trouble eating, you need to
>>>maximize your nutritional intake. I would suggest if you are able to
>>>drink them is try something like Boost or BoostPlus or Ensure or Ensure
>>>Plus. Sip them and if you can't drink the whole thing at once, put it
>>>back in the frig. If you can tolerate milk, there is also Carnation
>>>Instant breakfast. You can add dry milk to the liquid mix to it to add
>>>calories and protein. Are you getting enough water to drink?
>>>
>>>Are you vomiting or having diarrhea or loose stools with some formed? It
>>>could be you have a bowel obstruction. Did they do a lower GI study on
>>>you? That would probably tell if you had an obstruction.
>>>
>>>I hope this info helps. Let me know if you have any question.
>>>
>>>Best wishes,
>>>D.N.
>>>
>>>At Sat, 28 May 2005, Judie wrote:
>>>>
>>>>Hi all,
>>>>
>>>>Has anyone had these symptoms of endo? I'm wondering if maybe I have a
>>>>bowel adhesion. My doctor thinks I'm crazy when I ask him if endo can
>>>>be causing these problems. I spent 5 days in the hospital & had bunches
>>>>of tests which were all negative. I have all the endo symptoms during
>>>>my menstrual cycle but this month at the end of my menstrual cycle, I
>>>>got severe pain in my back with a throbbing pain near my right ovary. A
>>>>few days later it felt like everything was numb from my bladder to my
>>>>rectum area. I'm having serious BOWEL problems--everything seems to be
>>>>moving slow through my bowels. I am extremely nauseaed. They put me on
>>>>Reglan. I can't EAT --whenever I eat I get nauseaed & a weak feeling &
>>>>it feels like I'm having a migrane headache (my migrane's are a numbness
>>>>in the back of my head).
>>>>
>>>>I have been eating minimal (soup, pudding, yogurt--soft diet) & have
>>>>lost 10 pounds in about 2 weeks. I've sent all my info to Dr. Redwine
>>>>but I'm really worried that I need to have something done now (How will
>>>>I find someone in Omaha, NE that even knows about this)!! I feel like
>>>>I'm going to DIE--I want to see my daughter grow up. Please help with
>>>>any advice. Thank you so much!!
>>>>
>>>>--
>>>>Judie
>>>>

Judie I have endo which was on both the large and small intestine. It was severe and the surgeon removed 3 foot of the small bowel. My symptoms where all bowel related and I to had trouble eating and lots of PAIN. Do you have pain? Where is it located? What tests have you had so far. Did they give you a diagnosis when you where in the hospital. How are you doing now. My suggestions are as follows. Stay on a clear liquid diet until you can get some help. It will be easier to digest and cause less problems. Can you get to a large teaching hospital? they have a better change of sorting out difficult cases. I had both a exp. lap and small bowel follow-through to pinpoint my endo. Colonoscopy and CT where not helpful.It take a couple of weeks for your diet to affect your labs in a negitive way so blood test may not show and problems. You can live on clears for sometime. I still have many problems and I am thinking of going to Dr. Redwine myself. But Please be seen locally to get some relief. Hope this helps. cheryl




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