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Re: Please HELP---desperate!!!From: anonymous (anonymous@obgyn.net)Mon May 30 18:44:57 2005
At Sun, 29 May 2005, anonymous wrote: > >At Sun, 29 May 2005, gbp wrote: >> >>Judie, >>I am diagnosed w/ adno, not endo. >>I am having bowl problems too. I think ( HOpe) it is stress related. i >>will see a GI DR. on Thurs. >>and probley have a colonsphy (sp?) I am trying not to panic. It sounds >>like your freaking a bit like I have been doing also. Most the time >>it's IBS. I guess endo can cause bowl problems also.. So try to stay >>calm, believe me I'm taking my own advice. (I have had the same thought >>s about my children growing up w/o me!) >>IBS is when the brain and the nerves aren't jiving correctly. I have >>Diahreah, constipation, gas, bloating--it's very uncomfortable at times. >>Feel free to e-mail me. >>Best to you-- >>Gwyn >> >>At Sun, 29 May 2005, D.N. wrote: >>> >>>Hi Judie, >>> >>>I am sorry you are having such a difficult time. Many of those who have >>>had endo have also been misdiagnosed at one time or another. I was >>>misdiagnosed with irritable bowel syndrome; however endo can cause bowel >>>problem too. >>> >>>My concern is that you have lost 10 pounds in two weeks. Aren't your >>>doctors concerned about this? Are your symptoms at all cyclical? Do you >>>keep a calender with your symptoms written down? If you don't, starting >>>one would be a really good idea. That way you can show patterns. >>> >>>Granted right now, you have a more urgent issue because you can't go on >>>like you are. Have you had a transvaginal ultrasound? Those are better >>>at showing cysts on the ovaries. It won't show endo. Have you had a >>>laparscopy? (Sounds like this is really what you need to see if you have >>>endo)I hope you can get in to see a new doc that can help you. >>> >>>In the meantime, since you are having trouble eating, you need to >>>maximize your nutritional intake. I would suggest if you are able to >>>drink them is try something like Boost or BoostPlus or Ensure or Ensure >>>Plus. Sip them and if you can't drink the whole thing at once, put it >>>back in the frig. If you can tolerate milk, there is also Carnation >>>Instant breakfast. You can add dry milk to the liquid mix to it to add >>>calories and protein. Are you getting enough water to drink? >>> >>>Are you vomiting or having diarrhea or loose stools with some formed? It >>>could be you have a bowel obstruction. Did they do a lower GI study on >>>you? That would probably tell if you had an obstruction. >>> >>>I hope this info helps. Let me know if you have any question. >>> >>>Best wishes, >>>D.N. >>> >>>At Sat, 28 May 2005, Judie wrote: >>>> >>>>Hi all, >>>> >>>>Has anyone had these symptoms of endo? I'm wondering if maybe I have a >>>>bowel adhesion. My doctor thinks I'm crazy when I ask him if endo can >>>>be causing these problems. I spent 5 days in the hospital & had bunches >>>>of tests which were all negative. I have all the endo symptoms during >>>>my menstrual cycle but this month at the end of my menstrual cycle, I >>>>got severe pain in my back with a throbbing pain near my right ovary. A >>>>few days later it felt like everything was numb from my bladder to my >>>>rectum area. I'm having serious BOWEL problems--everything seems to be >>>>moving slow through my bowels. I am extremely nauseaed. They put me on >>>>Reglan. I can't EAT --whenever I eat I get nauseaed & a weak feeling & >>>>it feels like I'm having a migrane headache (my migrane's are a numbness >>>>in the back of my head). >>>> >>>>I have been eating minimal (soup, pudding, yogurt--soft diet) & have >>>>lost 10 pounds in about 2 weeks. I've sent all my info to Dr. Redwine >>>>but I'm really worried that I need to have something done now (How will >>>>I find someone in Omaha, NE that even knows about this)!! I feel like >>>>I'm going to DIE--I want to see my daughter grow up. Please help with >>>>any advice. Thank you so much!! >>>> >>>>-- >>>>Judie >>>> Judie I have endo which was on both the large and small intestine. It was severe and the surgeon removed 3 foot of the small bowel. My symptoms where all bowel related and I to had trouble eating and lots of PAIN. Do you have pain? Where is it located? What tests have you had so far. Did they give you a diagnosis when you where in the hospital. How are you doing now. My suggestions are as follows. Stay on a clear liquid diet until you can get some help. It will be easier to digest and cause less problems. Can you get to a large teaching hospital? they have a better change of sorting out difficult cases. I had both a exp. lap and small bowel follow-through to pinpoint my endo. Colonoscopy and CT where not helpful.It take a couple of weeks for your diet to affect your labs in a negitive way so blood test may not show and problems. You can live on clears for sometime. I still have many problems and I am thinking of going to Dr. Redwine myself. But Please be seen locally to get some relief. Hope this helps. cheryl
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