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Re: Please HELP---desperate!!!
From: gbp (anonymous@obgyn.net)
Sun May 29 14:27:38 2005
Judie,
I am diagnosed w/ adno, not endo.
I am having bowl problems too. I think ( HOpe) it is stress related. i
will see a GI DR. on Thurs.
and probley have a colonsphy (sp?) I am trying not to panic. It sounds
like your freaking a bit like I have been doing also. Most the time
it's IBS. I guess endo can cause bowl problems also.. So try to stay
calm, believe me I'm taking my own advice. (I have had the same thought
s about my children growing up w/o me!)
IBS is when the brain and the nerves aren't jiving correctly. I have
Diahreah, constipation, gas, bloating--it's very uncomfortable at times.
Feel free to e-mail me.
Best to you--
Gwyn
At Sun, 29 May 2005, D.N. wrote:
>
>Hi Judie,
>
>I am sorry you are having such a difficult time. Many of those who have
>had endo have also been misdiagnosed at one time or another. I was
>misdiagnosed with irritable bowel syndrome; however endo can cause bowel
>problem too.
>
>My concern is that you have lost 10 pounds in two weeks. Aren't your
>doctors concerned about this? Are your symptoms at all cyclical? Do you
>keep a calender with your symptoms written down? If you don't, starting
>one would be a really good idea. That way you can show patterns.
>
>Granted right now, you have a more urgent issue because you can't go on
>like you are. Have you had a transvaginal ultrasound? Those are better
>at showing cysts on the ovaries. It won't show endo. Have you had a
>laparscopy? (Sounds like this is really what you need to see if you have
>endo)I hope you can get in to see a new doc that can help you.
>
>In the meantime, since you are having trouble eating, you need to
>maximize your nutritional intake. I would suggest if you are able to
>drink them is try something like Boost or BoostPlus or Ensure or Ensure
>Plus. Sip them and if you can't drink the whole thing at once, put it
>back in the frig. If you can tolerate milk, there is also Carnation
>Instant breakfast. You can add dry milk to the liquid mix to it to add
>calories and protein. Are you getting enough water to drink?
>
>Are you vomiting or having diarrhea or loose stools with some formed? It
>could be you have a bowel obstruction. Did they do a lower GI study on
>you? That would probably tell if you had an obstruction.
>
>I hope this info helps. Let me know if you have any question.
>
>Best wishes,
>D.N.
>
>At Sat, 28 May 2005, Judie wrote:
>>
>>Hi all,
>>
>>Has anyone had these symptoms of endo? I'm wondering if maybe I have a
>>bowel adhesion. My doctor thinks I'm crazy when I ask him if endo can
>>be causing these problems. I spent 5 days in the hospital & had bunches
>>of tests which were all negative. I have all the endo symptoms during
>>my menstrual cycle but this month at the end of my menstrual cycle, I
>>got severe pain in my back with a throbbing pain near my right ovary. A
>>few days later it felt like everything was numb from my bladder to my
>>rectum area. I'm having serious BOWEL problems--everything seems to be
>>moving slow through my bowels. I am extremely nauseaed. They put me on
>>Reglan. I can't EAT --whenever I eat I get nauseaed & a weak feeling &
>>it feels like I'm having a migrane headache (my migrane's are a numbness
>>in the back of my head).
>>
>>I have been eating minimal (soup, pudding, yogurt--soft diet) & have
>>lost 10 pounds in about 2 weeks. I've sent all my info to Dr. Redwine
>>but I'm really worried that I need to have something done now (How will
>>I find someone in Omaha, NE that even knows about this)!! I feel like
>>I'm going to DIE--I want to see my daughter grow up. Please help with
>>any advice. Thank you so much!!
>>
>>--
>>Judie
>>
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