ENDO Messages for May, 2005: Re: current endo and pain, had LUNA procedure 2 months ago.............HELP........

Re: current endo and pain, had LUNA procedure 2 months ago.............HELP........

From: michelle (anonymous@obgyn.net)
Sat May 28 22:00:10 2005

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At Fri, 22 Jun 2001, Melanie wrote: >
>Hi Karen,
>
>I can't believe that the Lupron didn't work for you. I've been on it
>twice and worked both times for me. Everyone is different though. I'm
>not sure how old you are or if you have had all the children you plan to
>have, but I would ask your doctor about a partial hysterectomy or maybe
>if he could do a lap and burn some of your lesions. The second lap my
>doctor did he burned some of the lesions and it made a huge improvement
>in my pain. Sorry, I don't have more info for you. Best Wishes!
>Melanie
>
>At Fri, 22 Jun 2001, anonymous@obgyn.net wrote:
>>
>>Hello all,
>>
>>I recently had a LUNA procedure done 2 months ago (laparoscopic
>>uterosacral nerve ablation) due to endo on the ligament and the ligament
>>was significantly shshorter than the other ligament.
>>
>>At first I felt better other than surgical pain. Now all pain has
>>returned. Leg and groin pain, lower left abdominal pain, lower left
>>back pain. I see my OB/GYN again in July for a follow up after surgery.
>>He mentioned going back on Lupron. I don't think I want to do that
>>again. Did it last year for 6 months. It did not work and the endo was
>>found in different places this time.
>>
>>I really do not know what to do now. Any activity reproduces the pain
>>even when I am not on my period. My periods are heavy with significant
>>clots. I was found to be anemic and am on iron for a period of time.
>>
>>I feel like I am crazy because I have had two surgeries in the last year
>>and I was so hopeful after this last one. There are not many options or
>>at least good options when it comes to treating this disease. I have
>>been bounced from dr. to dr. at first because the leg pain was
>>throwing them off. But I read more and more leg pain is a significant
>>gyn symptom.
>>
>>Anyone with insight on this please respond. I would appreciate any help
>>or suggestions.
>>
>>Karen

--
Hello Karen'
 I am 22 years old and i have had 8 surgeries for endo ,cysts and adhesions. I
tried the lupron shot as well , and it didn't work for me either. I just had the
luna procedure done a month ago,so far no sign of improvement.even though i know
it can take a few months to work,i hope it's sooner than later.I know it's a
50/50 chance it will work for women who have endo. Did it end up helpig you at
all? 8 surgeries is enough and i don't want 9.

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