ENDO Messages for May, 2005: Re: Thank God

Re: Thank God

From: Rachel (anonymous@obgyn.net)
Fri May 27 20:12:09 2005

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In reply to: Raychel: "Thank God"

Raychel, hysterectomy is not always a cure for endometriosis, but you cannot find a way to live with the disease, you might need to consider it. I will tell you though, your best chance involves COMPLETE hysterectomy, and NO hormone replacement after surgery for at least 9 months up to a year. All visible endo should be removed, along with the uterus, and both ovaries. If you leave one ovary, it will continue to produce estrogen, which will continue to feed the endo. Hormone replacement will also feed the disease, which could make the surgery useless. If you are mentally and emotionally ready to lose these body parts, and you cannot live your life to the fullest with endo, then you should talk to your doctor. No one can tell you if you're too young for this surgery. It's your body, and your choice. The people telling you you're too young have no idea what living with endo is like. Quality of life is the most important thing for everyone, and you shouldn't have to live your life in misery. Listen to your heart...I think you know what you really want. Just make sure you have an excellent doctor. Take care, and I hope you're pain-free today. :)

-- Rachel

At Fri, 27 May 2005, Raychel wrote: > >As I read all the posting the tears are just running dowm my face. I >really thought that maybe I was crazy. No one can be in pain ALL the >time. I started to tell myself that maybe it IS me. When I was a child >the Dr told my mother I needed a warmer wheather, so we moved to Cal. >Needless to my older siblings that had their high school lifes already >started was not happy at all. Now they are mad at me and I was still in >pain. At 12 years old you couldn't imagen how lost, scared and alone I >felt. I started to think maybe I'm not really in that much pain. But >when you can't stand up stright because of pain, it's not in your head. >I have tried a lot of different birth control pills and was happy when I >found the Seasonal pill. It has been about one year not totally pain or >blood free but better, but now I have to take another pill because of >the sexual side effects. Do you see what I am willing to except! Well >it seems like it's not working anymore. I have had 3 laps in my 22 >years of pain and really do not want to keep having surgery. I never >realized the mental effect that this whole situation can have on someone >until I ended up in the hospital mental unit two years ago. Always >tring to PROVE that you are sick all the time to everyone around you can >drive you crazy. Will a hyterectomy solve my problem once and for all? >I am 33 years and do not feel that I am too young as everyone else >thinks. >Thank you all - your new friend >Raychel

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Previous message: holly: "Re: Pregnancy after Lupron"
In reply to: Raychel: "Thank God"

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