ENDO Messages for May, 2005: Re: New to the Boards

Re: New to the Boards

From: Jessica (anonymous@obgyn.net)
Thu May 26 19:17:51 2005

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In reply to: Katy: "New to the Boards"

Hey Katy, I am Jessica. New to this board for about a month now but have already learned a lot. I have endo, have had 4 laps, and have been on lupron therapy for four months now (ick is right, lol).I also have a history of cysts. The most recent lap was because of a new problem that I was having, pain with intercourse. I pushed and pushed to get an appointment with my doctor, and they could not fit me in until the following week. I talked to the nurse about the problem over the phone, and it was dismissed as "normal with endo." Tips that she gave me were, taking pain meds an hour or so before intercourse. Trying different positions. Using different forms of lubrication. Finally, when I exhausted all of these tips, and having abdominal pain again, I went to the ER. I had to convince my doctor when he came to see me to do a fourth lap, because something was not right, even though he thought it would be better to "wait it out," stating that it would probably resolve in 48 hours or so. But I pushed him, and went in for surgery the next day. They found a 6cm cyst on my vaginal wall. Doesnt seem like very big when you think of it, but can definitely cause some pain during intercourse. Now I am not saying that this is what you should do, just telling you my story. Most endo patients I have encountered have pain with intercourse on deep penetration. This was what my doctor's nurse thought I was referring to. So the tips listed above may help you through your painful sex. However, I was having pain as soon as intercourse started, which was chalked up to lubrication issues, etc. If the pain you are experiencing is excruciating, then you should definitely be checked. However, if it is only with deep penetration, which I still have, the pain meds before sex, and different positions are the best tips I can give you. At 22, I feel like I can really relate to what you are going through, and I know the pain meds seem to take the spontaneity out of sex, like, oh wait, let me go pop a vicodin real quick before you start, just try it out. You might be surprised at how much better it makes it, and as far as the uncomfortability of it, who thought we would be living through menopause in our early 20s???? Ha, sorry, I try to make light of this stuff, its the way I deal with it. :) But really. My fiancee and I are talking about trying to get pregnant when I go off lupron in 2 mos... yay ! ! So I am interested in seeing other stories also ! ! Welcome to the board... Hope this helps. --- Jessica

At Thu, 26 May 2005, Katy wrote: >
>Hello all,
>
>I was posting on another endometriosis chat group sponsered by a
>non-profit Endometriosis Center until I was censored for providing
>information to the women about the Endometriosis Association, it was
>disheartening to me that the moderators of the group cared more about
>promoting their own group than giving women all available information
>about this elusive disease. I hope that this would be more of a free
>forum for women with endo to help one another, and I hope to get to know
>you all as well!
>A little about myself,
>I'm 23, diagnosed with endo in December of 2004. I've had two lapros
>and have been on Lupron (ick).
>I have moderate endo which causes excruciating pain and is getting
>worse.
>I am now considering getting pregnant with my boyfriend of 5 years, and
>would like to know any stories about you guys trying to, or becoming
>pregnant, how was the pregnancy? Was it hard to conceive? How did you
>feel afterwards? What do you do when sex hurts?
>
>Any information woudl be greatly appreciated. I hope to get to know you
>all better!
>
>Thank you,
>Katy

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