Re: New Endo Diagnosis
From: Nicole (anonymous@obgyn.net)
Wed May 25 02:32:32 2005
Hi Heidi!
I cannot believe that 2 Norethindrone's are the equivalent of 30 BCP's.
You poor gal. Do you have serious side effects from the drug? I'm glad
that you've found it to ease your pain! Are you saying that you call the
Norethindrone a menopause in a bottle? If so, then that basically
answers my question about the side effects. Yuk. Thanks for the note.
Have a good day!
Tue, 24 May 2005, Heidi wrote:
>
>Nicole,
>
>Norethindrone acetate, which is what I'm on, is basically birth
>control...at a much higher dose. I take in two pills a day the
>equivalent of thirty birth control pills. Most birth control has
>norethindrone and ethinyl estradiol, it's estrogen counterpart. This is
>the first thing that actually worked for me. I tried regular bcp's, the
>depo shot, Mirena IUD (wouldn't recommend that to anyone...it was worse
>than the pain I had before!), and the patch before this. I call it
>"menopause in a bottle," because that's basically what it is. Talk
>soon!
>
>At Tue, 24 May 2005, Nicole wrote:
>>
>>Hi Heidi!
>>
>>Thank you for your sweet words and thoughts! What is norethindrone?? I
>>have had Endo for 12 years and am 29 now, so all of my adult life has
>>been devoted to Endometriosis. I never tried any of the drug treatments
>>just because of the way I think, but I've had a few surgeries. You are
>>very welcome for the reaching out! Thank you for the same. I only found
>>this forum a few months ago after my successful surgerie. I wanted all
>>women to know that there are really good doctors out there. That
>>although there is NO cure, there are awsome treatments that have helped
>>many women to feel better and to conceive too. I'm happy to hear you're
>>feeling better now, stay well!
>>
>>At Mon, 23 May 2005, Heidi wrote:
>>>
>>>Nicole,
>>>
>>>Thanks for your insight. I do realize that I am soooo blessed to have
>>>my son. I guess a lot of my fear and sadness comes from the feeling
>>>that part of my womanhood has been taken away from me so young...I am
>>>25. I am sorry to hear of your own struggle to have a baby, and I will
>>>pray that you will have the child you dream of. I really appreciate the
>>>advice from you and others, and I am so glad that I have finally found a
>>>place to share and be understood. So few people understand endo,
>>>including myself. I am learning, though. Today was a good day for
>>>me...I have been on norethindrone and recently increased the dose so I
>>>am having less pain. Again, thank you for reaching out to me, it is
>>>such a blessing to finally have an outlet that understands what I am
>>>feeling!
>>>
>>>At Mon, 23 May 2005, Nicole wrote:
>>>>
>>>>Hi Heidi!
>>>>
>>>>Don't be scared! You're not alone in the least. There are millions of
>>>>us that are suffering much like you. I've been suffering for 12 years
>>>>myself. I had a lap and laser in 1998 that finally proved why I was
>>>>dying of pain but if anything the symptoms got worse after that. 2
>>>>months ago I went to Dr. Redwine an Endo specialist/surgeon. For the
>>>>first time in 12 years I am pain free. This is day 2 of cylce #3 and
>>>>I'm feeling good. I've been married 10 years but still seem to be
>>>>practicing at trying to make a baby. I hope you can have another if
>>>>that's what you want, but be sooo thankful that you have been able to
>>>>conceive. There are a lot of us that still haven't and may never be
>>>>able to. Try to focus on getting well so that you can take good care of
>>>>yourself and your family. Especially your self though. I used to cry
>>>>every month for a few days. It seems like it's been awhile but it's
>>>>only been since March (my surgery time) that I've stopped the sadness.
>>>>Even not being in excrutiating pain now I am sad when my period starts
>>>>because I desire to be a mother badly. I hope you are feeling better
>>>>today and feel free to e-mail me personally if you'd like. Have a good
>>>>day!
>>>>
>>>>At Mon, 23 May 2005, Heidi wrote:
>>>>>
>>>>>Hi everyone. I was diagnosed with endometriosis two months ago, by
>>>>>having a laparascopy. The doc used a laser to get rid of the endo areas
>>>>>she saw. I spent thirteen years (since I started my period) having
>>>>>excruciating pain every month; my parents wondered if I was exaggerating
>>>>>at times. I saw seven different docs before the one who did the lap,
>>>>>most of whom told me basically to suck it up, you're a woman. After
>>>>>having my first child, I went on Depo, which stopped the pain but I had
>>>>>lots of side effects. My husband is very supportive but doesn't
>>>>>understand the condition. I would like to have another child but my
>>>>>doctor says it's unlikely I could carry to term. I have no one to talk
>>>>>to, as my husband only wants one child. I'm desperate for support and
>>>>>understanding from people who have gone and are going through what I am.
>>>>>Please if anyone is willing to talk to me, let me know. I'm going out
>>>>>of my mind most days with sadness and fear. Thanks.
>>>>>
>>>>>--
>>>>>Heidi
>>>>>
>>>>--
>>>>Nicole Hartley
>>>>
>>>--
>>>Heidi
>>>
>>--
>>Nicole Hartley
>>
>--
>Heidi
>
--
Nicole
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