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Re: New Endo Diagnosis
From: Heidi (anonymous@obgyn.net)
Tue May 24 22:38:07 2005
Nicole,
Norethindrone acetate, which is what I'm on, is basically birth
control...at a much higher dose. I take in two pills a day the
equivalent of thirty birth control pills. Most birth control has
norethindrone and ethinyl estradiol, it's estrogen counterpart. This is
the first thing that actually worked for me. I tried regular bcp's, the
depo shot, Mirena IUD (wouldn't recommend that to anyone...it was worse
than the pain I had before!), and the patch before this. I call it
"menopause in a bottle," because that's basically what it is. Talk
soon!
At Tue, 24 May 2005, Nicole wrote:
>
>Hi Heidi!
>
>Thank you for your sweet words and thoughts! What is norethindrone?? I
>have had Endo for 12 years and am 29 now, so all of my adult life has
>been devoted to Endometriosis. I never tried any of the drug treatments
>just because of the way I think, but I've had a few surgeries. You are
>very welcome for the reaching out! Thank you for the same. I only found
>this forum a few months ago after my successful surgerie. I wanted all
>women to know that there are really good doctors out there. That
>although there is NO cure, there are awsome treatments that have helped
>many women to feel better and to conceive too. I'm happy to hear you're
>feeling better now, stay well!
>
>At Mon, 23 May 2005, Heidi wrote:
>>
>>Nicole,
>>
>>Thanks for your insight. I do realize that I am soooo blessed to have
>>my son. I guess a lot of my fear and sadness comes from the feeling
>>that part of my womanhood has been taken away from me so young...I am
>>25. I am sorry to hear of your own struggle to have a baby, and I will
>>pray that you will have the child you dream of. I really appreciate the
>>advice from you and others, and I am so glad that I have finally found a
>>place to share and be understood. So few people understand endo,
>>including myself. I am learning, though. Today was a good day for
>>me...I have been on norethindrone and recently increased the dose so I
>>am having less pain. Again, thank you for reaching out to me, it is
>>such a blessing to finally have an outlet that understands what I am
>>feeling!
>>
>>At Mon, 23 May 2005, Nicole wrote:
>>>
>>>Hi Heidi!
>>>
>>>Don't be scared! You're not alone in the least. There are millions of
>>>us that are suffering much like you. I've been suffering for 12 years
>>>myself. I had a lap and laser in 1998 that finally proved why I was
>>>dying of pain but if anything the symptoms got worse after that. 2
>>>months ago I went to Dr. Redwine an Endo specialist/surgeon. For the
>>>first time in 12 years I am pain free. This is day 2 of cylce #3 and
>>>I'm feeling good. I've been married 10 years but still seem to be
>>>practicing at trying to make a baby. I hope you can have another if
>>>that's what you want, but be sooo thankful that you have been able to
>>>conceive. There are a lot of us that still haven't and may never be
>>>able to. Try to focus on getting well so that you can take good care of
>>>yourself and your family. Especially your self though. I used to cry
>>>every month for a few days. It seems like it's been awhile but it's
>>>only been since March (my surgery time) that I've stopped the sadness.
>>>Even not being in excrutiating pain now I am sad when my period starts
>>>because I desire to be a mother badly. I hope you are feeling better
>>>today and feel free to e-mail me personally if you'd like. Have a good
>>>day!
>>>
>>>At Mon, 23 May 2005, Heidi wrote:
>>>>
>>>>Hi everyone. I was diagnosed with endometriosis two months ago, by
>>>>having a laparascopy. The doc used a laser to get rid of the endo areas
>>>>she saw. I spent thirteen years (since I started my period) having
>>>>excruciating pain every month; my parents wondered if I was exaggerating
>>>>at times. I saw seven different docs before the one who did the lap,
>>>>most of whom told me basically to suck it up, you're a woman. After
>>>>having my first child, I went on Depo, which stopped the pain but I had
>>>>lots of side effects. My husband is very supportive but doesn't
>>>>understand the condition. I would like to have another child but my
>>>>doctor says it's unlikely I could carry to term. I have no one to talk
>>>>to, as my husband only wants one child. I'm desperate for support and
>>>>understanding from people who have gone and are going through what I am.
>>>>Please if anyone is willing to talk to me, let me know. I'm going out
>>>>of my mind most days with sadness and fear. Thanks.
>>>>
>>>>--
>>>>Heidi
>>>>
>>>--
>>>Nicole Hartley
>>>
>>--
>>Heidi
>>
>--
>Nicole Hartley
>
--
Heidi
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