ENDO Messages for May, 2005: Re: Home from surgery -- me too

Re: Home from surgery -- me too

From: Anna (anonymous@obgyn.net)
Wed May 18 22:40:55 2005

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Belina,

I'm home from surgery too!

I'm sorry your experience was so frustrating. I can relate, because over the past few years, every time I went in for a test, the doctor would say, "everything looks great!" Sometimes that would make me cry, and the doctor would of course think I was crazy. (Or so it seemed.) As much as I was glad that "everything looked great," it made me SO frustrated not to know what was going on. And to go through so much only to be told, "Looks fine."

For me, the surgery did reveal a lot of endo, which the doctor removed most of. When the doctor told me about the endo as I woke up in the recovery room, I cried, this time out of relief. Relief that now I "know".

I hope that you find your moment of knowing, too. Don't give up. Don't forget, too, that endo can cause pain in mysterious ways. Even microscopic endo can cause pain. How experienced is your doctor with recognizing endo in all its many shapes, textures and colors? Or, if it's not endo, still remember, you are not going crazy. If you have pain, you have pain, and don't let anyone invalidate your feelings or your knowledge of your body. It's time that women were no longer told by doctors, "Some women just have pain."

You mentioned a D&C. I haven't been on the board for a while. Did you miscarry then? If so, I'm really sorry. I miscarried last spring, and it was very difficult. It's natural to be having a hard time after a miscarriage, so if this is your situation, go easy on yourself.

Hang in there.

-Anna

At Wed, 18 May 2005, Belinda wrote: >
>Hello all. I had my lap, D&C and endometrial ablation performed this
>morning. Needless to say, the dr. did not find any endo or adhesions.
>Although this is VERY good news, I am so frustrated. I have had so much
>pelvic pressure & pain, I felt sure that the endo had actually returned.
>Now I'm back to square one in trying to determine what the cause of my
>pain is. I was supposed to have had a hysteroscope done also, but as my
>luck would have it, I started my period this morning so he couldn't do
>it.
>Going into surgery, I figured most of my discomfort would be from the
>lap. Boy was I wrong. The ablation was worse that I thought it would
>be. I woke up in the recovery room crying from the pain. They said
>some women have no pain from the ablation while some hurt. They said
>they had never seen it affect a person as much as it did me. Plus, I
>have been nauseated ALL day. Nothing is staying down and I'm having
>trouble urinating.
>My dr is hoping that the ablation will help with the problems I have
>been having. He said that if in 2 or 3 months I continue to hurt, then
>we'll start looking for other possible sources of the pain. He said it
>could be anything from my bowels & bladder to even being my gallbladder
>or appendix.
>Right now I think I'm still in shock and soooo frustrated. When the dr
>told me everything looked great, all I could do was cry! I felt so
>stupid, but it was the last thing that I wanted to hear at that moment.
>I just want something to be found and treated so that the pain will
>stop. I didn't necessarily want them to find endo, I just wanted to
>find the source and fix it!!!
>I guess the good news is my endo story so far has ended in success. I
>have been endo-free now for 12 years! And for that, I am thankful.
>
>--
>Belinda
>

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