ENDO Messages for May, 2005: Re: Home from surgery

Re: Home from surgery

From: Angie (anonymous@obgyn.net)
Wed May 18 22:34:35 2005

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Hi Belinda,

I'm sorry you are having such a rough time. I just wanted to share my story with you... a couple of years ago I started having horrible pain in my left side with ovulation and then it came with my period also. When the pain spread to my right side and was so bad I needed pain medication, my doctor ordered an ultrasound. They found nothing of course! I got pregnant shortly after and the pain was mostly gone. After I gave birth the pain came back and was worse than ever. My OBGYN did a lap and all he found was one long adhesion on my appendix. By then I had looked up all kinds of info on endo online and knew I had it. My symptoms continued to get worse and I started going to a pain mgmt clinic and started long acting narcotics. I did an internet search for "endometriosis specialist Portland Oregon" and it came up with an infertility clinic. I had a 2nd lap just 3-4 months after the first one and lo and behold.. I had stage 2 endo and it was in all the places I was having pain. Unfortunately having it lasered off didn't help...well, it did help the ovary pain but it made my bowel endo worse. I am still going to the pain mgmt clinic and am planning on seeing one of the doctors (Dr Redwine in Bend) who uses the excision method to remove endo this winter. It has been a hard road but I have heard many wonderful things about Dr Redwine's success rate (my husband's boss's daughter saw him 2-3 years ago and hasn't had any pain since) so I am living day to day until I make the trip. Fortunately I live only 3.5 hours away but it does cost quite a bit of money and I will miss 3-6 weeks of work so it's not something I can do right now.

Anyway, sorry for babbling! I just wanted to let you know that you might still have endo and to trust your feelings. As you probably know, endo has many different appearances (color, texture, etc) and can hide in every nook and cranny in the pelvis and beyond in some cases. Feel free to email me any time, jakesmom_us@yahoo.com.

Take care, Angie

At Wed, 18 May 2005, Belinda wrote: >
>Hello all. I had my lap, D&C and endometrial ablation performed this
>morning. Needless to say, the dr. did not find any endo or adhesions.
>Although this is VERY good news, I am so frustrated. I have had so much
>pelvic pressure & pain, I felt sure that the endo had actually returned.
>Now I'm back to square one in trying to determine what the cause of my
>pain is. I was supposed to have had a hysteroscope done also, but as my
>luck would have it, I started my period this morning so he couldn't do
>it.
>Going into surgery, I figured most of my discomfort would be from the
>lap. Boy was I wrong. The ablation was worse that I thought it would
>be. I woke up in the recovery room crying from the pain. They said
>some women have no pain from the ablation while some hurt. They said
>they had never seen it affect a person as much as it did me. Plus, I
>have been nauseated ALL day. Nothing is staying down and I'm having
>trouble urinating.
>My dr is hoping that the ablation will help with the problems I have
>been having. He said that if in 2 or 3 months I continue to hurt, then
>we'll start looking for other possible sources of the pain. He said it
>could be anything from my bowels & bladder to even being my gallbladder
>or appendix.
>Right now I think I'm still in shock and soooo frustrated. When the dr
>told me everything looked great, all I could do was cry! I felt so
>stupid, but it was the last thing that I wanted to hear at that moment.
>I just want something to be found and treated so that the pain will
>stop. I didn't necessarily want them to find endo, I just wanted to
>find the source and fix it!!!
>I guess the good news is my endo story so far has ended in success. I
>have been endo-free now for 12 years! And for that, I am thankful.
>
>--
>Belinda
>

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