ENDO Messages for May, 2005: Re: Question for 'anonymous'...

Re: Question for 'anonymous'...

From: anonymous (anonymous@obgyn.net)
Tue May 10 12:51:22 2005

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Reply: Belinda: "Re: Question for 'anonymous'..."

Hi Belinda,

Hopefully either your doctor has called you back by now or you have called again.

I started with just a small round bump in my lower abdomen and over a period of time it grew larger - some days were worse than others. I often had more than my share of gas, stomach cramps, alternating between diarrhea and constipation, back ache, pelvis ache, legs aching. My pelvis would feel very heavy, my abdomen would pull on my lower back muscles causing a lot of spasms. Heat helped but only if I could get it hot enough to nearly scald myself the pain was just so deep that the heat couldn't quite get there. Laying down with my knees raised helped my back and pelvis feel better. I was taking prescription ibuprofen 6400 mg per day which is a bit more than recommended and my kidneys were beginning to show it. Ovulation was excruciating. In addition I had some pretty severe adhesions that made some movements impossible. I had to make a great effort to move slowly when it came to reaching up or bending down. Kneeling was hazardous as I was so off-balance most of the time. I was constantly in a state of exhaustion from the effort of getting from morning to night, working full time and tending to a house, yard and children.

Intercourse was unbearable and sometimes even my skin and hair would hurt to touch my CNS was so overloaded with pain signals and inflammation.

Surgery resulting in a hysterectomy for me was a 100% cure. I have a few adhesions that formed that I become aware of now and then but nowhere near what it was like and luckily my surgeon made sure to instill enough saline solution in my abdomen to keep all the organs floating freely. Once in awhile if I overdo it I get a little achy in my belly from the few adhesions I do have but it's totally bearable.

Keep trying to reach the doc Belinda... make sure you let the nurse know you need to speak to the doctor and ask about his phone hours... some have specific hours during which time they will receive phone calls - especially if it's a busy practice.

Hang in there!!

At Mon, 9 May 2005, Belinda wrote: >
>The other day we discussed your experience with adenomyosis. You
>mentioned that you looked like you were 4 months pregnant. Was it like
>that all the time or just at different times during your cycle?
>
>Saturday, my back and legs continued to hurt. The Dr never called me
>back Friday afternoon and so far it's 2:20 on Monday & they still have
>not called. This is not a reassuring sign of a good dr, especially one
>that is doing surgery on me next week.
>
>Anyhow, the pain and pressure got so bad that afternoon that my stomach
>swelled to the point that I looked pregnant. My legs hurt so bad that
>all I could do was lay in the bed and move them back and forth. I could
>not lay still. Even to put any type of pressure on my abdomen hurt.
>After a few hours of rest, my abdomen eventually went down although the
>achiness in my back never completely eased up.
>
>What will cause the uterus to swell to that extreme? It was almost like
>my abdomen had been traumatized. It will sometimes do that after
>intercourse or right before my period, but never in a situation like
>this. Like I said, the pain in my back, legs and hips started first,
>then came the pressure/pain in my stomach. I would assume the two go
>hand in hand and not just a freaky coincidence. I'm almost 99% sure at
>this point that the source of my pain is adeno or adhesions.
>
>I know that you have had adeno in the past and have had to deal with
>this misery first hand. Any input/advice is greatly appreciated.
>
>Thanks and take care.
>
>--
>Belinda
>

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