Re: WHERE DO I GO FROM HERE
From: AmyRD (anonymous@obgyn.net)
Sun May 8 23:00:37 2005
At Sun, 8 May 2005, Jessica wrote:
>I am sorry you are in so much pain. I have periods of time where I have excrutiating pain that will last a few days to a few weeks but Not every day...I consider myself lucky.
What I do want to stress to you is that having a baby will not
necessarily stop your endo pain. I just had a baby 5weeks ago and I
suffered from endo pain off and on my whole pg. The pain got so bad at
the end that it made me fall to the floor one day. Not all women with
endo have pain when pregnant but I don't want you to think it is a cure.
Drs will tell you it is...mine did but they were wrong. I had a
c-section and the same dr who did not believe my pain was from endo,
apologized to me after he saw my insides during the c-section. He saw
areas on my uterus where endo had riped off as my uterus got bigger. I
showed him it is possible so he has a different view now.
Anyway...I am sorry you are having a rough time. You don't sound ready
to have a baby and I just don't want you to think it is a cure for endo.
Good luck.
>I was diagnosed with endo in July of 2004, I went form Dr. to Dr.
>before I was reffered to a pain clinic. Once there I joined a pelvic
>pain support group, did physical therapy to lower my pelvic floor and
>help me urinate, had 2 steriod epidurals(not lupron but ive been on that
>too), and was out on methadone for the severe pain. I started the pain
>clinic in DEc 2004. The epidurals did not work, and the even on the
>methadone the physical therapy was so intense and painfull I ended up in
>the hospital. But before I started going to the pain clinic I had no
>hope, every day wzs spent in bed crying, or in my house barely able to
>move. This past week I couldnt get into see my Dr. at the pain clinic
>so I had to see a nurse practionar who doesnt know anything about endo
>and who I had butted heads with in the past. She thinks that a 9 yr old
>can not be in pain, and I am making it all up. She proceeded to take me
>of the methadone and put me on an anti inflamatory like ib profun. RIght
>now I'am back a square one. I asked herwhat I should do in two weeks
>when I was hurting so bad my family would force me to go to the
>emergancy room. She jsut gace me the run around that Endo shouldnt be
>treated with pain killers. I know that pain killers are no cure, But I
>don't think she knows that without something I suffer. I can;t go to
>ohysical therapy, work, or school. Everyone morning I wake up and wish
>I was still sleeping. It feels like ym ovarys are going to burst and my
>uterus is 10 times the normal size. I've had my period for 45 days(this
>isnt the first time this has happend) and I truly am suffering. I
>really don't know where to go next sicne the only person who understood
>how painfull endo is, is my Gyno and he refferd me to this pain clinic
>in the first place. He wont do another surgery untill I wait 3 months
>to see if this last birth control is giong to work. Im 19 and shouldnt
>be in this much pain. I should be out having fun, and getting my life
>started noy dreading getting up in the moring and how I'm going to fall
>asleep in excrucuating pain. DOES ANYONE KNOW OF ANY DR.S WHO
>SPECIALISE IN ENDO. I'M LOCATED IN MINNESOTA AND AM ON MEDICAL
>ASSISTANCE SO MY RESOURCES ARE LIMITED. DOES ANYONE HAVE ANY
>SUGGGESTIONS AS TO WHAT OHTER ALTERNATIVES I COULD TRY. I FEEL LIKE
>I'VE TREID EVERYTHING AND THE LAST THING FOR ME TO DO IS HAVE A
>BABY(WHICH MY GYNO SUGGESTED THE FIRST TIME I MET HIM) IM 19 WITH A
>BOYFRIEND OF 2 YRS, BUT DEF NOT READY FOR A KID. hAS ANYONE OUT THERE
>TREID ANYTHING THAT WORKS FOR SEVERE PAIN. LUPRIN DIDNT WORK FOR ME,
>AND THERE IS NO CURE, I HAVENT HEARD OF ANY ALTERNATIVE METHODS BESIDED
>THE PAIN KILLERS WHICH I HATE TAKING, BUT I KNOW THAT IF I'M GOING TO
>HAVE A NORMAL LIFE MY PAIN NEEDS TO BE REDUCED. I CAN COPE WITH A
>LITTLE PAIN OR EVEN 1/2 OF WHAT I HAVE NOW. SOMETIMES I THINK ITS ALL
>IN MY HEAD. ENDO ID NOT SUPPOSE TO HURT THIS BAD RIGHT? THANKS FOR
>READING THIS ANY HELP WOULD BE MUCH APPRECIATED.
>
>--
>JESSICA, fireinthesky419@msn.com
>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)