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Re: 16 yrs old and i need help or advice or something
From: Eileen (anonymous@obgyn.net)
Sun May 8 13:20:54 2005
Thank you for sharing you story. I also noticed that when im really
stressed out I hurt alot too. So much has been going on around here its
been really crazy. When I first had a cyst my bro had ankle surgery and
depended on me getting things for him. It was very stressful cause he
never understood the pain I was going through and he told me I was just
trying to get some attention so I tried not to listen to him but you
know how emotional we get with this. Then after I had my appendix
removed, about 2 weeks later, 2 of my brothers were in different
accidents in the same night. One was ok and the other wasnt. The one
that wasnt ok was hit head on while he was on his motorcyle...That week
was the most stressful for me cause he was in bad shape and at the
hopsital for 2 weeks. As soon as he came home it was up to me to take
care of him even with the extreme pain I was in. I got very frustrated
with him cause he told me I was very grumpy all the time but when I
tried explaining to him he just didnt understand. Going through all of
this has been very stressful for me cause my family and friends just
dont understand what Im going through, but thanks for the support! Its
good to know someone can relate to what Im going through
At Fri, 6 May 2005, Softball wrote:
>
>I can't say I completely understand your situation because I didn't have
>that many tests before. I had problems with cramps and stuff since I
>had started my cycle. It was the same thing every month, I would miss
>at least one day of school due to the fact that I was hurting soo bad.
>That's when my mom took my to the obgyn. I was 14 at that time. The
>doctor told me that she thought it may have been due to the fact that I
>hadn't regulated out and all that. So I was put on birth control and a
>pain med when needed. The pain got a little better, then my senior year
>it all changed. I started missing school again due to the cramping. I
>had another doctor in the group because the first one I had seen had
>left the group. The new dr changed my bcp and gave me an
>anti-inflammatory. That helped a little. I got through the remainder
>of the year. Then the following fall i went away to college, which I
>think really caused the flare up because of stress. I had a massive
>asthma attack and missed 2.5 weeks of school, plus my grandma had a
>massive heart attack and many other things. So I was away at school and
>trying to still make it to classes. I called and talked to my doctor
>and she wanted me to come in, but I was two hours away at school, so she
>called me in more pain meds and then I went in on friday for an
>ultrasound. Nothing showed, so she told me that she thought that it may
>be endometriosis and I needed a lap. So we got that scheduled,
>therefore at christmas I left school and came back to community college.
>I had surgery in January where he found massive stage 4 endo all over.
>He said that he thought this is probably what has been brewing when the
>pain started. However, it was partly my fault because i didn't want to
>go to a male obgyn. He was the only one that does the surgeries from
>that group though. So ever since Jan '04 i have went to him. After
>surgery I still had massive pain. I was put on all different treatments
>and nothing was helping. To find out I had a kidney stone, so in april
>I had surgery for that. The pain was still there though. We went
>through every pain med they had in the section that he prescribes and
>only one worked. However, after taking it for a bit, I broke out in
>hives and couldn't breathe. So Finally found something that worked and
>I couldn't take it due tot the fact that I was allergic to it. So in
>June I started 6 months of lupron, but still no relief. I was gong to
>the doctor at least once a week. One time within 4 weeks I had been to
>the obgyn 12 times. So he decided to do another lap. He said that most
>people last at least a year in between surgeries, but it didn't look
>like I was going to be able to. So on december 28th I had another lap.
>Found more endo that had formed. THis had formed while taking all the
>meds to stop it from forming. So he told me that I made need a lap
>every year or so, but he hoped not. So that's what went on with me. Now
>I'm still in pain, but not near as bad as I was. I have good days and
>bad days. I can always tell when I'm stressed out because I will hurt a
>lot more. So I've learned to not stress over things soo much anymore.
>Sorry this was soo long. feel free to email me softball34life@yahoo.com
>
>nita
>
>At Fri, 6 May 2005, anonymous wrote:
>>
>>My name Eileen and I'm 16 yrs old. I have had extreme ovarian pain ever
>>since I can remember, like ever since I started my cycles. When I was
>>younger and when I had my cycles I was just stay in bed all day curled
>>up in a ball cause of all the pain I was in. I would have major cramps
>>and pain and would get chills and sometimes fevers. My face would
>>always be really pale and when I told my mom she told me it was normal
>>cause she always had really bad pains too. Knowing this I never really
>>did anything about. Being so young, I was afraid and embaressed about
>>this problem that I never saw anyone for it. I never told my doctor
>>about my pain cause my mom always told me it was normal. I would take
>>advil and in few days my cycle would be over and I would be able to go
>>back to my regular schedules until the next cycle. Then over the yrs I
>>experienced more pain. I would experience pain before and after my
>>cycles but as usual I thought it was normal and never said anything.
>>
>>In February of this yr my pain got really bad and after my cycle was
>>gone I still experienced the pain. Everday I woke up to pain, hoping it
>>would go away in a day or two like it usually did, but the pain never
>>went away! Thats when I realized it was definately time to see a doctor
>>about the pain. So around Feb 8 I went to my regular family doctor
>>about my pain and he told me to go get an ultrasound done because he
>>thought it might have been a cyst. So i went and got the ultrasound
>>done. Then after reading the results he told me that I did have one and
>>to go to a obgyn. So when I was there he told me I was having too many
>>pain for it just to be a cyst so he told me to go to a surgen to check
>>to see if i had appendicist also. So I went to the surgen and he told
>>me to get a catscan done. When I had the catscan done, it showed that
>>my appendix looked fine but my cyst had recently errupted. I thought
>>okay thats great. But then my pain continued and I had the doctors in
>>complete puzzlement and they didnt know what to do for me or what was
>>causeing it. So then I went back to the surgen in a week and he told me
>>they were have me have surgen so they could find out what was going on.
>>So I had a laparoscopy done on March 8 and they checked out my appendix
>>just to be sure it my appendix was ok and they found out my appendix was
>>inflamed. So they removed my appendix and they thought they took care
>>of my problem. 2 weeks later go by and Im still in pain. So I called
>>up my obgyn and he told me to go to the ER to have another ultrasound
>>done. When I went there I had one done and they told me it looked like
>>I had another cyst and it recently errupted. After the results of that
>>one I went to a follow up with my obgyn, but I was still having pains.
>>He tried to do an examination but doesn't have much luck because it was
>>a very painful experience for me. He couldn't get the instrument in me
>>because I was very tender because I havent had sex and therefore my wall
>>hadnt been broken. Anyways he wasnt able to find out what was wrong and
>>he didnt think it was ovarian....I was like WHAT!?! He told me he
>>thought it was gas pains so he sent me back to me back to my family
>>doctor because my family doctor also specializes with gas pains. So I
>>went back to my family doctor and he told me that he didnt understand
>>what the obgyn was talkin about and he knew it was definately ovarian.
>>So my family doc put me on birthcontrol about the beginning of april
>>saying lets just shut the ovaries down for awhile and see if that helps.
>>He told me it woulkd take about 3 months to wokr though. Since then I
>>was in extreme pain everyday (and still am now) so he prescribed me an
>>anti-imflammitory pill to see if it helped. It helped for only the
>>first day then I experienced pain again. So I went back to the doc and
>>he told me he really didnt want to change my birthcontrol to stronger
>>unless it was possitively neccessary because of the side effects, so he
>>advised me to take tylenol with the other pills. So a week goes by and
>>Im still in pain so he told me to get another ultra sound done. In
>>between the time of getting my ultra sound I decided to look up
>>somethings on the web hoping maybe I could find something related to my
>>pains. Thats when I read about Endometriosis and realized I have every
>>symptom of it. So lastnight I went and had my ultrasound done and the
>>lady told me that I had another cyst that errupted. But she told me to
>>go home and look up Endometriosis. I told her it was a weird
>>conisidence that I was thinking about that and that I had every symptom
>>of it. She told me in her opinion she thinks I definately have it and
>>that I should research some more and decuss with my doctor about having
>>a laparoscopy done to be sure that I have it. So thats where I am now.
>>
>>Im in the middle of having the surgery scheduled and I thought I would
>>share my story to see if it was similar with anyone else who actually
>>has endometriosis ....welll someone please reply and let me know...i
>>need some advice...thanks
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