Re: can anyone help me figure out whats going on in my body?
From: kristen (anonymous@obgyn.net)
Fri May 6 16:59:21 2005
i know i dont have 100 pounds of muscle on me but i used to play sports
for school before the symptoms started and i still have all that muscle
i just have some fat on top of it. and i have tried everything to lose
it but i cant. ive done atkins for months with no result. ive done
south beach with no result. like i said i saw a diatritian when i was
in the hospital for the PE and she what she told me teat is what i
already did and still do. so i dont know what to do. and if im in bed
crying because of the pain then how can i excerise? i had to leave
college because they told me if my health was going to get in the way
then maybe i shouldnt be there. so my whole life has been turned upside
down and i really dont like the fact that you keep saying im fat because
i dont care about myself. i do. i joined a gym and i went but the pain
got so bad that i had to go to the er because i didnt know what was
going on. endo is different for everyone so how can you say that this
will work for me when there are more women out there that its not
working for too? and do you even know what PE is? its nothing to do with
endo. its pulminary embolism. i had a blood clot in the artery to my
right lung. my right lung didnt get blood for a week so now i have to
deal with a weak lung that may never fully heal. so i dont know what to
do. im ruining my boddy by taking all these "pain killers" that dont do
anything for the pain. im "too young" to have a hystorectomy.
everything youve told me to try ive done it. i know you werent
criticizing me or passing judgement but you dont know that ive tried it
all. i apretiate your help but im sick of everyone telling me the same
stuff. im sorry i got bitchy but if you have endo then you understand
how frustrating it is.
--
kristen helmer
At Fri, 6 May 2005, anonymous wrote:
>
>Whoa there Kristen, I wasn't criticizing you or passing judgment. You
>asked for advice and input and I gave it to you. Sometimes the truth
>you need to hear is not the truth you want to hear but you already knew
>it to be true anyway.
>
>Not eating regular, nutritionally balanced meals is just as bad as
>eating too much of the wrong foods, I'm sure you know that. I'm sure
>you also know that when you don't feel good you probably don't take care
>of yourself the way you know you should - it's a woman thing, we all do
>it. We're great at taking care of other people but when it comes to
>ourselves we usually don't do such a good job.
>
>When you're not feeling well and sick to your stomach have you tried
>putting yourself on a bland diet? You know, toast, chicken noodle soup,
>crackers, the stuff mom used to give you when you were sick? It will be
>easy on your tummy, keep your blood sugar level steadier and give you
>some nutrition too. It will also make it easier for you to take pain
>meds to help with the pain from your periods.
>
>Everything is relative Kristen, your weight is affecting your symptoms
>and your symptoms are affecting your weight. You have to come to a
>point where you decide to take control and do something about it. Unless
>you are well over 6 feet tall, then you and I both know that 220 pounds
>is too much and if you have endometriosis, painful bowel movements, PE
>and feeling this desparate then the weight should be one of your
>concerns. Not because the extra weight is the cause but because the
>extra weight is increasing the severity of your symptoms. You say you
>have more muscle than anything, do you think you have 100 pounds of
>muscle on you?
>
>I'm sorry you're in so much distress.
>
>At Fri, 6 May 2005, kristen wrote:
>>
>>i have tried everything i can think of to "get my weight down" i have
>>more muscle than anything. and plus my drs told me the weight was the
>>last thing i should worry about because for some people endometriosis is
>>the reason for gaining the weight. im sorry im not skinny like some
>>people. i dont drink sodas much. i do mostly drink water. i have a
>>water bottle with me all day and all night. refilling it all the time.
>>and i dont even eat that much. and when im having my period i can
>>bearly eat anything because i get so sick to my stomach. so yeah try
>>being me for a few months. you wouldnt like it either.
>>
>>--
>>kristen helmer
>>
>>At Fri, 6 May 2005, anonymous wrote:
>>>
>>>#1 rule when you have painful bowel movements is to add fibre and water
>>>to your diet. This will encourage your stool to stay softer and move a
>>>bit more frequently so you avoid the constipation, bloating and
>>>cramping.
>>>
>>>The blood, if bright red like from a fresh cut is probably exactly that,
>>>you probably had a small tear in the tender tissue of your anus - it can
>>>be scary but should clear up on it's own. There are anesthetic
>>>suppositories you can buy over the counter to help you when the 'going'
>>>gets rough.
>>>
>>>Meanwhile, get more whole grains and veggies in your diet. Even if the
>>>cause is endo on your bowel, it will help you avoid extra difficulties,
>>>pain and distres.
>>>
>>>You are very aware that you need to get your weight down too, switching
>>>to a whole grain carbs, lean meat, veggie filled diet will help. Avoid
>>>dairy, use skim and low-fat when you do have dairy limit sugary things
>>>like fruit juices, baked goods and soda to bare minimums and for every
>>>glass of soda have two glasses of water.
>>>
>>>You said that being on your feet for long periods makes it worse so try
>>>taking shorter walks more than once per day. For example if a 30 minute
>>>walk is too long and results in pain then take two 15 minute or three 10
>>>minute walks several hours apart, that way you still get exercise and
>>>maybe can prevent some of the extra pain it causes. When you go
>>>shopping park one row further away from the doors than usual and walk a
>>>little more briskly through the store, do a few laps around your home,
>>>be creative and find ways to make your daily routine pay off a little
>>>more... you do deserve some reward for all your efforts.
>>>
>>>At Fri, 6 May 2005, kristen wrote:
>>>>
>>>>i have a family dr but i cant stand her. and i dont think i have
>>>>hemmroids. i noticed that the pain overall gets worse if i do anyting
>>>>like walk for a long period of time before i even start my period. or
>>>>exercise. and that sucks. before i started having the pain at 16 i was
>>>>at like 120 and now that im 22 im anywhere from 220 to 240 at any given
>>>>time. but for the past few weeks since its been nice out ive been doing
>>>>a lot of walking and playing outside and the pain is much worse. i dont
>>>>know what to do. im sick of having to take pills all the time for the
>>>>pain. im sick of being on edge all the time. im just sick of
>>>>everything. the bcp helped but then i got the PE and i cant take any
>>>>for of bcps or any other hormonal therapy at all. and i was also on
>>>>celbrex and bextra and vioxx shorty before i was put into the ICU for 3
>>>>days with the PE. i just have no clue anymore about anything. i cant
>>>>find a dr that will just take everything out because i am only 22. grrr.
>>>>the pain is back really bad. i dont know what to do. sorry this is so
>>>>long...
>>>>
>>>>--
>>>>kristen helmer
>>>>
>>>>At Fri, 6 May 2005, Belinda wrote:
>>>>>
>>>>>Kristen -- I too suffer from painful b.m. so I can definately
>>>>>sympathize with you. The cause of the pain could be any number of
>>>>>things (which is the dilema I'm in now). However, blood in your stool
>>>>>is concerning. Do you know if you have hemmroids? Sometimes this will
>>>>>cause bleeding. I know that not all hemmroids are external. If you
>>>>>have done any excessive straining, this will cause them to bleed. I
>>>>>have heard of women who have endo on the bowels pass blood around the
>>>>>time as their cycle. Do you have a family dr or a gastrointerologist
>>>>>that you can call since you are in the middle of changing dr's (I assume
>>>>>you're refering to your gyno)? This is something that you need to have
>>>>>checked on soon. Good luck!!! :-)
>>>>>
>>>>>At Fri, 6 May 2005, kristen wrote:
>>>>>>
>>>>>>hi i used to be on here a couple years ago then i just got out of it
>>>>>>which im sorry to say. but whenever i need advice i always come back
>>>>>>here and im thankful this is still here.
>>>>>>
>>>>>>anyways. ive been noticing that my pain is worse when i have to poop.
>>>>>>not much worse but worse enough. i was just in the bathroom and when i
>>>>>>wiped i thought it was just blood from my period at first. then i
>>>>>>realized it wasnt. and when i looked i really knew it wasnt. i just
>>>>>>dont know what to do. im in the middle of changing my dr again because
>>>>>>he hasnt really made a go at anything besides the bcp last year that
>>>>>>ended up giving me a PE. i just need help. i really dont know what to
>>>>>>do. so any info would be great.
>>>>>>
>>>>>>--
>>>>>>kristen helmer
>>>>>>
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