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Re: Bladder changes and very little spotting with cramps!
From: anonymous@obgyn.net
Sun May 1 03:40:09 2005
Hi everybody,
(actually I should have put poor souls with this terrible problem...)
I have been writing from Europe, but my trouble is more or less the same
as yours. I had laparatomy 1.5 years ago beacouse of being diagnozed
wtih endometriosis in my bladder. As operation could not really mean a
solution for my problem (becouse my doctor did not want to remove more
han half of my bladder, which was covered in the endo isles, I was given
hormone therapy for six month after the operation.Actually I have had
similar symptoms you have for about 5 years,but after the hormone cure
most of my pains has just disappeared. Earlier I had unbearable
menstruation related cramps - actually ever since my first period
appeared - plus as I mentioned, about 5 years ago the urinary pains
started, which sort of killed me. After the hormone thing the teribble
pelvic pains when urinating (around my period, for 1 day before, and for
about 13 days after the first day of my period)came back, not the very
same uncontrollable feeling but still a very uncomfortable one, however
the cramps are just a thing of the past fortunatelly. Now I have been
trying to get pregnant for 4 months with little success so far, but I'm
hoping (and so does my doc) that I will be able to have a baby without
IVF.
Are there any other girls with bladder endo who could get pregnant and
have a baby? If I made it out correctly, Bev, you did it, didn't you?
I would be very grateful if you would reply and give me some hope in
this project.
Thank you so much
Emoke
At Fri, 29 Apr 2005, Stacie wrote:
>
>Thanks Bev,
>
>I'm so sorry to hear of all you have been through, but very glad to hear
>of your natural pregnancies! What a blessing!! I hope you are feeling
>well. i'm not too familiar with the add-back that you were talking
>about. I do hope everything works out for you. I am still experiencing
>bladder and bowel problems and can't see a new doctor until I get a hold
>of my surgery records. I had 2 previous laps done. I'm really wanting
>to see Dr. Albee in Atlanta, so we'll see. I will keep you in my
>thoughts and prayers. Keep us updated on your condition and
>we'll be here for support!!
>
>Take care and God Bless!
>Stacie
>
>At Fri, 29 Apr 2005, Bev wrote:
>>
>>Dear Stacie,
>>
>>I was diagnosed with endometriosis of the bladder in 1994. I had had
>>symptoms for about 3 yrs when I finally got my GP to refer to the
>>gynaecologist. The symptoms I had would begin a couple of days before
>>my period and last until a
>>couple of days after my period had ended. Each time I passed urine the
>>pain was excruciating, I emptied my bladder ok but it felt like someone
>>was twisting a knife inside me each time and in turn it would make the
>>period pains twice as bad. I never spotted from my bladder though. I
>>had eventually had surgery to remove a fifth of my bladder in March '94.
>>I then went on to have two children naturally but about three years ago
>>my problems began to return. In 2004 I had my right fallopian tube,
>>ovary and appendix removed following 'endo', my bladder was left alone
>>but my surgeon tells me the endo is there and is severe. I am now on
>>zoladex and have been for just coming up to a year, have just started
>>add-back therapy but I'm concerned about the long term issues with this
>>but I've been told there are no other options for me right now. Hope I
>>have been able to help you and that you get something sorted soon. GOOD
>>LUCK. Please let me know if you have any advice for me.
>>Thanks Bev Glynn
>>
>>Fri, 1 Apr 2005, Stacie wrote:
>>>
>>>That was my first thought too, but I've been tested for that and there
>>>is no infection. It doesn't burn or anything. It's just very weird!
>>>Thanks for your reply though! Sorry to hear you keep getting them! I've
>>>had them before, really painful!
>>>
>>>--
>>>Stacie
>>>
>>>At Thu, 31 Mar 2005, Julie wrote:
>>>>
>>>>Well I have endo. and in the last year I have had two Bladder
>>>>Infections. My symptoms sound exactly like yours. I would feel like I
>>>>had to pee really bad and go and a little would come out. After two
>>>>days of this I started to spot what appeared to be drops of blood but
>>>>not from my vagina. So if it starts to burn a little it is definitely a
>>>>bladder infection.
>>>>
>>>>At Thu, 31 Mar 2005, Stacie wrote:
>>>>>
>>>>>HI ladies!
>>>>>
>>>>>Over the last month or so I have been experiencing some bladder and
>>>>>bowel changes.
>>>>>I've always been constipated, but it has gotten worse and every now and
>>>>>then I'll get diarrhea when I have bad cramps. My bladder issue is odd
>>>>>too. It feels like I've got a full bladder almost all the time and when
>>>>>I go to the bathroom only a little comes out! Over the last week all of
>>>>>these symptoms have gotten worse especially the bladder. AND to top it
>>>>>off I've been spotting, I mean a very little amount, to the point where
>>>>>I don't know if it's in my urine or what. Has anyone had this
>>>>>experience when they've found endo on your bladder and bowel? What were
>>>>>your symptoms? Thanks so much!
>>>>>Stacie
>>>>
>>>>--
>>>>Julie juliechristie_03@yahoo.com
>>>>
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