ENDO Messages for April, 2005: Re: catamenial pneumothorax

Re: catamenial pneumothorax

From: anonymous@obgyn.net
Sat Apr 30 21:50:50 2005

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At Tue, 20 Apr 2004, Chris wrote: >
>Hi, I don't know anything about this condition, but someone posted this
>website recently and I think it has to do with catamenial pneumothorax
>(if that has to do with having endometriosis on the diaphram). Thought
>you might find it
>interesting...http://members.aol.com/wldflwr716/page4/wildflow.htm.
>Chris
>
>At Tue, 20 Apr 2004, Suzanne wrote:
>>
>>Hi,
>>I am a 35 year old female who has the diagnosis of catamenial
>>pneumothorax. I am curious to know how your condition is progressing
>>and any other women you have found with this problem and their
>>experiences. Thanks
>>
>>At Thu, 5 Feb 2004, anonymous@obgyn.net wrote:
>>>
>>>Hey! This is the first time I've posted too. I am a 19 year old female
>>>with a history of catamenial pneumothorax and a diagnosis of thoracic
>>>endometriosis. Every once in a while I'll find a posting online from
>>>someone with the same problems, but as anyone with the condition
>>>knows--it is rare...and annoying. I had my first collapsed lung when I
>>>was 14 and have had a total of 9 hospital admissions for pneumothoraces,
>>>4 lung surgeries and countless other episodes that have resolved on
>>>their own. Doctors are stumped by this problem, so finding others and
>>>talking about it seems to be a last resort. Anyone interested in the
>>>details of my medical history or surgeries feel free to email me at
>>>Mego348@temple.edu Thanks!
>>>
>>>At Fri, 28 Feb 2003, anonymous@obgyn.net wrote:
>>>>
>>>>At Thu, 13 Dec 2001, Abby wrote:
>>>>>
>>>>>Hi! This is the first time I've posted. I'm 26 years old and have had
>>>>>three collasped lungs in the past year. Two have required chest tubes,
>>>>>I've had thoracoscopy and also chemical pleurisy. Even though all three
>>>>>began on the day I started my period, some of my doctor's will not say
>>>>>for sure that it's endometriosis. It's been a rough year. I'm very
>>>>>interested in finding someone I can talk to who's lived through this.
>>>>>Maybe even someone who's found treatment that worked! My doctor right
>>>>>now want's to put me on Lupron, but I'm horrified by the stories I've
>>>>>heard. It's nice to finally find people who at least know what this
>>>>>is!!! I've love to hear from anybody, with any kind of experience. Thank
>>>>>you so much.
>>>>Hi. I just came across this web site reading all that I can about catamenial pneumothorax. It doesn't seem so rare after all the accounts I've read. I've had 6 pneumos in the past year--2 before that before I knew what they were. They always coincide with my period. This past one was my biggest--40%. None of my doctors ever told me that the tamoxifen I've been taking after breast cancer almost 2 years ago might be a consideration since it stimulates the endometrium to grow. I've had to figure out the whole catamenial thing by myself by going on-line. I've never had treatment, just chest x-rays. I'm trying to decide if I should do anything besides go off of my tamoxifen. I'd like to know if anyone had success with either surgery or hormones, and if there were any bad side effects from either. I've heard there may be chroinic pain after surgery.
>>>>Hi it is so nice to hear that I am not the only person in the world that
>>>>had the same problem. I had two collasped lunges this in the past six
>>>>month's. 1 chest tube and then surgery. I am recovering from
>>>>thorasastic surgery on my right lung.
>>>>
>>>>My OB/GYN introduced me to Lupron a few month's ago and I was sopossed
>>>>to start it last month, right when my lung collasped again. I was very
>>>>frustrated. I do want to use Lupron, however, I can't until I heal from
>>>>my surgery.
>>>>
>>>>What luck we have huh :). I am so glad you wrote, I thought I was the
>>>>only person in the world with this condition. Please stay in touch.

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