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Re: catamenial pneumothoraxFrom: anonymous@obgyn.netSat Apr 30 21:30:41 2005
At Tue, 20 Apr 2004, Chris wrote: > >Hi, I don't know anything about this condition, but someone posted this >website recently and I think it has to do with catamenial pneumothorax >(if that has to do with having endometriosis on the diaphram). Thought >you might find it >interesting...http://members.aol.com/wldflwr716/page4/wildflow.htm. >Chris > >At Tue, 20 Apr 2004, Suzanne wrote: >> >>Hi, >>I am a 35 year old female who has the diagnosis of catamenial >>pneumothorax. I am curious to know how your condition is progressing >>and any other women you have found with this problem and their >>experiences. Thanks >> >>At Thu, 5 Feb 2004, anonymous@obgyn.net wrote: >>> >>>Hey! This is the first time I've posted too. I am a 19 year old female >>>with a history of catamenial pneumothorax and a diagnosis of thoracic >>>endometriosis. Every once in a while I'll find a posting online from >>>someone with the same problems, but as anyone with the condition >>>knows--it is rare...and annoying. I had my first collapsed lung when I >>>was 14 and have had a total of 9 hospital admissions for pneumothoraces, >>>4 lung surgeries and countless other episodes that have resolved on >>>their own. Doctors are stumped by this problem, so finding others and >>>talking about it seems to be a last resort. Anyone interested in the >>>details of my medical history or surgeries feel free to email me at >>>Mego348@temple.edu Thanks! >>> >>>At Fri, 28 Feb 2003, anonymous@obgyn.net wrote: >>>> >>>>At Thu, 13 Dec 2001, Abby wrote: >>>>> >>>>>Hi! This is the first time I've posted. I'm 26 years old and have had >>>>>three collasped lungs in the past year. Two have required chest tubes, >>>>>I've had thoracoscopy and also chemical pleurisy. Even though all three >>>>>began on the day I started my period, some of my doctor's will not say >>>>>for sure that it's endometriosis. It's been a rough year. I'm very >>>>>interested in finding someone I can talk to who's lived through this. >>>>>Maybe even someone who's found treatment that worked! My doctor right >>>>>now want's to put me on Lupron, but I'm horrified by the stories I've >>>>>heard. It's nice to finally find people who at least know what this >>>>>is!!! I've love to hear from anybody, with any kind of experience. Thank >>>>>you so much. >>>> >>>>Hi it is so nice to hear that I am not the only person in the world that >>>>had the same problem. I had two collasped lunges this in the past six >>>>month's. 1 chest tube and then surgery. I am recovering from >>>>thorasastic surgery on my right lung. >>>> >>>>My OB/GYN introduced me to Lupron a few month's ago and I was sopossed >>>>to start it last month, right when my lung collasped again. I was very >>>>frustrated. I do want to use Lupron, however, I can't until I heal from >>>>my surgery. >>>> >>>>What luck we have huh :). I am so glad you wrote, I thought I was the >>>>only person in the world with this condition. Please stay in touch.
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