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Re: catamenial pneumothorax
From: anonymous@obgyn.net
Thu Apr 28 21:21:23 2005
I am also interested in hearing from anyone else diagnosed with
Catamenial pneumothorax. I really need to talk about it. thanks.
At Thu, 28 Apr 2005, anonymous@obgyn.net wrote:
>
>Hi. I read abby's posting and am interested in communicating with her.
>I have had 2 lung collapses and similar treatment. my doctor also
>recommends lupron treatment and I have the same fears. I would like to
>know what did you ultimately decide to do and with what results. thanks.
>
>At Wed, 7 Jul 2004, Mindy wrote:
>>
>>May I ask you two, what symptoms you had prior to this
>>occuring....meaning the location of pain. I am having endo pain under
>>my right rib cage on my right side and it radiates up to my shoulder.
>>When I breath, burp, hiccup, the sharp pain gets worse. It concerns me
>>that the sharp pain worsens as I breathe in. I have had stage 4 endo
>>removed and have had no pain where it was removed. Now three years
>>later it's now this high up.
>>
>>Thank you,
>>Mindy :-)
>>
>>At Tue, 6 Jul 2004, anonymous@obgyn.net wrote:
>>>
>>>At Thu, 13 Dec 2001, Giovanna wrote:
>>>>
>>>>Abby,
>>>>Sorry (maybe I'm dumb)but I didn't understand what's the relation
>>>>between your past problems and a probable endo.Is it ONLY because it all
>>>>started on the day of your period?
>>>>Do you have any endo symptoms?
>>>>
>>>>At Thu, 13 Dec 2001, Abby wrote:
>>>>>
>>>>>Hi! This is the first time I've posted. I'm 26 years old and have had
>>>>>three collasped lungs in the past year. Two have required chest tubes,
>>>>>I've had thoracoscopy and also chemical pleurisy. Even though all three
>>>>>began on the day I started my period, some of my doctor's will not say
>>>>>for sure that it's endometriosis. It's been a rough year. I'm very
>>>>>interested in finding someone I can talk to who's lived through this.
>>>>>Maybe even someone who's found treatment that worked! My doctor right
>>>>>now want's to put me on Lupron, but I'm horrified by the stories I've
>>>>>heard. It's nice to finally find people who at least know what this
>>>>>is!!! I've love to hear from anybody, with any kind of experience. Thank
>>>>>you so much.
>>>
>>>>>hi my name is daw and i have five children and have had cp since 1999. i have had a thoracostomy and talc poudage. since that i have suffered many more collapses and needed a total of 7 chest tubes. i have had hormone therapy that was unsuccessful and even caused more problems that i still deal with. because this is sooo rare it is hard to find qualified doctors to care for me. i live with much stress as a result of this!
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