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Re: Lupron - Is it worth itFrom: Jen (anonymous@obgyn.net)Thu Apr 28 01:17:12 2005
At Tue, 26 Apr 2005, Veronica wrote: > >I appologise to those i offended - but those of us who have had the >horrible experience feel judged as well - every day - no one believes >you - doctors, friends and even other endo patients - that was the point >of my message - because obviously i'm having a hard time and having a >nervous breakdown - so sorry -i'm DEFINATELY not on a high horse and >glad to hear people are doing well. I completely understand your point of view. It is why I also stated that although the Lupron worked for me, I know it isn't the case for everyone. I've been through "Endo Hell" for nearly 20 years. I also can not have children, so that "pregnancy cure" was never an option for me. Despite the side effects with the Lupron, it was the first time in SOOOOOO long that I felt like a "normal" human being. What amazed me most was how good it felt to not have the constant pain. I had forgotten what that was like. Lupron gave that "normal" feeling back to me. It is why I consider myself lucky. To experience nearly 7 months of no pain? It was a godsend. I also considered myself lucky because I didn't have the terrible time that many people do have with Lupron. I also understand that the Lupron was a gamble. But it was a gamble I was willing to take. I am happy that I wasn't scared off by the things I had read about it - but I am SO gald that I had the warnings from those with bad experiences. I went in with eyes wide open. It isn't a "cure". I am hoping to at least prolong the good effects of the Lupron for as long as possible. I don't honestly know where I'll go or what I will do when Lupron is no longer an option for me. I've been there / done that with so many treatments, surgeries, etc. Each had their own side effects - and none of the relief that Lupron offered ME. I think that when somebody comes here to ask for other people's exeriences with any form of treatment that they understand that it is an individual thing. And I expect there to be both sides presented - pro and con - with ANY treatment. I would never tell someone that they SHOULD be on Lupron - and I hope nobody mistook my post that way. I can only offer my experience - which in this case was very positive. But I would also hope that nobody would tell me NOT to try a treatment - but would instead share their experiences - good or bad - so that I can make my own choice. I am so sorry you feel judged and feel like people don't believe you. I really do - I've been there - and it is one of the worst feelings in the world. As if the pain isn't enough, you then have to deal with feeling "crazy" (I did anyway). Plus it just feels like you're completely alone. It is a horrible burden to carry. I do hope the best for you - and everyone - that struggles with this.
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