ENDO Messages for April, 2005: Re: How do you talk to a doc about stronger pain meds?(long post, sorry)

Re: How do you talk to a doc about stronger pain meds?(long post, sorry)

From: just_niki (anonymous@obgyn.net)
Wed Apr 27 16:04:02 2005

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I too, had a hard time with getting strong enough pain meds. You say that you didn't take the pain meds prescribed after a root canal because it was nothing compared to the pain you suffer because of the endo. You need to relay this to the doctor. Don't bring up your brother's death, small town or no. You are a seperate entity from your brother, and deserve to be treated as such. If you are determined to ride this out through your reproductive years, then you need to be aware that the pain does not get better, it gets worse. I am sorry to relay that. I have one child, and wanted more, but am starting to waver. You are blessed that it is only one week of pain. That is encouraging, at least. The most awful thing about this pain is that nobody understands how bad it is, unless they have been there. I went to the doctors a few weeks ago, and flat-out told her that I was going to take the bridge if she did not do something to take the pain away. That worked. It was the truth, it was how I felt, and it got the message across. Just because a person specializes in gynecology, does not necessarily mean they UNDERSTAND the pain that some of these diseases cause.You need to convey to this doctor exactly how bad it is. If it takes telling him that you would rather die than live with the pain, then tell him that. Keep telling him that. And don't let them back you into having a hysterectomy if you don't feelready for it. Express the fact that you would like to concieve. There are ways of doing that. My neighbor knows a lady that had to be fertilized in vitro because of her endo, but she did manage to give birth twice, before she gave in to a hysterectomy. If it turns out to be impossible, there is always adoption. But unless you stand up from day one and tell your doctor what you want, they will never know to give it to you. Just go in there and pretend that he doesn't even know about your brother. Morphine is a far cry away from darvocet. and there is a big difference between use and misuse of a drug. Point that out if it comes down to it. Express that you are not a pill junkie. I know my posts are long. I'm sorry. I just get so angry when I hear a doctor that won't prescribe meds when they are needed. Mine tried to give me motrin. May as well have been sugar pills. I am now on percocet, and they aren't much better, but they offer some degree of relief. Good luck, and give 'em heck. Niki

At Wed, 27 Apr 2005, S.S. wrote: >
>I have an odd problem. I live in a small town where everyone knows
>everyone else and all of them know my older brother died of a morphine
>overdose after 20+ yrs of addiction. I am 34 and have been taking pain
>medication (darvocet) since I was 18 for endo. I tried every hormone
>therapy out there, birth control, other stronger hormones which stop
>periods completely and my body just can't handle them. I'll die before
>I let any doc put me on another hormone!!
>
>So last year, my endo took a turn for the worst, spreading into back and
>leg pain as well. Luckily, I only suffer for about one week during my
>period, but I need stronger medication than darvocet during then. I
>have talked to my regular doc and my gyn, but both have said no due my
>family history. I have never had an addiction problem, but I do
>understand their fear because I saw what pain meds did to my brother and
>how he died. But on the other hand, I can't live like this anymore.
>
>There is another doctor I am going to see, but how do I talk to him
>about pain meds when he knows what happened to my family, too? I have
>been to several different specialists and had 2 surgeries and all agree
>that at this point, a hyterectomy is the only option I have left. I
>just got married and to me that is not an option.
>
>I have tried Ultram and it does not help. I was on Vioxx, then Bextra,
>in addition to the darvocet and now those meds are gone. I do not know
>what to do. I am desperate. I have learned to live with the fact I
>have endo, I can live with being so sick for one week a month, I have
>finally worked my life out to deal with those issues. But I can't deal
>with this pain, and I am nervous about talking to a new doctor about it.
>I am so afraid he will say no, too.
>
>Has anyone else experienced this? Any suggestions? (I had a root canal 2
>months ago and didn't take the hyrdocodone they gave me for that, even
>though it HURT it was nothing compared to a period, and saved it for my
>cramps. It worked pretty well. I am not seeking total pain relief, I
>don't think that's possible, just enough medication to stop the vomiting
>and crying. I think you all know what I mean!!)

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