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Re: First post...From: Sara' (anonymous@obgyn.net)Wed Apr 27 13:19:07 2005
At Tue, 26 Apr 2005, just_niki wrote: > >I had my first laparoscopy today. My doctor went in because I have been >having >severe abdominal pain over the past few months, irregular periods, and >have >been swinging back and forth between severe constipation and chronic >diarhea. I have had two sonograms, that have shown what seemed to be >nothing more than a small cyst. I was told that it was very unlikely >that this cyst was an unlikely cause of the pain I have been >experiencing. I have had periodic bouts with pain since I became >pregnant with my son, 5 years ago. I was always told it was "just a >cyst". I gave up going to the doctors for help after hearing that >one too many times, and being offered nothing to cope with the pain. >Finally, it got to be too much. > >Well, to make a long story short, when they went in today, all that they >found, was a small fibroid, that is not attatched to anything. >The doctor told my Husband and my Mother, who were both present at the >time of my procedure, that she suspects taht I may have a form of >endometriosis taht is actually located on the inside of my uterus. The >options that she explained to them, from what they have told me, are >these... 1) she can put me on birth control (it seemed to control the >pain in the past, but I gained weight,and >being that I am recovered from an eating disorder, I was not keen on >that idea) >2) She can put me on a form of hormone therapy that throws me into a >false menopause (the drawback here being that I suffer from depression, >and as she >put it, it throws some depressed women over "the edge"... not good >being that I have a son that needs me and a full time job that I cannot >afford to lose) >3) I can have the uterus removed and studied or 4) I can get the films >form the > procedure, and my medical records and get a second opinion. > >I am disturbed by the options, as none of them seem very promising, save >the last... we have a very good Womens Hospital near here, and I wonder >if they may have a better understanding of what is going on. > >I am under the assumption, from all taht I have read and heard on endo, >that >the doctor is on the right track with this. > >I know that I am very blessed to have been able to concieve and carry to >term >with my son. I haven't been able to do so since. I have had a few >positive home >pregnancy tests since his birth,and a miscarriage before I got pregnant >with him. I always end up losing within the first trimester. I have >always let this go, reminding myself as always that I am lucky to have >the child that I do, and >that my husband doesn't really want anymore children anyhow. But as I >am >getting older, the pain has gotten worse, and my feelings about having >more children has changed. I have actually begun to resent myself and >my Husband for all of this. Him for insisting we not have any more >kids, and myself for going along with it, although I wanted to a lot >sooner. I am thinking that I have >just lost out on the whole dream of having a brother or sister for my >son. He >has a half-sister, and the fact that my Husband has more than one child, >but he denied me what could have possibly been the last chance at having >another >child, years ago, slays me. > >This hurts so bad. > >I guess that I won't know anything for certain unless my uterus is >actually >taken out, and I really don't want to do that. I wish that there was >another >way to diagnose one way or the other. I am stuck between a rock and a >hard place. I am wondering...should I get this tore out,and studied, or >leave it in and hope that it isn't true? I am guessing that if that >really is what is going on, then I am probably infertile by now anyhow, >especially judging by my track >record. > >My aunt had endo, and ended up having a hysterectomy because of the >pain. My >mother had severe pain for years, and had a hysterectomy a few years >back.The >doctor never did tell her what the problem was, but it was in her >uterus, and as she was closing in on menopause by the tine she got this >taken care of, she >didn't care to know, unless it was malignant. A biopsy showed that it >wasn't. We have since deduced that was what she had. My cousin has >endo, and she has been controlling it with birth control since fifteen. >My grandmother had symptoms that sound a lot like endometriosis. An >aunt on my fathers side of the family has it. > >I am going crazy. I just want the pain to stop. I was wondering if >anyone else >out there was told that they have endometriosis inside their uterus, how >common or rare this is, and what they chose to do about it. I am at a >loss. I am a >hair away from losing my job, because I have lost so much work. I have >been on pain pills for over a month, because I couldn't hack it anymore, >and I am so > cranky because of all of this that it is straining my marriage, and my >relationship with my son and stepdaughter. Everyone avoids me on the >weekends, including my parents, and extended family, because I am just >so miserable. >I'm sorry this is so long but I just really have been holding a lot of >this inside for way too long. I feel like I am going to burst. I hope >you guys don't mind me lurking for answers. Hi Niki, I assume you are talking about adenomyosis.Ask your Dr.about a MRI with contrast of your pelvis. I had this done 2 years ago to rule out adenomyosis. It's not 100% - only hysterectomy diagnoses it 100% but adenomyosis does show up on MRI when done thoroughly by a qualified technician. It is expensive so some Doc.'s don't push too hard to have it done, but it will give you an answer and it's non-invasive.I hope this helps some. Sara'
-- Sara'Fleming
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