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Re: First post...

From: anonymous (anonymous@obgyn.net)
Wed Apr 27 12:04:03 2005


Fibroids can cause pain, they can appear, if in the right place and the right size, to be 'just a cyst' but obviously they are not. Fibroids can be removed without removing the uterus.

Adenomyosis is NOT a form of endometriosis. It's not related to endometriosis at all and involves completely different circumstances though the symptoms can be similar. Adenomyosis is a thickening of the underlying lining of the uterus. This is caused by uterine trauma such as pregnancy and childbirth. It will not get better on it's own nor will birth control pills have any benefit. IF you have adenomyosis it will get worse over time (could be slow or could be fast) further pregnancies will make it get worse faster. The only 100% way to diagnose and treat adenomyosis is with a hysterectomy. You can expect your periods to become increasingly painful and heavy with prolonged periods of bleeding, your abdomen will swell and you will appear to be up to about 4 months pregnant, you will experience low back pain with standing and walking for more than just a few minutes at a time and you will be unable to be an active wife and mother. Intercourse with your husband will eventually become unbearably painful and the depression and resentment you feel now will be about 10,000,000 times worse. This progression could take years or months, there is no way to predict. This is IF you have adenoymosis... if you don't then you can completely ignore this paragraph.

Birth control pills often cause weight gain but anyone taking them does have to take a certain amount of responsibility for that. Anyone on certain medications knows that they sometimes have to make dietary changes, either increasing or decreasing the total calorie count or avoiding certain foods. Women on birth control pills should limit all of their carbohydrate intake to whole grain only and avoid the higher sugar content of white breads, pastas and baked goods. You may also have to increase your exercise a little bit.

So, my advice to you is this: #1 Get a second opinion, even a third opinion. You should always seek a second opinion whenever a surgery is offered as a treatment to something that is not 100% diagnosed. You are not in a life-threatening situation so you can take your time.

#2 Prescription strength ibuprofen usually helps with the pain. Birth control pills do not. (with adenomyosis) Certain women just simply do not tolerate any form of artificial hormone at all, including birth control pills. If you have blood type A+ you should not take birth control pills anyway. (Lots of evidence available about why if you search through Google)

#3 A lot of the depression and resentment you are feeling now is coming from the emotional stress of not knowing what's going on, thinking and fearing the worst, and the depression that sets in when you are in constant pain for reasons not completely known. You seriously need to work on this for your own sake and the sake of your family. How can you expect to give your son a happy home if you view your husband with such negative and hostile feelings? Once you get your pain under control and know a bit more about what's going on you may feel less angry but you still should seek out some counselling to help you deal with all of this overwhelming stress.

#4 Stop blaming yourself and your husband because you only have given birth to one child. Stop feeling like you're being cheated out of something. Things happen they way they happen for reasons that are not always obvious to us. Perhaps there is a reason why you had such a difficult time in having the child you do, perhaps there is a reason why you are as yet unable to have another. Stop trying to force things that may not be meant to be and learn to enjoy what is in front of you because it may be all that you get.

#5 Allow yourself some time when you feel really bad and don't subject the rest of your family to it, go off by yourself and just have some calm and quiet, read a book, take a walk, soak in the tub, whatever makes you feel better. Let your husband, son and anyone else know, "I don't feel good right now and I need some quiet so I'm going to go over here, please don't bother me unless there is a fire or someone is bleeding. I love you."

#6 This is a biggie - let your son do something for you that brings you comfort. It will bring him comfort and reassurance as well and will help reinforce the compassion that children are born with but lose too soon in today's violent and disconnected world. Let him read a story to you, bring you a glass of water, a pillow, a blanket, something.

Good luck to you, I hope you get some answers and peace of mind soon.

At Tue, 26 Apr 2005, just_niki wrote: >
>I had my first laparoscopy today. My doctor went in because I have been
>having
>severe abdominal pain over the past few months, irregular periods, and
>have
>been swinging back and forth between severe constipation and chronic
>diarhea. I have had two sonograms, that have shown what seemed to be
>nothing more than a small cyst. I was told that it was very unlikely
>that this cyst was an unlikely cause of the pain I have been
>experiencing. I have had periodic bouts with pain since I became
>pregnant with my son, 5 years ago. I was always told it was "just a
>cyst". I gave up going to the doctors for help after hearing that
>one too many times, and being offered nothing to cope with the pain.
>Finally, it got to be too much.
>
>Well, to make a long story short, when they went in today, all that they
>found, was a small fibroid, that is not attatched to anything.
>The doctor told my Husband and my Mother, who were both present at the
>time of my procedure, that she suspects taht I may have a form of
>endometriosis taht is actually located on the inside of my uterus. The
>options that she explained to them, from what they have told me, are
>these... 1) she can put me on birth control (it seemed to control the
>pain in the past, but I gained weight,and
>being that I am recovered from an eating disorder, I was not keen on
>that idea)
>2) She can put me on a form of hormone therapy that throws me into a
>false menopause (the drawback here being that I suffer from depression,
>and as she
>put it, it throws some depressed women over "the edge"... not good
>being that I have a son that needs me and a full time job that I cannot
>afford to lose)
>3) I can have the uterus removed and studied or 4) I can get the films
>form the
> procedure, and my medical records and get a second opinion.
>
>I am disturbed by the options, as none of them seem very promising, save
>the last... we have a very good Womens Hospital near here, and I wonder
>if they may have a better understanding of what is going on.
>
>I am under the assumption, from all taht I have read and heard on endo,
>that
>the doctor is on the right track with this.
>
>I know that I am very blessed to have been able to concieve and carry to
>term
>with my son. I haven't been able to do so since. I have had a few
>positive home
>pregnancy tests since his birth,and a miscarriage before I got pregnant
>with him. I always end up losing within the first trimester. I have
>always let this go, reminding myself as always that I am lucky to have
>the child that I do, and
>that my husband doesn't really want anymore children anyhow. But as I
>am
>getting older, the pain has gotten worse, and my feelings about having
>more children has changed. I have actually begun to resent myself and
>my Husband for all of this. Him for insisting we not have any more
>kids, and myself for going along with it, although I wanted to a lot
>sooner. I am thinking that I have
>just lost out on the whole dream of having a brother or sister for my
>son. He
>has a half-sister, and the fact that my Husband has more than one child,
>but he denied me what could have possibly been the last chance at having
>another
>child, years ago, slays me.
>
>This hurts so bad.
>
>I guess that I won't know anything for certain unless my uterus is
>actually
>taken out, and I really don't want to do that. I wish that there was
>another
>way to diagnose one way or the other. I am stuck between a rock and a
>hard place. I am wondering...should I get this tore out,and studied, or
>leave it in and hope that it isn't true? I am guessing that if that
>really is what is going on, then I am probably infertile by now anyhow,
>especially judging by my track
>record.
>
>My aunt had endo, and ended up having a hysterectomy because of the
>pain. My
>mother had severe pain for years, and had a hysterectomy a few years
>back.The
>doctor never did tell her what the problem was, but it was in her
>uterus, and as she was closing in on menopause by the tine she got this
>taken care of, she
>didn't care to know, unless it was malignant. A biopsy showed that it
>wasn't. We have since deduced that was what she had. My cousin has
>endo, and she has been controlling it with birth control since fifteen.
>My grandmother had symptoms that sound a lot like endometriosis. An
>aunt on my fathers side of the family has it.
>
>I am going crazy. I just want the pain to stop. I was wondering if
>anyone else
>out there was told that they have endometriosis inside their uterus, how
>common or rare this is, and what they chose to do about it. I am at a
>loss. I am a
>hair away from losing my job, because I have lost so much work. I have
>been on pain pills for over a month, because I couldn't hack it anymore,
>and I am so
> cranky because of all of this that it is straining my marriage, and my
>relationship with my son and stepdaughter. Everyone avoids me on the
>weekends, including my parents, and extended family, because I am just
>so miserable.
>I'm sorry this is so long but I just really have been holding a lot of
>this inside for way too long. I feel like I am going to burst. I hope
>you guys don't mind me lurking for answers.




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