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Re: General questions

From: Rachel (anonymous@obgyn.net)
Wed Apr 27 09:10:03 2005


Marie, don't put off going to the doctor any longer! And, when you do go, don't be suprised if they don't believe you, or tell you the pain is normal. It's takes an American woman an average of 10 years to be diagnosed. It took me 7. Don't give up. Also, my mom was the same way yours was. I knew for years something was wrong with me. You are in charge of your health, not your mom, or your doctors...it's you! Don't forget that.

About the birth control...Ortho-tricyclen is a high estrogen pill. Endometriosis feeds on estrogen and produces its own, so if you have endo, you are already estrogen dominant, which makes the pain and periods horrible. If you have endo, you need a laparoscopy to be properly diagnosed, and have any endo that is visible removed, and a low estrogen/high progestin pill will help to keep the endo from returning, however it won't cure all the pain. Most docs have us who take the pill take it continuously so we stop our periods for several months, or permanently.

Marie, the reason you need to start getting treated, if you do have endo, is that endo can make you infertile, especially if you go too long without treatment. The pain of endo causes inflamation, which causes adhesions (scar tissue) which can bind your organs together. Over time, when adhesions get more plentiful, they can actually freeze together your organs, and they can't free them...then you'd be facing total hysterectomy.

I don't mean to scare you, but it is very important that you get treated. The sooner you seek help, the better off you'll be. Endo CAN run in families. Your mom's denial could be from her not wanting you to go through what she did, but unfortunately, that won't help you, or make the problem go away. Don't be scared. Call around to several ob/gyn's and ask if they have an endo specalist, and make and appointment, and tell them EVERYTHING! Make notes before you go so you don't forget anything. Prepare yourself though...they may do an ultrasound right away, and if they suspect you have endo, they may want to schedule surgery as soon as possible. If they do, don't be afraid. Go straight home and research everything you can about endo, and treatments. Become an expert so you can be in charge.

Just a side note...I learned a few months ago that vigorous exercise most days of the week will cause the body to produce less potent estrogen. I started a walk/run program, and my pain is mostly gone! :)

--
Rachel

At Wed, 27 Apr 2005, Marie wrote: > >I have just some general questions about endometriois. I've suspected >that I've had it for some time, but I have yet to get the guts to go to >a doctor to ask about it. My mother had it pretty severe and keeps >telling me that I couldn't possibly that it because its not as bad as >her. However after talking to a girl at work and one of my friends moms >who have both been diagnosed I've noticed some of my symtoms seem very >similar to theirs. I'm just wondering about some of your thoughts on >this. I've had painful periods since I was 10. Often I would vomit >from the pain. My doctor put me on ortho-tricyclen to help get rid of >my cramps and make my periods lighter, instead the pill has only made my >cramps worse (and last 2 weeks instead of just 1) and made my periods >worse. I talked to my friend at work who recently had to have one of >her fillopian tubes removed b/c of endometriosis and she said the exact >same thing happened to her. I've noticed somtimes my paid can be so >severe that I nearly pass out. I've known this isn't normal, but like I >said my mom seemed to be denying that I had a problem so I never got the >medical attention I should have. Any insights?




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