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Re: Lupron Hell...... Can Anyone Relate?From: Ally (anonymous@obgyn.net)Fri Apr 22 11:07:13 2005
At Wed, 20 Apr 2005, JAMIE wrote: > >At Wed, 20 Apr 2005, anonymous@obgyn.net wrote: >> >>Hi Jill, my name is danielle and i am also new to this site. i have >>been reading some of the postings and everyone seems so nice (for a >>change). I tried lupron twice when i was younger. All you have to >>remember is that Lupron just brings early menopause times 10 ( sometimes >>X20). Tell that to your significant other (they seem to understand that >>more than hormone fluctuation). i find my boyfriend gets a glassy eyed >>stare when i try to explain it. I am 22 and have had a hysterectomy (at >>age 18). Let me tell all you ladies out there: It is not a cure! Just >>last month i had to go in for ANOTHER Lap! And yes there were giant >>globs of endo every where. This disease is not fully understood because >>it is hard to find people and doctors who care. We have all grown up in >>a world where women are meant to have pain. You are supposed to deal >>with it! Even some of you close girlfriends would give anything to have >>you stop whining. This is all rubbish, but even in the 21st century we >>are plaqued by 18th century ideals. I hated Lupron and i as stated in >>another post it's not the only treatment. Ever since the dawn of time >>doctors have been treating endo with Lurpon. It seems to work for some >>but at what cost? If the pain doesn't drive you insane then the >>medication will. That is why i thank god for chat forums because there >>is someone out there going crazy with you. I find that the strongest >>women i meet have endo. And it is about time i joined a chat group to >>share my experiences and be with other women who are trying to survive >>as well. Maybe i will finally heal:). Thanks. Danielle >>At Sun, 10 Apr 2005, Jill wrote >>> >>>Hi Ladies, >>> >>>I just wanted to say thanks for being supportive. Keep the stories >>>coming....they really help! It would be nice if I could check-out of my >>>life for the next few months and go away by myself. Some times it feels >>>so unfiar that we have to go through this crap. I guess no one ever >>>expects this, but I just imagined things to be different in this "area". >>>Thanks for listening....... >>> >>>-- >>>Jill >>> >>>At Sun, 10 Apr 2005, JAR wrote: >>>> >>>>Hey Jill, >>>>I can relate toyour pain. I'm currently on my six shot of my second >>>>round of Lupron. The best advice I can give you is to realize that you >>>>truly are a different person when on Lupron. I find myself being crazy >>>>and my husband often just runs me a bath when I'm being crazy. After a >>>>few minutes I'm usally crying about how sorry I am. Lets see here are a >>>>few things that have gotten me through this round of Lupron a little bit >>>>better than the last time: >>>>1. Keep a spray bottle with a fan on your nightstand. It helps with >>>>hot flashes at night. >>>>2. Dress in layers >>>>3. Keep away from alcohol. I have found my rages and hot flashes are >>>>heightened by drinking. >>>>4. Always count to ten when you start getting upset. >>>>5. It is ok to cry. >>>>6. keep a journal...it helps to write it down. >>>>7. Have a friend who is willing to listen to you complain. If you need >>>>someone I'm here or if you have any questions! >>>>Jennifer >>>>At Sun, 10 Apr 2005, Jill wrote: >>>>> >>>>>Hi Everyone, >>>>> >>>>>This is my first time posting on this site. I have come over from an >>>>>ectopic chat site that has provded much comfort. Although I am still >>>>>greiving from my ectopic in December that almost killed me, I am on >>>>>Lupron and feel so out of control with my emotions. At this point I >>>>>need to talk more about the Luprom side-effects more than I do the >>>>>ectopic. >>>>> >>>>>I am so angry all the time. Every little thing sets me off and I feel >>>>>like I'm going to explode. I have ZERO patience and get angry at my >>>>>husband at the drop of a hat. I'm trying so hard not to just walk out >>>>>of my house, but sometimes I just imagine myself driving away. This is >>>>>just not me. I just want to be left alone. I've only taken two shots >>>>>and take my third this coming week. I have a total of 4 more to go, if >>>>>I can tough it out. I'm told that my chances of having a safe pregancy >>>>>will decrease if I don't tough out the Lupron for as long as possible. I >>>>>will do anything to have a baby and I'll stay on the Lupron if I have >>>>>to. I'm prone to depression and just recenlty had to go back on >>>>>anti-depressants. I was on Prozac for 5 years, got off for six months >>>>>and then got back on after my ectopic. I just worry that I am slipping >>>>>back into a bad place. >>>>> >>>>>I just want to know that I am not alone and crazy. I just want this >>>>>nightmare to be over. My life has come to a halt. I had to have >>>>>another lap. two and a half weeks ago to remove adhesions that had >>>>>caused my right ovary to stick to my pelvic wall (ouch!!). I've had two >>>>>laps since December. I am just exhausted. I feel so alone andliek no >>>>>one understands what I am going through. My husband is tired of all me >>>>>being unwell, and I can't blame him. >>>>> >>>>>I just needed to blow off some steam. Any words of wisdom or kindness >>>>>would be great!! Thanks for listening to me gripe. >>> >>>-- >>>Jill >>>I feel your pain I am to a lupron crazed individual. Thank god I have an understanding husband. As for your depression I can relate. I never had any problems with this before lupron I have been on Lupron since August of 04 I am currently on my last injection. I am going ama because I am tired of feeling this way. I have talked to some people who have tried a drug called zoladex (i think lupron fog gets the best of me) anyways from what they said you still get the hot flashes and some of the symptoms of luron but not near as many. In a comparison they said the zoladex was alot easier to deal with. If I am forced to persue treatment I am going to try it. Right now I am sick and tired of being sick and tired. Everytime I go around one obstacle I run into another. I just got me colon detached from my ovary(ouch). Since my last lap to do this I have been having alot more problems with bm. Now my gp thinks I have gall stones I've been through so many medical treatments in the last couple of years I thought there couldn't possibly be anything else wrong. And it just amazes me how doctors are so quick to blow you off. I now for a fact that I am not crazy, and I am pretty sure everyone else is not crazy, but isn't kind of odd that are millions of us out there with the same problems? Now how is it possible that all of us can have the same variation of symptoms and at the same time all of us be crazy. I hope things get better for you. And I have a question Has anyones pain with intercourse gotten worse while on Lupron? I am to the point where I have to take a darvocet before sex or I am in tears. Sometimes it helps and sometimes it doesn't. >jamie
-- I had a hystorectomy in nov of 04 I am right there with you guys i am 29 it is back in my body spreading. i have done every possible treatment i can tell you all are as frustrated as i am.The lupron stinks the moods swings hot flashes etc. was so horrible. I am lost myself i don't know the next step i am taking i had my doctor keep my left ovarie and that was it i am doing in for it to be removed and to have some scar tissue removed . they can't remove my intestines so now what. I am so tired of being on pain meds i am thankful my husband loves me and i had a child early. Please someone tell me if yours has gone to other parts of your body and what you may be doing my choices aren't really fixable.Thanks Ally
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