ENDO Messages for April, 2005: Re: Daughter with endo

Re: Daughter with endo

From: Misty (anonymous@obgyn.net)
Wed Apr 20 20:49:22 2005

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In reply to: Patti: "Daughter with endo"

At Wed, 20 Apr 2005, Patti wrote: >
>Danielle, Thank you for the advice. It really does help to talk to some
>one who's been there. I am so sorry for all you've been through (and
>are still going through). You are strong and very resiliant. I am
>going to have my daughter read your post...I think she needs to know
>that there are others out there who understand. Her friends don't have
>a clue and have kind of abandoned her. I know we will get through this
>and we will be stronger for it but at times I can't help but wonder "Why
>her?" We are in search of a good specialist in the MPLS area but I think
>I may try the Mayo clinic as I have good insurance and they are
>reletively close.
>I wish I had advice for you on your mother. I am sure it is heart
>breaking for her. Just remind her often that you apreciate her endless
>support and try to do small things to treat her special.
> Thanks again and I look forward to hearing more from you.
>Lori, Thank you for your advice as well. I have consulted someone who
>has used the Redwine therapy (my daughter's chiropractor). I am
>seriously considering it. We saw a nutritional specialist last week
>because my daughter is 5'3" and only weighs 80 lbs. She has always
>struggled to put weight on and she has lost 5 lbs since all this began.
>Her energy level is so low and she has no fat strorage to help her fight
>this. We are trying many supplements to find one she likes and we are
>trying to get as many calotries into her as possible. One of the
>problems with the natural treatments is they want litlle or no fat in
>your diet. That may work for some but I'm not sure that it will work
>for her. Thanks again!

My name is Misty, I am Danielle's sister, I am 15 years old like your daugter. My sister wanted me to post this for you daughter to read, i am going through the same things she is, all the pain and everything. I havent had anything done yet because my mom thinks its to early. I am in the begining stages, i would like to ask her how she is handling Lupron, and how does she like her doctor. I know how it is when you have pain and you dont wanna do anything, my friends just dont understand, they dont know what it feels like they just say get up you'll be fine. When i have pain all i want to do is sleep it just takes all my energy away, what it like when u get it. I havent really talked to anybody about this except my sister who i love VERY much, i hope that your daughter will write back and answer some of my questions, thank you very much Misty

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In reply to: Patti: "Daughter with endo"

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