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Re: Lupron Hell...... Can Anyone Relate?From: anonymous@obgyn.netWed Apr 20 12:51:36 2005
Hi Jill, my name is danielle and i am also new to this site. i have been reading some of the postings and everyone seems so nice (for a change). I tried lupron twice when i was younger. All you have to remember is that Lupron just brings early menopause times 10 ( sometimes X20). Tell that to your significant other (they seem to understand that more than hormone fluctuation). i find my boyfriend gets a glassy eyed stare when i try to explain it. I am 22 and have had a hysterectomy (at age 18). Let me tell all you ladies out there: It is not a cure! Just last month i had to go in for ANOTHER Lap! And yes there were giant globs of endo every where. This disease is not fully understood because it is hard to find people and doctors who care. We have all grown up in a world where women are meant to have pain. You are supposed to deal with it! Even some of you close girlfriends would give anything to have you stop whining. This is all rubbish, but even in the 21st century we are plaqued by 18th century ideals. I hated Lupron and i as stated in another post it's not the only treatment. Ever since the dawn of time doctors have been treating endo with Lurpon. It seems to work for some but at what cost? If the pain doesn't drive you insane then the medication will. That is why i thank god for chat forums because there is someone out there going crazy with you. I find that the strongest women i meet have endo. And it is about time i joined a chat group to share my experiences and be with other women who are trying to survive as well. Maybe i will finally heal:). Thanks. Danielle At Sun, 10 Apr 2005, Jill wrote > >Hi Ladies, > >I just wanted to say thanks for being supportive. Keep the stories >coming....they really help! It would be nice if I could check-out of my >life for the next few months and go away by myself. Some times it feels >so unfiar that we have to go through this crap. I guess no one ever >expects this, but I just imagined things to be different in this "area". >Thanks for listening....... > >-- >Jill > >At Sun, 10 Apr 2005, JAR wrote: >> >>Hey Jill, >>I can relate toyour pain. I'm currently on my six shot of my second >>round of Lupron. The best advice I can give you is to realize that you >>truly are a different person when on Lupron. I find myself being crazy >>and my husband often just runs me a bath when I'm being crazy. After a >>few minutes I'm usally crying about how sorry I am. Lets see here are a >>few things that have gotten me through this round of Lupron a little bit >>better than the last time: >>1. Keep a spray bottle with a fan on your nightstand. It helps with >>hot flashes at night. >>2. Dress in layers >>3. Keep away from alcohol. I have found my rages and hot flashes are >>heightened by drinking. >>4. Always count to ten when you start getting upset. >>5. It is ok to cry. >>6. keep a journal...it helps to write it down. >>7. Have a friend who is willing to listen to you complain. If you need >>someone I'm here or if you have any questions! >>Jennifer >>At Sun, 10 Apr 2005, Jill wrote: >>> >>>Hi Everyone, >>> >>>This is my first time posting on this site. I have come over from an >>>ectopic chat site that has provded much comfort. Although I am still >>>greiving from my ectopic in December that almost killed me, I am on >>>Lupron and feel so out of control with my emotions. At this point I >>>need to talk more about the Luprom side-effects more than I do the >>>ectopic. >>> >>>I am so angry all the time. Every little thing sets me off and I feel >>>like I'm going to explode. I have ZERO patience and get angry at my >>>husband at the drop of a hat. I'm trying so hard not to just walk out >>>of my house, but sometimes I just imagine myself driving away. This is >>>just not me. I just want to be left alone. I've only taken two shots >>>and take my third this coming week. I have a total of 4 more to go, if >>>I can tough it out. I'm told that my chances of having a safe pregancy >>>will decrease if I don't tough out the Lupron for as long as possible. I >>>will do anything to have a baby and I'll stay on the Lupron if I have >>>to. I'm prone to depression and just recenlty had to go back on >>>anti-depressants. I was on Prozac for 5 years, got off for six months >>>and then got back on after my ectopic. I just worry that I am slipping >>>back into a bad place. >>> >>>I just want to know that I am not alone and crazy. I just want this >>>nightmare to be over. My life has come to a halt. I had to have >>>another lap. two and a half weeks ago to remove adhesions that had >>>caused my right ovary to stick to my pelvic wall (ouch!!). I've had two >>>laps since December. I am just exhausted. I feel so alone andliek no >>>one understands what I am going through. My husband is tired of all me >>>being unwell, and I can't blame him. >>> >>>I just needed to blow off some steam. Any words of wisdom or kindness >>>would be great!! Thanks for listening to me gripe. > >-- >Jill >
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