ENDO Messages for April, 2005: Re: catamenial pneumothorax

Re: catamenial pneumothorax

From: ning (anonymous@obgyn.net)
Tue Apr 19 03:35:41 2005

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At Sun, 20 Apr 2003, kim wrote: >
>At Thu, 13 Dec 2001, Abby wrote:
>>
>>Hi! This is the first time I've posted. I'm 26 years old and have had
>>three collasped lungs in the past year. Two have required chest tubes,
>>I've had thoracoscopy and also chemical pleurisy. Even though all three
>>began on the day I started my period, some of my doctor's will not say
>>for sure that it's endometriosis. It's been a rough year. I'm very
>>interested in finding someone I can talk to who's lived through this.
>>Maybe even someone who's found treatment that worked! My doctor right
>>now want's to put me on Lupron, but I'm horrified by the stories I've
>>heard. It's nice to finally find people who at least know what this
>>is!!! I've love to hear from anybody, with any kind of experience. Thank
>>you so much.
>
>It's so hard to find others suffering from this unusual condition! I've
>just had another chest tube inserted because of yet another collapsed
>lung (at least 4) and started my period after 2 years. I've been on a
>therapy of lupron alternated with birth control pills so I don't
>menstruate. This last injection of a three-month lupron therapy didn't
>work past the second month. I'm so angry and upset since the monthly
>injections seemed to do the job. I've had a t scope, thoracotomy,
>pleurodesis, mechanical pleural abrasion...and now, here I am again. I
>am a 47 year old female, a personal fitness trainer and the mom of twin
>11 year old girls (thru in vitro). Any new research out there?
>-Kim

Dear Kim,

I am a 33 year old female and hae had my first collapse 2 years ago , so far i have had a thoracotomy and three times a chesttube. My last collapse has been 6 months back and they put me the first 3 months on ORGAMETRIL that is a progestrone or something, those i could take for 3 months but than i had a lot of problems with my stomach, now i have had 3 months LUTYNEL , it was going good but the last 10 days i feel really tired and have no power to do anything, as i love my work it is very frustrating. My main problem is also that i always have a lot of air in my body and i have to burp really loud like it comes from very deep, Does anybody have that also, or had, i would love to have some info on what to do to have a reasonally normal life. Believe as I say that I know that for all of us who have this condition it is a daily fight, After every time I have a collapse or change medicin, I always have to push myself to build up again, I wish everybody a lot of strenght and I try to see it this way, we have a disease that will only last untill our periods or finished, after that we will all have a great life. But if anybody can help me pls email me , I will do the same for you tHANKS, ning

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