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Re: Went to the doctor today...wants to start me on Lupron

From: ann (anonymous@obgyn.net)
Fri Apr 8 23:19:07 2005

MICHELE,

I AGREE WITH RACHEL THAT YOU HAVE TO BE PROPERLY DIAGNOSED WITH ENDO AND THE ONLY WAY PRESENTLY IS VIA SURGERY.

I HAVE HAD 4 LAPS AND DONE 6 MONTHS OF LUPRON DEPOT. LUPRON IS A VERY CONTROVERSIAL TOPIC. FOR SOME WOMEN IT WORKS TO SUPRESS THEIR PAIN +/- A YEAR OR LONGER IF THEY ARE LUCKY. I WAS NOT A LUCKY ONE. I WAS MUCH SICKER WITH SIDE EFFECTS OF THE LUPRON THAN I WAS WITH THE ENDO. I RESISTED THE LUPRON, BUT WHEN MY OB GAVE ME THE COLORFULL BROCHURE ABOUT LUPRON AND ENDO FROM TAP PHARMACEUTICALS, IN ADDITION TO TELLING ME THAT IF I WERE HER SISTER, SHE WOULD RECOMMEND THE SAME TREATMENT. SO I AGREED TO TRY. THE ONLY GOOD THING FROM THIS IS THAT I AVOIDED A FULL HYSTERECTOMY.

FYI, IF YOU DON'T KNOW ALREADY, LUPRON OR A HYSTERECTOMY DO NOT CURE ENDO.

IF I WERE YOU I'D GET A SECOND OPINION FROM ANOTHER DOCTOR. WOULD YOU FEEL COMFORTABLE HAVING SURGERY BY YOUR DOCTOR WHO WOULD PROPOSE LUPRON PRIOR TO A DIAGNOSIS? DO YOUR HOMEWORK AND ALWAYS WRITE DOWN ALL YOUR QUESTIONS FOR THE DOCTOR. ALSO, I KNOW IT'S HARD SOMETIMES BECAUSE YOU FEEL LIKE YOU HAVE 5 MINUTES TO DESCRIBE HOW YOU'RE FEELING AND PLEAD YOUR CASE, BUT STAND YOUR GROUND UNTIL ALL YOUR QUESTIONS HAVE BEEN ANSWERED.

I DID MY HOMEWORK, READ EVERYTHING I COULD FIND AND FINALLY DECIDED TO GO TO CALIFORNIA AND HAVE EXCISION SURGERY WITH DR. ANDREW COOK. HE AND THE VITAL CARE INSTITUTE ARE WONDERFUL. SEEING A SPECIALIST IS NOT A 100% CURE GUARANTEE, BUT THEY TREAT YOU LIKE YOU WANT AND SHOULD BE TREATED. CALL FOR A FREE INFO PKG. DR. COOK WILL REVIEW YOUR CASE AT NO CHARGE.

WHATEVER YO DO, KEEP EDUCATING YOURSELF. YOU'VE ALREADY STARTED BY FINDING THIS WEB SITE.

KEEP YOUR CHIN UP!! ANN K

At Fri, 8 Apr 2005, anonymous@obgyn.net wrote: >
>At Fri, 8 Apr 2005, Rachel wrote:
>>
>>Michele, you have to have a lap to be diagnosed with endo! The reason
>>for that is there are several problems that can cause the same pain as
>>endometriosis. One of those is ovarian cancer. In addition, endo LOOKS
>>like nothing else, and can be detected on sight, unless it's
>>microscopic, which is a whole other issue. Lupron is a very severe
>>treatment, with permanent side effects for a lot of women (which your
>>doctor will NOT tell you about.) If you're doing to trust your doctor to
>>put you on Lupron, be damn sure you have endo. I strongly advise that
>>you get a second and third, even fourth opinion from other doctors on
>>this. You need a lap. It's your health, and the effects of how you
>>doctor "chooses" to treat you will stay with you for a very long time.
>>You need to be the boss of your doctor. Don't let him/her make the
>>choices. It's your life.
>>
>>Look at it this way. Would you allow your doctor to treat you with
>>chemotherapy if he only had a hunch that you might have cancer? Lupron
>>is a serious drug, and should be taken if only absolutely necessary.
>>What endo you have (if you have endo) should be removed during surgery,
>>then your birth control pills will probably work. The problem is that
>>the pills don't get rid of the endo that's there, but they do help to
>>prevent new growth. Your doctor probably told you the Lupron will
>>shrink it, or kill it. Not true. It will stop it where it is, and when
>>you stop Lupron, what's left will start to grow again. One more thing
>>to consider is that Lupron has only been approved by the FDA for the
>>treatment of endometriosis for one 6-month period PER LIFETIME!
>>
>>--
>>Rachel
>>

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