ENDO Messages for April, 2005: Re: The Making of the Documentary '' Endometriosis The Inside Story''

Re: The Making of the Documentary '' Endometriosis The Inside Story''

From: anonymous (anonymous@obgyn.net)
Wed Apr 6 11:33:26 2005

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Shannon: "Re: More bad news...anyone had a biopsy of their cervix?"
Previous message: anonymous: "Re: More bad news...anyone had a biopsy of their cervix?"
In reply to: B.Browne: "The Making of the Documentary '' Endometriosis The Inside Story''"

i recently just received my copy of the video in the mail. i watched the movie sunday night. it was like watching ,y own life and it has a lot of information in it. my family is going to watch the movie so maybe they can understand a little better of what i go through. nikkie At Wed, 6 Apr 2005, B.Browne wrote: >
>Two women, one a nurse in Australia, the other a film maker in the US in
>Texas had identical experiences with endo. Misdiagnosis, unbelievable
>pain dismissed as hypochondria, imagination, or "This is normal - put up
>with it".
>
>They each determined to share their experiences with other endo
>sufferers.
>
>They met in an internet chat room. They planned, they raised money and
>from their own experiences with the disease and with the help of some
>caring doctors and women's support groups they made a documentary film
>that shows women what they can expect when they get endometriosis.
>
>How well did they succeed? Here's a review from Mary Lou Ballweg, who
>started the US Endometriosis Association 18 years ago when she couldn't
>get help with her disease.
>
>"This video is so good that it simply must get out to the world.
>
>>From the beginning of the Endometriosis Association, women and girls
>have shared their stories of endo - powerful, painful, poignant stories.
>
>Anyone who listens to these stories will be moved and forever change
>their attitudes towards this disease. Now, in a wonderful documentary,
>the best video ever on endo, women tell their stories for the world. If
>we can get partners, friends, families, and most of all, doctors and
>researchers, to view this documentary we can help change the world's
>view of endometriosis."
>
> Mary Lou Ballweg, President
> Endometriosis Association
>
>Shortly after returning from DC (within a week) Jen and I both sat down
>to watch the documentary. I, for one, was very moved. I probably went
>through about a dozen tissues during the course of the video. Yes, men
>do cry sometimes. Just don't let out my secret :)
>Much of what I saw was very familiar to me, especially after having just
>come back from the walk and hearing all the testimonials of the women I
>met there. There was much information that was new to me. Particularly
>some of the interviews of the Endo specialists contained bits of
>information that I had never heard before.
>I think the fact that Jen and I had spent a weekend with you made the
>video that much more powerful for me. To get a view of the daily life
>for women who have more debilitating disease than Jen does was just
>incredible. I sat in amazement, all the while thinking "Is this how
>Jen's going to be in a few years?" It deeply saddened and angered me
>that there are so many women in so much pain and relatively little is
>being done about it. My respect for you and other women who have this
>disease has also increased dramatically. The fact that you were able to
>come to the US to show support for the cause shows how strong of an
>individual you are.
>I would love to see a Part II to the documentary. The more information
>there is out there about this disease, the better.
>Jeffrey M. Cox
>Programmer/Analyst
>IA Systems, Inc.
>
>A review From Carey and John Blondin ,who started Mendo and Carey's Endo
>Survival Kit
>
>John and I just finished watching your video. One word comes to mind
>for us - FANTASTIC. You all did a fabulous job in getting the REAL
>story of endometriosis out there. There has never, in our opinion, been
>a more realistic , more factual, more true to life program about
>endometriosis than yours.
>
>This video brought John and I both to tears several times. And watching
>you in surgery... man did that rip at my heart. I SO remember those
>feelings that you expressed without any words at the end of your surgery
>when the nurse was talking to you.
>
>It is a huge success in our book, Belle. Bravo to the entire team
>involved. Now we can't wait until your second one.
>
>Excellent job .
>
>Carey
>
>"Endometriosis. The Inside Story" a US / Australian co-production has
>been highly praised by other support groups all over the world as the
>most powerful and complete film ever produced on this tricky subject.
>You can also order the video by emailing TinkerBelles@bigpond.com
>
>--
>Belle Browne, Registered Nurse
>Australian producer, Executive Producer, Co- Creator and
>Co-Narrator of the Documentary ''Endometriosis -The Inside Story''
>Read about the documentary at its new home( its been updated and renovated and has a new owner..check it out)
>website -> http://www.endometriosis.org
>Owner - Female Chronic Pain Sufferers Forum
>http://www.yahoogroups.com
>
>--
>

Next message: Shannon: "Re: More bad news...anyone had a biopsy of their cervix?"
Previous message: anonymous: "Re: More bad news...anyone had a biopsy of their cervix?"
In reply to: B.Browne: "The Making of the Documentary '' Endometriosis The Inside Story''"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: